Thanks for the for the encouragement. I have a small confession to make though. I have had to learn the hard way about rushing into a dx. that is what happened with the myasthenia. I freaked out when they mentioned the word MG and the dx ended up being the wrong dx and i am paying for that dearly now (fortunately though the effects of the symptomatic drug that i was on will not permantently harm me!) But withdrawl is a (look up in the speech bubble to see my thoughts

I wanted answers so bad, for why i felt so weird, that i found out about the disease and then was so in tune to my body that the little things seemed like bigger things than they actually were and then it went from there and was dx (incorrectly) with MG.

I was determined not to have that attitude again when i was going through all this. and that is part of the reason that i got a 2nd opinion. I wanted a chance to start over with a new neuro that wouldn't have preconcieved ideas about me so that we could get to the bottom of the doubble vision issue so that i could go on with life!

I am hoping so much that the origional neruo was right about the fact that i'm going through a lot of withdrawl symptoms from the drug that i was on (at such high doses) for the disease i didn't have and that once this is all over with (I get off of the drug) then things will start to return to normal. NORMAL!!! WHAT IS THAT?????

Is there something that they can give you to counter the effects of the withdrawals? It would be interesting to see what would happen.

You story is great for many who rush for a diagnosis. You were wrongly diagnosed and put on medications that was actually doing no good and maybe more harm. Thank you for sharing that with all of us.

You are very welcome! There is an antidote for the medicine that i was given but it would not be applicable for my situation.

the current theory about my body is that b/c of the mode of action of the med that i was on, it down regulated (reduced the number of receptors) that i had for a certain key neuro transmitter. well that, when you suddenly increase the need for said receptor that is no longer there, then you have created muscle weakness! it just will take time for my body to re-regulate and create more of those receptors now that the demand is up for them!

BAM!!! the symptoms that I'm having now (from a med i didn't need for a disease i did not have) could easily be explained by the withdrawl from a medicine that i didn't need but that dramaticly affected my body.

I am just so grateful that I was able to remain solely on the medicine that was just for symptoms and didn't get into the DMDs for Myasthenia!!! That would have been really bad!!!!

I have learned a valuable lesson from all of this. Don't jump to conclusions about your health, it will come back to bite you!

Let the doctors do their job and don't try to do it for them!

I am hoping that i don't have MS and that it was just the medicine i was on for MG and that once i get off of that medicine then i will be ok and can continue on with the rest of my life a wiser and more medically cautious person!

thanks for all those who have been following me.