FAQ/Help |
Calendar |
Search |
Today's Posts |
04-09-2008, 06:26 PM | #31 | ||
|
|||
Senior Member
|
Welcome to the neighborhood....glad you found us! Sorry about that cheese head There are so many here that are going through the same stuff as you that I know you'll find comfort here. Hope to see you around
__________________
. Wisdom to the soul is what health is to the body |
||
Reply With Quote |
04-09-2008, 11:48 PM | #32 | |||
|
||||
Member
|
NurseNancy,
Thanks for the welcome. Wow, you been on copaxone for 5 years? I have now given myself a total of 9 shots. That's barely a drop in the bucket. I hope I can continue to rotate the sites well enough to continue. Boy, does it sting really badly. The severe headache and nausea seems to be getting better although I still feel like I am on speed or being infused with caffeine...so strange. I'm hoping that calms down, including the insomnia. Now this is weird though...My MS started with optic neuritis. I seemed to be having a flare of it again a couple of weeks ago (the pain in my eye, the blurry vision). I went on no steroids. Within 3-4 days of taking the Copaxone my vision suddenly got crystal clear and sharp--almost too sharp (if there is such a thing) and better than it has been since this whole thing started, even after the IV steroids!! Could the Copaxone work that quickly? The SS nurse told me that it starts to work right away. Like you said, I heard it takes a few months. Oh, and I signed up for long term disability with my job literally 2 weeks before the MS diagnosis. But they rejected me because of my history of depression. I assumed too that if you have MS you can't get long term disability?? (pre-existing condition type thing?) |
|||
Reply With Quote |
04-09-2008, 11:53 PM | #33 | |||
|
||||
Grand Magnate
|
For 12 years my sweetheart who has SPMS was a religious volunteer at the State Prison. Whenever he would loose his thought or thoughts one of the inmates would say that is was because he has swiss cheese brain...or because he fell into one of the black holes in his brain....welcome....
__________________
My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
|||
Reply With Quote |
04-10-2008, 03:46 PM | #34 | |||
|
||||
Member
|
Hi Natalie and welcome to the group! Sorry that your dr lacked good bedside manners...*sigh*
__________________
. |
|||
Reply With Quote |
04-11-2008, 01:48 AM | #35 | |||
|
||||
Member
|
Natalie, I don't know the disability rules, but I do know someone who was also turned down. She is appealing w/attorney. It seems most get nowhere w/o an attorney. I also know there are time limits. My thought is to reapply under the MS dx. But, don't take my word on this one. We have a very good SS disability board - I would start there. Good Luck
|
|||
Reply With Quote |
Reply |
Thread Tools | |
Display Modes | |
|
|
Similar Threads | ||||
Thread | Forum | |||
newly diagnosed | New Member Introductions | |||
newly diagnosed | Myasthenia Gravis | |||
newly diagnosed with ARC | New Member Introductions | |||
Newly Diagnosed | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Newly diagnosed | New Member Introductions |