[momXseven]

Last night my legs were a bit weak and I was a little more fatigued than I am most nights. I kept having this odd nerve pain all over my left side, Like my left foot would hurt like 10 seconds and a bit later the left side of my back it the same thing.

No biggie, right? So off to bed I go and I wake up to, awful forehead headache, very weak all over, legs aren't working well (I'm sitting at the computer right now and if I want to cross my legs I have to pick my left leg and place it on to of my right leg).

I can only walk a few steps at a time before I have to hold on to something.
Also some odd things, nothing taste right, I'm a little dizzy, I'm cold but the house is at 78 (I'm not running a temp).

When I walk I tin to veer off to the right (I thought this was off since it's my left side that seams weaker).

I have almost no appetite as yesterday morning.

[lady_express_44]

ADD IN:

No sensation in my feet, most of my legs, my torso and hands . . .

Unrelenting pain in my back . . .

Inability to stay awake for more then 4 hrs . . .

Or to sleep more then two . . .

Strength to only drive 15 minutes . . . but not get out of the vehicle . . .

Hands that can't even pick up a pen off the floor . . .

A gross, creaking/rattle noise coming from my chest . . .

Breathlessness from the hug . . .

A clearing infection (thank goodness) . . .


And that is a GOOD day for me.

Julie, you have to learn to tune out some of these "problems" or you will never survive a year with this disease.

Cherie

[sugarboo]

You know that saying:

"If you can't say something nice, don't say it at all?"

It applies here

I see no reason to hurt someone's feelings on this or any board! I also question people who keep 'logs' of what others say.

This was a message that should have been PM'ed for privacy if you felt the need to say anything at all.


Julie I hope you feel better soon!

[lady_express_44]

Originally Posted by greenjeans

You know that saying:

"If you can't say something nice, don't say it at all?"

It applies here

I see no reason to hurt someone's feelings on this or any board! I also question people who keep 'logs' of what others say.

This was a message that should have been PM'ed for privacy if you felt the need to say anything at all.


Julie I hope you feel better soon!

I don't see how this would hurt someone's feelings, but my apologies Julie, if it did.

Virtually every day can be H#(( with this disease, especially after having it many years. It is part and parcel of what we live with.

We do have to tune it out . . . or at least I do. If we focus on every twinge or obstacle, it makes life miserable for ourselves and everyone involved.

Julie struggles a lot . . . we all do. I am not denying her pain or frustration, I am just trying to suggest ways to cope. "Coping mechanisms" are what we all have to learn, and one of those is to try our best to ignore some of these problems, when possible. The more we talk about it, the more we perpetuate the gloom and obsession with it. This is my personal experience, and a lesson I had to learn too.

Obviously not everyone is going to agree with this approach, but it is my opinion on the matter, and it does work for me most of the time. Not always though, obviously, or I wouldn't have listed out all my current grief.

I get mad too. Mad at this disease, mad that everyone suffers so much (especially me ), and mad that I can't do anything about it. I get frustrated when I can't walk or talk or live . . . Dwelling on each problem is depressing though, and not at all healthy for me.

However, I am sorry if my anger about MY DAY, MY LIFE, trying hard to KEEP MY AGONY TO MYSELF (so as not to bring down everyone else) has spilled over into this response.

Cherie

[HSPCraig]

Nice post Cherie.

Thank you for explaining.

[SallyC]

So Sorry, Julie, that you are having one of THOSE days. I hope it improves for you as the day goes on.

Cherie is right, on one note, denial is our friend, and ignorance is bliss...In other words, we must ignore some of these constant SX, or go bonkers.

I'm sorry that you are having a bad day too, Cherie.. Your way of dealing, is good for you, but, not always the way others choose to deal. That's why Doc gave us this forum.....To help each other do that.

There are many days I ignore things and some days I need your help..

[Kitty]

Julie,

When I was first dx I dwelled upon every last symptom I had - even if it wasn't bothering me too much - I think I "felt" them more then than I do now because it was new and scary and I didn't know what was coming next.

Fast forward to today - I still am bothered by my symptoms and some days they are worse than others but I have learned to pick and choose what I want to let bother me and what I don't. It's the only "control" I have over this disease. I know you're not dx with MS so all these symptoms you're having must seem magnified simply because there is no name to put with them.

I'm not discounting your distress - just offering a suggestion to maybe relax a bit and do something to take your mind off the constant barage of symptoms you have. You said you have help come in to take the children and cleaning chores off of you sometimes - use that help to take some time for yourself and go get a cup of coffee or go to the library or to the bookstore and browse. Like cimmonz suggested - even a break from the computer to give your CNS a rest can help, too.

I hope you feel better soon.

[tkrik]

I am sorry that you are having a bad morning. And yes, please try to rest for a bit. It can do wonders. My daily naps are what gets me through the day. For the kids that are home, have them take naps too regardless of their age. My kids took naps up until they were about 8 when we were home on weekends and/or vacations. It gave everyone a good break and some quiet time.

I do agree with what Cherie was trying to say. I would be an absolute mental case if I focused on all the odd things going on with my body. Learning to cope and accept it for what it is is so important.

On the other hand, don't ignore everything. I make this mistake all the time and the neuro slapped my hand for it because I wait too long and ignore too much. I joke around that I need therapy to learn how to be a hypochondriac. LOL. That is how bad I am.

At my last neuro appt in January, I had been experiencing symptoms since having a cold at the end of December. It got bad enough that I lost part of my vision and finally decided to go in. It was at this appointment that we ended up having the "you wait too long and ignore too much" talk. Anyhow, after I had my MRI it was determined that the increase in symptoms was due to a viral type syndrome. Knowing that many of your family members have been sick and just experiencing this myself, is it possible you are dealing with some sort of viral syndrome which is causing all these crazy things to go on? Just something to think about.

I hope you start feeling better soon.

Originally Posted by momXseven

Last night my legs were a bit weak and I was a little more fatigued than I am most nights. I kept having this odd nerve pain all over my left side, Like my left foot would hurt like 10 seconds and a bit later the left side of my back it the same thing.

No biggie, right? So off to bed I go and I wake up to, awful forehead headache, very weak all over, legs aren't working well (I'm sitting at the computer right now and if I want to cross my legs I have to pick my left leg and place it on to of my right leg).

I can only walk a few steps at a time before I have to hold on to something.
Also some odd things, nothing taste right, I'm a little dizzy, I'm cold but the house is at 78 (I'm not running a temp).

When I walk I tin to veer off to the right (I thought this was off since it's my left side that seams weaker).

I have almost no appetite as yesterday morning.

that sounds terrible!

sometimes these times of fatigue and unknowns and burdens just feel so overwhelming... a kindof... what thu???

these are all signs that your body needs rest! rest yourself from the computer too if you can... it really does make a world of difference... when you give your CNS a rest... let things quiet down a little....

i know you're a busy mom... but can you go to a quiet dark place for a few minutes and rest?? i find a 20min nap clears my mind a bit to face the challenges of my body...

you're not alone! we're with you in spirit!

[HSPCraig]

I'm sorry you're having these difficulties as I know it is very frustrating.

Feel free to come here anytime and vent or just say what you're feeling. That is what this forum is all about. I've found many times that just by typing out how I feel on any particular day can make me feel better.

I know we all realize that there are other people much worse off then ourselves and we recognize that fact. But it is what's important in our own lives that we tend to concentrate. Many times it is all consuming.

I hope you feel better as the day goes on. I sometimes just tell myself to "suck it up" and move through it. OK! It doesn't work all of the time but at least I feel like I'm fighting it.