Maybe I should have been a little more forth-coming about my non-progression in the Tovaxin trial...but unfortunately, I am not at liberty to discuss the details of the double-blind study that I am in. :p

That information will be released at the upcoming AAN conference. I am one of the 150 study patients that are doing well on this trial drug. ;)

Hello SallyC and Av8rgirl
 

Hello SallyC and Av8rgirl!

I hope you ladies are doing well and still remember me from the MSWorld forums.

I was that physician who never tried any conventional medical therapy and was a sort of nuisance there, because my only goal was to tell everybody that Lipitor works miracles in secondary progressive MS(in my case no neurological symptoms after 3 months on atorvastatin, however still far from perfect memory). Now, I don' even use Lipitor any more. I tried to save the world at that time.

I met Sarah Longlands on MSRC in April 2004 when she tried to spread the news about her success. No one believed her, except for me. I was already symptom-free for over a year. As sick as we were at the beginning of treatment it was difficult to decide which one of us was sicker and more hopeless. In June 2004 I decided to trade my daily 80 mg of statin for antibiotics, after all they are so much more liver friendly.

I have been taking antibiotics for over 3 years. I took them continuously for 13 months and now I take them every couple months for two weeks.

At present time my memory is very close to what it was in my youth. Chronic asthma and sinusitis are gone for the past 3 years, and I hope, forever. I passed my recertification exam in medicine last summer and achieved a very high score. Before the treatment my memory was wiped out and I had severe difficulty with concentration.

Memories of MS seem to be like bad dreams now. Sometimes I almost don't believe it really happened. I had been given a second chance in life.

I came here today by Mark Hall's suggestion. Fortunatelly for me, I don't attend any MS forums any more. I consider myself free of MS. I know it is a blasphemy for most people, but it is true for me.

I wrote about it a few times on MSWorld before, but stopped about two years ago. People who seek alternative ways to treat themselves will find all the information via the Internet. I had a patient for the first time in my office asking for the antibiotics for Chlamydia pneumoniae two months after her MS diagnosis.

Most MS patients feel secure with the therapy they receive from their neurologists. I know how easy it was for me to lose the independence. On the other side, it is hard to accomplish and not to share with others.

If only conventional medicine would bring a cure to all MS patients than we would not have to stay separated by any doubts about our credibility.

Barbara.

I love discussions like this....Knowledge is Power!!!:)

And Thank You Cheryl..Hugs!

Just a heads up - Mark Hall has posted the same thread in other forums here at NT.

I just replied to the same info he posted in the Alzheimer's thread.

Sorry, but I've read all this same information under different names, on different sites, and I don't even live in the same country as you do!! :mad:

I know, it gets old doesn't it :mad:

I have not discounted Dr. Stratton's research. At this point in time, there is no final research. I do believe it was halted. I have read what there is...I have read your website as well as Dr. Weldon's. Suffice it to say if you and the rest of your cohorts read my posts in context, you will see that I am NOT flatly discounting anything on your website. I clearly stated that at this time there is NO KNOWN cause for MS. I do not appreciate being paraphrased or misquoted out of context.

It is unbecoming to belittle others who have chosen a different course of treatment for their particular course of disease. There are many different forms of treatment and if one chooses to take a different road than someone else, that does not make one a dunce. You have no way of knowing what I have been through, or anyone else for that matter. It is really none of your business.

As we all know from experience, each one of us is different and may have medical or personal reasons for choosing the path we have chosen for our particular course of treatment. These are personal choices. It is not up to you or anyone else to question these decisions.

Thanks to medical research, today we have many choices of treatment for MS. Do not make the mistake of thinking that one size fits all.

Cheryl, I am not belittling others.

As I have said previously, I am just pointing people into a different direction of research to look into - you may not agree with it, but is this not supposed to be an open forum where people can post ideas and other research?

As to the post in the Alzheimers forum, i was posting a reference to another doctor who is looking into the links between Alzheimers and CPn. Dr Balin is his name.

Thank you for your warm welcome. I don't know why I even bother. :-(

Mark

I'm sorry Mr.Hall but this reads like one of those 'miracle' cures in the back of a tabloid. JMO
I have a feeling that I'm talking to myself since you haven't posted for a while *wink, wink* :)

Actually Joelle, my understanding (I could be wrong) they do believe the Weldon Protocol eradicates MS as well as many other disorders.

If I remember correctly they use very high doses of 2 (3?) antibiotics for 2 to 5 years possibly longer.