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Old 03-25-2008, 03:00 PM #21
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When I am at home in the summer I constantly wear a Romper.

That's the terry cloth one that just comes above the bust and to the
middle of the thighs. I don't have the greatest body but I don't
care. I have COPD also and the heat really gets me where I can't breathe.

I can't stand anything on my shoulders in the heat. When outside in
my yard I wet a terry cloth hand towel and put it around my neck.

If I am going to a backyard barb. I put a few wet towels in a plastic
bag and put it in the cooler. This way I always have a cold one for my neck &
shoulders. Put the warm one back in cooler take cold one out and so on.

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Old 03-25-2008, 03:26 PM #22
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Quote:
Originally Posted by Av8rgirl View Post
Erin
The MSAA has a catalogue that you might want to look at. It can be found at http://www.msassociation.org/PDFs/co...log%202008.pdf

a lot of their stuff is either free of low cost. They have a lending program that you might want to check into.
I went to their website and applied for this whole cooling kit! It has the vest, wrist coolers, neck cooler, cooling bandana and lots of cold packs. I qualified to receive the whole kit for free. I think it was based on one's condition, not finances, but I don't quite remember. Definitely look into this though, the kit is wonderful!
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Old 03-25-2008, 04:34 PM #23
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Quote:
Originally Posted by JessieSue View Post
I went to their website and applied for this whole cooling kit! It has the vest, wrist coolers, neck cooler, cooling bandana and lots of cold packs. I qualified to receive the whole kit for free. I think it was based on one's condition, not finances, but I don't quite remember. Definitely look into this though, the kit is wonderful!
I just looked at the catalog. I want the cooling bra inserts!
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Old 03-25-2008, 05:19 PM #24
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I just looked at the catalog. I want the cooling bra inserts!
I never heard of this. Do they give band-aids with them? LOL.

This thread came at a great time since it's in the upper 80's today! Thanks!
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Old 03-25-2008, 05:53 PM #25
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My dad used to insist on turning off the air conditioning occasionally during the summer. It was probably about 10 or 15yrs ago that I started to insist that he keep the dang thing on!

Now I kind of understand why I dont like summer as much as I did when I was little. I hate being hot!

When you're cold, you can always put on a sweater or a coat, but when you're hot, there's only so much you can take off before you get arrested for indecent exposure.

Too bad I'm not skinny enough to wear bikini tops and Daisy Duke shorts during the summer. I wouldnt have to worry much about overheating then. (hah! skinny is not the word used to describe me)

I cant afford many of the cooling vests and other stuff that I've seen. I'll probably have to go to WalMart and look at the cooling stuff they have there. I was talking to my dad about getting a cooling vest last night. When I told him how much some of them cost, he said he'd turn the a/c down a bit more and I can just stay inside all summer...it'd cost the same either way.
Hi Erin
I went to the MSAA website as suggested today. If you are single and made under $32k roughly, in 2007you can apply for a cooling vest set and 2 accessories at no cost. You also need an Rx from your doctor verifying you have MS. HTH

I got the application filled out and Rx requested. That is how I spent my day. Plus I was gathering documents for my appointment tomorrow, to see if I can get Medicaid and Food Stamps. Fingers crossed, wish me luck.

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Old 03-25-2008, 09:05 PM #26
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Quote:
Originally Posted by Erin524 View Post
I cant afford many of the cooling vests and other stuff that I've seen. I'll probably have to go to WalMart and look at the cooling stuff they have there. I was talking to my dad about getting a cooling vest last night. When I told him how much some of them cost, he said he'd turn the a/c down a bit more and I can just stay inside all summer...it'd cost the same either way.
That's why a lot of people with MS should contact the MSAA...a lot of the cooling vests and equipment they have is FREE.

Also, I know that our chapter of the NMSS has programs for people who cannot afford cooling equipment. We have a lending closet. Contact you local chapter and see what types of programs they have.
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Old 03-25-2008, 09:12 PM #27
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Hi Erin
I went to the MSAA website as suggested today. If you are single and made under $32k roughly, in 2007you can apply for a cooling vest set and 2 accessories at no cost. You also need an Rx from your doctor verifying you have MS. HTH

I got the application filled out and Rx requested. That is how I spent my day. Plus I was gathering documents for my appointment tomorrow, to see if I can get Medicaid and Food Stamps. Fingers crossed, wish me luck.
I go to my neuro at the end of April (unless I visit him earlier...stupid right foot is so numb that shoes are annoying today) so I think I'll ask him for a Rx for some cool cooling stuff.
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Old 03-26-2008, 12:28 AM #28
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Another thing I did one year for Christmas (it did cost money) was to get an automatic starter for my car. I make sure my ac is on and on high and I start it in the house or right when I am at the door of a store. When I get to the car, it's nice and cool.
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Old 03-26-2008, 01:01 AM #29
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Another thing I did one year for Christmas (it did cost money) was to get an automatic starter for my car. I make sure my ac is on and on high and I start it in the house or right when I am at the door of a store. When I get to the car, it's nice and cool.
I'd love an automatic starter, for when I'm out shopping or at the movies or something and am parked outside. At home, I'm lucky that I get to park in the garage (we used to have 5 cars...my dad downsized us when we moved)

My problem is, that I cant get an automatic starter for my car. It's a stick, and to start it, I have to push the clutch in.

I should get an automatic starter for my dad's car (same model car, different transmission) He just got diagnosed with cardiomyopathy. He could push the button when he gets into the parking garage at work, and have the a/c (or heat) started cooling/heating before he gets in.
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Old 03-26-2008, 06:18 PM #30
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I go to my neuro at the end of April (unless I visit him earlier...stupid right foot is so numb that shoes are annoying today) so I think I'll ask him for a Rx for some cool cooling stuff.
Give him a call. That is what I did with mine. The secretary will mail it to me. I wasn't going to wait for my April appt.

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