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#1 | |||
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Magnate
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hmm I will be at McDonald's Management classes, I fly out the 9th..and take school classes 10th thru 14th....thanks for the info...sarah
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"Thanks for this!" says: | volada (03-03-2008) |
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#2 | |||
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Member
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There is not only a MS Awareness Week, but also the NMSF has declared the whole month of March as MS Awareness Month.
Check out my signature and profile.
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#3 | |||
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Junior Member
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Quote:
![]() it is beautiful here today==68 degrees and i am determined to use my anger toward some activism--will keep emailing everyone i know to get behind us on this issue--even emailed the congressman i used to work for to urge him to help us out
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1st symptoms--01-27-08 (blurred vision) dx 02-12-08 confirmed with neurologist 02-15-08 spinal tap 03.03.08 started avonex 03-14-08 july 2011-ish....lesions on the spine (at least two!) . started rebif 12-01-11 You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt |
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"Thanks for this!" says: | ania (03-03-2008) |
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#4 | |||
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Member
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If you just got back from a spinal tap...please go lie down!
Then...spread awareness! We at OHG are compiling a list of address to send awareness postcards. I'd be very interest on your thoughts. Please check out the link in my profile and send any addresses you think would be useful to us.
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#5 | ||
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Guest
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It's a "national" month ~ check out this calendar of National Observances... i wonder if there is a world ms day? or a world ms month? that would be a cool campaign to get going ![]() it is an important part of a healthy acceptance of this mangy disease... to become active... for your own health, and then beyond ourelves to the health of those after us... maybe the bits we do today can be the catalyst for a cure for our children, and theirs.... think of the money we'd save, and the production we'd gain! without ms.... ...if 'they' don't care that we hobble, maybe they'll care about how much it costs when we have a bunch of hobblers... i encourage folks who may not be the one to write a letter, or join a walk, to find a way... even by staying here on message boards to support others... find a way to give... to use ms as your strength.... let ms be on your side... let it be what makes you powerful, unique, and able to do more now than you could before... peace friends! onward and upward! ![]() |
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#6 | |||
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Grand Magnate
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Thank you for this reminder. I sent out an email to all my friends and family telling them that every little bit helps, even if it's just a little bit of volunteer time if money's tight.
I even signed up to do the walk our chapter is doing in April. I'm still mobile so far, and it's at our zoo. That will be fun in itself. ![]()
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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"Thanks for this!" says: | volada (03-04-2008) |
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#7 | |||
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Member
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think of the money we'd save, and the production we'd gain! without ms.... ...if 'they' don't care that we hobble, maybe they'll care about how much it costs when we have a bunch of hobblers...
Wow, that is powerful! How many people have to be effected before we're no longer an "orphan" disease? When the numbers increase even more...the burden to our society will also rise. I live with MS all around me, it's an epidemic in my world. My half-sister and I both have MS. Her father had MS (we share the same mother) who would have thought with my odds of 1 and half % that I'd get it! My best friend from college was just DX, a teacher who asks me if she will be able to teach again. She also asks, "will we never travel like we dreamed of in college and visit galleries around the world?"...I answer, "we have different dreams now." We both lived in the same 2 family house at seperate times. On that property and the neighbors 5 people have been DX with MS! In my world MS is'nt an "orphan" disease.
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This space is empty Last edited by ania; 03-04-2008 at 12:06 PM. |
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#8 | |||
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Junior Member
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Quote:
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1st symptoms--01-27-08 (blurred vision) dx 02-12-08 confirmed with neurologist 02-15-08 spinal tap 03.03.08 started avonex 03-14-08 july 2011-ish....lesions on the spine (at least two!) . started rebif 12-01-11 You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt |
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#9 | |||
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Wise Elder
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I'm all set for our local walk. Our team is "Walk & Roll" LOL.
I went and had my haircut today and they had something posted on all of the hairdresser's mirrors. I asked if they were doing the walk and they said they didn't really know anything about it. So I gave a little talk while getting my haircut to the stylists and customers about MS and the walk. Of course, I did also ask them to join my team. Hey, we have $2,000 fund raising goal and it's only a couple of weeks away. |
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#10 | |||
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Junior Member
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that is so great to hear...please also try to contact your congressperson about the 15 million in research! we will do the walk in april...based on your goal maybe i should set our goal higher????
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__________________
1st symptoms--01-27-08 (blurred vision) dx 02-12-08 confirmed with neurologist 02-15-08 spinal tap 03.03.08 started avonex 03-14-08 july 2011-ish....lesions on the spine (at least two!) . started rebif 12-01-11 You gain strength, courage and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I have lived through this horror. I can take the next thing that comes along.' You must do the thing you think you cannot do. Eleanor Roosevelt |
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