NeuroTalk Support Groups - Some Research Finds Over 70% Of People With MS Have Cpn Infection

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- - Some Research Finds Over 70% Of People With MS Have Cpn Infection (https://www.neurotalk.org/multiple-sclerosis/42420-research-70-people-ms-cpn-infection.html)

Quote:

Originally Posted by Mark Hall (Post 248510)

A) N-acetyl cysteine (NAC) 600mg - 1,200mg twice daily. This is a common supplement that can be bought in any health food shop. It breaks the bonds of the EB spore, causing the extracellular EB form to die of starvation and be swept away by your immune system.
This should be taken continously.

Thank you Mark . . . I just noticed this prior posting.

I guess I am 1/5th of the way there already as I have just recently been able to fully tolerate 900 mg per day of N-acetyle cysteine. This was recommended to me (and rx'd in Canada) by my neurologist last year, for leg strength.

BTW, for those of us who also have UC, NAC at this level can be quite difficult to 'manage' . . . but having severe MS-bowel issues seems to balance out the problem for me, at the moment anyway. :cool:

Still wondering about the test $?, etc.

Cherie

Cherie,

I am sorry, but I do not know how much the PCR tests cost. I reside in the UK anyway.

Thanks,

Mark

Quote:

Originally Posted by Mark Hall (Post 248621)

Cherie,

I am sorry, but I do not know how much the PCR tests cost. I reside in the UK anyway.

Thanks,

Mark

I live in Canada, so I would probably have to pay out of pocket for a test in the US anyway.

Could you find out through your contacts what the cost might be? Or do we even need to be tested before we start on the regime?

I really want to know if this conflicts with our current drugs too . . . if we are going to invest 2 - 5 yrs, that's a long time to go without our preferred drug choice, especially if it doesn't work . . . :eek:

Cherie

proof in the pudding

Quote:

Originally Posted by freeinhou (Post 247675)

Well, that's good news. And here i was thinking that now I got another thing wrong with this body to worry about!

Tom

Well sports fans! the proof is in the pudding!

The only reason there isn't a big money pharmaceutical company willing to fund Drs. Stratton; Dr. Sriram, Wheldon to name a few docs, is the 3 combination abx used to kill the Chlamydia Pneumoniae is long off patent by about 15 years. This coincidentally, is approximately when the pneumoniae bacteria was even discovered! All of these doctors have thousands of patients they have treated which may be a surprise to you all.

I can't imagine wallowing in illness, thinking about what kind of a chair I am going to buy next & only taking the pharma drugs that mask symptoms. There isnt anything else going on in the world that has had success via physical improvements in MRI's! These patients have renowned neurologists helping them & the word is spreading, slowly.

Does anyone remember when doctors thought stomach ulcers were caused by "stress". In fact, a doctor discovered bacteria was more often than not the actual culprit. This doctor was publicly ridiculed by his peers at the time. I believe he actually won a Nobel Peace Prize in the end while he was applauded for his efforts!

Don't waste away to nothingness, there is help....

peace

Sally is a very wise owl...

MS is a death sentence, a slow, painful, horrible decline in health. Until recently, Neuros don't have a clue what the cause could be. It may well be quite a number of things. So do you throw on the most recent pharma pushed big money poison making band aid & or do you take a little look outside of the box.
If it were not for the out of the box thinkers, we would have a very sad little world. There is no harm in trying a treatment protocol that has helped many. Look at all the viruses, treat them, look at all the bacterial infections, including candida mycoplasma, chlamydia pneumoniae, treat them!

The Chlamydia Pneumoniae is a stealth bacteria, make no mistake. It is hard to find & many docs & tests miss it.

You don't know until you find out about it, & hey, it doesn't cost a tonne of money either. So, what are we waiting for! Take control of your life, you can be much better, imho. Be prepared, you might have to educate your doc, get a new doc. But, as my MD says, "what doctor wouldn't want to see their patient get well"?

Good point, don't you think?

Quote:

Originally Posted by SallyC (Post 247727)

I just wanted to add, Cheryl, that I don't think people who come here to tell about their treatments, whether proven effective or not, should be shut out or made to feel unwelcome.

We all are educated enough to know that, what works with one MS patient, does not work for all or even many. For those who have been infected with CPN and have MS, it may be well worth looking into.

I also agree with you, that, scare tactics are unwelcome here and have no place in our caring community. You are right...there is NO cure for MS and No known exact cause, which means our own personal research is also important.

I am an LDN user and believer...Not a cure, but has helped me, without a doubt and has kept my DD in remission for 3 years, so far. She has no physical or mental signs of MS, at all!! I also know people who take Valtrex at the sign of MS symptoms and get great relief from it.

So whether its Herpes 6, CPN, Measels, mumps or whooping cough...it's something....and probably something different for us all. :confused:

Lets keep an open mind.......too many Docs have closed theirs and won't think outside the box.:rolleyes: We have to push to keep them from doing

that.

Stepping down from soap box and backing slowly out of room..

Quote:

Originally Posted by Av8rgirl (Post 247734)

For example, here's a few links to back up my comment about MS not being fatal:

http://www.nationalmssociety.org/about-multiple-sclerosis/FAQs-about-MS/index.aspx#fatal

http://ofcn.org/cyber.serv/hwp/support/ms/MSFAQ.html

http://www.medscape.com/viewarticle/464972

http://www.nwhealth.edu/healthyU/stayHealthy/ms.html

http://www.mscenter.org/content/view/53/1/

http://www.msassociation.org/faq/

http://findarticles.com/p/articles/mi_m0PYD/is_2005_March_16/ai_n17215144

Quote:

Originally Posted by rude (Post 248665)

MS is a death sentence, a slow, painful, horrible decline in health.

Rude, I understand your passion with this treatment. However, here are some links Cheryl provided to validate that ms is not a fatal disease. Posting comments about ms being fatal is not conducive to the purpose of helping others IMHO. We have many new members and those in limbo who would possibly be scared by reading such a post.

It's not fair to them and we should respect how each and every person treats and handles their disease. Scare tactics are not the way to communicate to someone IMHO.

Quote:

Originally Posted by Mark Hall (Post 248568)

Hey, I'm just posting info that people may like to look into, that's all.

Mark

Sorry, Mark, but I was thanking Marcstck, this time.:)

This is the kind of belittling crap that does NOT belong in
a support forum, such as this.:mad:

Please take it elsewhere, we aren't interested.:p

Quote:

Originally Posted by rude (Post 248652)

Well sports fans! the proof is in the pudding!

I can't imagine wallowing in illness, thinking about what kind of a chair I am going to buy next & only taking the pharma drugs that mask symptoms. There isnt anything else going on in the world that has had success via physical improvements in MRI's! These patients have renowned neurologists helping them & the word is spreading, slowly.

Don't waste away to nothingness, there is help....

peace

And this too...keep it out of our forum, please.

Yes, am wiser than you think and I know scare tactics
when I hear them.

Good Lord, shame on you.:mad:

Quote:

Originally Posted by rude (Post 248665)

Quote:

Originally Posted by rude (Post 248665)

MS is a death sentence, a slow, painful, horrible decline in health...

Your name befits your post.
As Sally so politely put it, shame on you. I'd have been much more pithy and direct.