Ok yeah i would sound super weird now to anyone but ya'll


but i just got back from an intake chiropractic appointment and yeah it is definately NOT in my head (or maybe it is - MRI's will tell that one).

The chiropractor tested my spine gently AND (we really need a drumroll smiley)

EVERY MUSCLE FROM MY HEAD TO MY TOES has moderate to severe spasticity which means even the gentlest touch caused pain and reflextivity (which ironicly i don't have very good reflexes any more)... except to pain. when they tap my right knee it says HUH? and doesn't do anything.

I also have SEVERE clinically observable balance issues! And today was a "good day"!

Not that it is such a great thing b/c the spacitity/ballance issues it is really painful but it is a great thing in some ways b/c it means that I'm not making all this up!

you can fake a lot of things, and be crazy about a lot of things but making every muscle group from your head to your toes reflexively spastic is NOT fake-able!

I just mentioned my appointment to my mom and she was like "don't be so happy about it!" can i get a shout out for all those who have heard that line?

She just don't get it!

I'm glad that ya'll do and that I'm a part of this group! even when i writes in hieroglyphics!


my mom was wanting it to be all in my head, I'm glad it isn't b/c it feels awesome to be validated.

we need a MRI smiley too! hee hee hee

ya'll truely go my speed around here and can understand and decode hieroglyphics (thank goodness for spell check -like i can really spell hyroglphics).

Thanks for the warm welcome!

Sincerely,

Rachael

You made me LoL!!!!

I like that! Expressivly creative. Yep! that about sums it up! Heeee hee!


I ended up with a neuro in Augusta b/c that is where the Ophtomologist in Milledgeville (where i was in college in 2003) and diagnosed with diploplia (doubble vision) to the tune of 15 prism diopters at the time. (he was not sure how to put that much prism into glasses so he sent me to an optho in Augusta that he consults with.

she did put me in glasses to the tune of 12 prism diopters which i remained in though my eyes got steadily worse till eye surgery in 2006.


The eye surgery (strabismus surgery specificly) corrected my vison to a point but not entirely (mainly reduced the damage to the muscles from the prisim). I still have severe (28 prism diopters worth of eye turn to this day).

9 months after major corrective strabismis (doubble vision) surgery my eyes had still not stabilized and at that time i was sent to an neuolgoist at MCG to be tested for Myasthenia Gravis.

I do not have myasthenia gravis but the sx that i was willing to talk about at the time sure sounded like it (i just with held a lot of info like about the muscle spascity b/c i though people would think i was crazy like my family seems too). so they put me on medicine for the Myasthenia for a year, with the ever increasing doseage.

I am still on that medicine b/c it seems to help with the spascity! and the ever loved cog fog (we need a foggy smiley too!)

Yeah i know that is one of the most hated things that virtually all of us have in common. but i have it too so i guess i really do fit in!

Any who that is how i ended up in Augusta. Thanks for askin'


I the MS community!

Wanted to give a shout out to everyone out there that ya'll have been the most positive and uplifting bunch of people i have ever met!!!!

You understand me and don't think I'm too weird to hang out with and you don't judge me!

I don't want to have MS, but if I do, I'm glad to be a part of this club b/c I'm around people who are like me. Want to live full life and prove to the world that just b/c you have a "disability" doesn't mean you have to be "disabled!"

Thanks for everything!

Rachael

I was thinking we all arrive pretty freaked out

Welcome Rachael

You can post here anytime. MS or no MS. You're posts are interesting, informative and entertaining too. I love how you make really small paragraphs.

As Snoopy said way back on page 1, L"Hermittes Sign is the sensation the chin to chest motion called. I hate that most of all. Thankfully it comes and goes.

Hoping yoiu get some concrete answers. You've been through alot with the double vision, geez louise. Keep us posted.