FAQ/Help |
Calendar |
Search |
Today's Posts |
03-07-2008, 12:15 PM | #11 | ||
|
|||
Senior Member
|
Quote:
Well said Cricket!! In case you missed it, because I could not get a dx, I chose on my own to investigate this possibility....for me and my family....so that I could put this possibility to rest. I was scared that the therapist would say "Yup, you did this to yourself", but he didn't. I'm working on other issues as in life, we all have things we could talk out and feel better for. It is helping my mind...and I don't feel anxity or depression....hell, who wouldn't get depressed after what we go through? I will never have to wonder now, and I can tell that to any doc that would suggest it in the future (FTR: My Neuro just said we are going to wait and see....he never suggeted it was emotional) Thanks!!
__________________
. Wisdom to the soul is what health is to the body |
||
Reply With Quote |
03-07-2008, 01:33 PM | #12 | ||
|
|||
Senior Member
|
Quote:
For me, my eyes squint and blink, forced eye closure, blurry vision, double vision and ghosting. To this day, these symptoms have never left. I've learned to live with it, so I don't mention it much. I guess when you've lived with a sx for many years it becomes a part of who you are. This is a very visable sx to the outside world. It has dropped my self esteem and my confidence level. When I'm talking to people who don't know me, I feel so isolated and like a true freak! Anyway....just wanted to share that.
__________________
. Wisdom to the soul is what health is to the body |
||
Reply With Quote |
"Thanks for this!" says: | bobcatsrule (03-09-2008) |
03-07-2008, 01:41 PM | #13 | |||
|
||||
Senior Member
|
Quote:
Quote:
I don't understand this one, You eyes close on there own when you try to keep them open?
__________________
Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11). . DX with Fibromyalgia, 1998 DX with MCS (Multiple Chemical Sensitivity), June 2008 DX with Food Allergies, wheat, sesame, fresh pineapple . |
|||
Reply With Quote |
03-07-2008, 02:00 PM | #14 | ||
|
|||
Senior Member
|
A simple answer...Yes! When it was at its worst, I sat there watching TV,etc, with my eyes closed, which was like a forced blindness. I could open them, but then they would shut again. This was my first attack. Now it's mostly squinting and uncontrolled blinking, with blurry vision. I also have sharp stabbing pain behind my eyes, much more like what others here describe.
Again, not one I discuss much.
__________________
. Wisdom to the soul is what health is to the body |
||
Reply With Quote |
03-07-2008, 02:16 PM | #15 | |||
|
||||
Senior Member
|
Quote:
__________________
Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11). . DX with Fibromyalgia, 1998 DX with MCS (Multiple Chemical Sensitivity), June 2008 DX with Food Allergies, wheat, sesame, fresh pineapple . |
|||
Reply With Quote |
03-07-2008, 03:33 PM | #16 | |||
|
||||
Junior Member
|
Quote:
__________________
A Good friend is one who knows where you have been, accepts you for what you are, and encourages you to grow! ~ Anonymous . If you were happy everyday of your life you wouldn't be a human being, you'd be a gameshow host! ~ Gabriel Heatter . In the book of life, the answers aren't in the back. ~ Charlie Brown . When life gives you a ton of lemons, go grab some sugar! It makes the lemonade taste better! - Rachael . |
|||
Reply With Quote |
03-07-2008, 04:18 PM | #17 | ||
|
|||
Senior Member
|
I did the botox injections for about 6-8 months back in 01/02. It did not help at all. Only time has made it better. Later, my MIL got blephrospasms, and they are nothing like what I have...and the botox worked for her. Usually, Blephro's are only in one eye. Mine sx are in both. I don't have the 'twitching' that is characteristic of blephro's...I have forced shutting, blinking and squinting. Definately nerve related.
I have had several MRI's and I have lesions, but not where you inquire. I have never heard that blephrospams are associated to MS, but I'll check your link out... My Optho/Neuro I saw again last year, and he took that dx away and has me listed as possible MS since I also have vertigo, numbness and cognitive issues (different attacks thru the last 8 years) which are not related to the blephro's. I think he's on to something...but MS has a way of hiding out for some people. PS: Please list all the tests you've done and the result. MRI? LP? BLOOD? OTHERS?
__________________
. Wisdom to the soul is what health is to the body |
||
Reply With Quote |
03-07-2008, 04:33 PM | #18 | ||
|
|||
Senior Member
|
The first link you posted did list MS as a dx considered sx related to blephrospasms. (Did I say that right? LOL)
Very interesting...I did all that research years ago, but this is the first I've seen about Blephrospasms and dystonias related to MS. Very interesting. Thanks. My MIL has that twitching, so I've seen it first hand...but mine is more of a control issues, the best I can describe it. The more tired I am, or if under a stressful situation like talking to a boss about something, my 'tic' as I call it, gets worse. Again, good article...thanks! PS: I have to recommend that you break up your paragraphs more often, many here including myself, have difficulty reading long paragraphs...Many here will appreciate it
__________________
. Wisdom to the soul is what health is to the body Last edited by sugarboo; 03-07-2008 at 04:36 PM. Reason: PS |
||
Reply With Quote |
03-07-2008, 04:34 PM | #19 | |||
|
||||
Magnate
|
Bobcats - whatever may be wrong with you, please know your feelings are quite normal. Others who aren't sick don't get it.
That doesn't make it healthy to never talk about it. They may not want to hear about it - some people are not good with that, you know? But that's what this place is about. Glad you found us, and hope we can help you in that way. One favor please... could you break your writing up a bit? Hard for me to read, BTW, please pop in on Wednesday for Limbo check in, okay? Good luck with all of this.
__________________
Anybody who doesn't think a dog can smile has never dropped a piece of bacon. |
|||
Reply With Quote |
"Thanks for this!" says: | bobcatsrule (03-09-2008), the Bird (03-07-2008) |
03-07-2008, 04:39 PM | #20 | ||
|
|||
Senior Member
|
Sorry if I was not clear. This is all day, every day since 1999 for me too. Sometimes an attack can do enough damage to give you a new normal. My normal is as I described, accept I can now keep my eyes open as a general rule. I still get the forced closeings now and again...but I blink and squint all day everyday VERY ANNOYING!
__________________
. Wisdom to the soul is what health is to the body |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Limbo check in 3/5 | Multiple Sclerosis | |||
Limbo check in 2/13 | Multiple Sclerosis | |||
Limbo Check in 2/06 | Multiple Sclerosis | |||
Hi everyone in TOS land | Thoracic Outlet Syndrome | |||
One of the finest men to have ever lived died today | Parkinson's Disease |