I never thought of that, but no my pants don't fit better.

Since this is osteopenia, we caught it early and I can get away with extra calcium and Vitamin D. Anyone on pulse steroids should get annual bone scans, though. Keep that in mind so that you can catch anything like this early.

Good luck - I hope you have positive results.

From a discussion I had with my neuro this is a common type practice for certain type cases.

I was prescribed and did this for a while, until I pleaded for relief! Steroids and this bird aren't really friends in the temperament department!

Try it and I hope it works for you!

I'm glad to hear Copax has had that much of an impact on you, I just started taking it...

Hi Victorya

I've done that - pulse steroids. It was when I was on Betaseron and then for the year plus when I was on no therapy. So far, the amount of steroids I've had has not affected my bones (I've had a bone density scan every year).

The pulse steroids did lessen the severity of the exacerbations but it did not slow the rate. I still had exacerbations but they were not as bad. For me that was worth the increased amount of steroids my body was being subjected to as I was still able to function, somewhat limited, but not bedridden as I had been prior.

If you plan to go on Tysabri, you will not be able to do pulse steroids. There is a wash out period for steroids before you can start on Tysabri and if you have been doing pulse steroids, then I do believe the wash out period is longer. You will have to check with your neurologist for his opinion on what he considers the appropriate wash out period.

Each person is different with the disease and I know how you feel having been there with so many exacerbations with no relief on the horizon. It's so damn frustrating. I got so tired of IVSM every 3 months ...

I thought about this a little more....you know one way to help combat your effects from the IVs is to pump some iron! Doesn't have to be a lot, and if you can't hold on to some dumbbells and can't use a gym you can get those stretch resistance bands.