advertisement
Reply
 
Thread Tools Display Modes
Old 04-09-2008, 10:30 PM #41
jmiller's Avatar
jmiller jmiller is offline
Member
 
Join Date: Jan 2008
Location: Spring Hill, Florida
Posts: 314
15 yr Member
jmiller jmiller is offline
Member
jmiller's Avatar
 
Join Date: Jan 2008
Location: Spring Hill, Florida
Posts: 314
15 yr Member
Default

I have to say this is an awesome thread, alot of old material and new things that I myself did not know. As far as the HUG goes, I am way out of the norm right now. My symptoms started in September and are very much here now. However my HUG started in the lower abdomen then went to my neck and upper torso, and stayed.

My numbness just subsides a little but is always there. Just had the IV steroids for 3 days and it helped just a little. At least I have a neuro that realizes everyone is different and although where my hug is, is rare, it is possible. Thought for sure he would say its not MS related because he has never seen the hug that high and for so long.

Thanks for the thread TKRIT, and just pleasant HUGS!
jmiller is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (04-10-2008)

advertisement
Old 04-09-2008, 11:33 PM #42
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Two more things that occurred to me about spinal lesion attacks:

7. PwSpinal lesions should avoid spinal manipulations or severe spinal adjustments (rapid twisting or pushing of the spinal column) because they may irritate the spinal cord, increasing neurological problems.

I have disrupted my spinal lesions by simply trying to do the "booty shake" which I combined with upper body movements (my kids didn't think I could do it. I showed them . . . )

8. Attacks include new symptoms (20% of the time) or old one's (80% of the time). Symptoms can occur because of the creation of a new lesion, or an increase in or reinflammation of an old one.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (04-10-2008)
Old 04-10-2008, 12:01 AM #43
suzyqz_2007's Avatar
suzyqz_2007 suzyqz_2007 is offline
Member
 
Join Date: Jan 2008
Location: Houston, Texas
Posts: 643
15 yr Member
suzyqz_2007 suzyqz_2007 is offline
Member
suzyqz_2007's Avatar
 
Join Date: Jan 2008
Location: Houston, Texas
Posts: 643
15 yr Member
Default

Quote:
Originally Posted by KarenMarie View Post
I wonder if the feeling I get has anything to do with the hug - it feels like all my insides are swelling up and putting unbearable pressure on the inside of my ribs - first noticed it when I was on ACTH - it felt like I was ready to pop and that my brain was swelling too - sort of like too much MSG - then I get a horrendous pain right at the base of my esophagus and feel like I need to burp but can't - have gone so far as to make myself throw up to relieve the pressure - it doesn't but none of my food is digested either - can't move in any direction that relieves it - and it takes a day or two to finally go away but I'm sore afterwards like someone had kicked me in the chest - never connected any of it to MS

I've had problems with acid reflux in the past and sometimes I feel great pressure like you described, I feel I need to burp or throw up to relieve it. Sometimes it works for me to stretch my arms as far up in the air as possible. (sometimes...not always)

A few years ago I had sudden pain in my chest, felt like my head was gonna explode, and just plain felt weird. My mom took one look at me and freaked! She said I was pale as a ghost and thought I was having a heart attack so she took me to the ER. When I got there everything pointed to a heart attack and they gave me nitro. After several hours in the ER they transferred me to a different hospital to the heart unit.

After the tried to kill me on the treadmill and countless tests the dr. finally figured it out. My heart is fine.......I was having spasms of the esophagus creating heart attack like symptoms.

This was before being dxd with MS btw.......

I hope you get to feeling better and can figure out what's going on....I know it's awful to get like that.

__________________

.


Dx'd RRMS July 2007


suzyqz_2007 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KarenMarie (04-10-2008), tkrik (04-10-2008)
Old 04-10-2008, 12:11 AM #44
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by suzyqz_2007 View Post
I've had problems with acid reflux in the past and sometimes I feel great pressure like you described . . .

Me too, and have had various dx; acid reflux/GERD and infection in "the wall of my heart".

Karen, I would try nexium the next time that happens, just to rule that out (if nothing else). GERD is actually quite common with MS.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KarenMarie (04-10-2008), tkrik (04-10-2008)
Old 04-10-2008, 12:19 AM #45
suzyqz_2007's Avatar
suzyqz_2007 suzyqz_2007 is offline
Member
 
Join Date: Jan 2008
Location: Houston, Texas
Posts: 643
15 yr Member
suzyqz_2007 suzyqz_2007 is offline
Member
suzyqz_2007's Avatar
 
Join Date: Jan 2008
Location: Houston, Texas
Posts: 643
15 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
Me too, and have had various dx; acid reflux/GERD and infection in "the wall of my heart".

Karen, I would try nexium the next time that happens, just to rule that out (if nothing else). GERD is actually quite common with MS.

Cherie

It's weird because both my brother and I have problems with it...my dad did also, he would have to go and have his esophagus stretched and repaired. Wonder if it's heriditery (sp.)?
__________________

.


Dx'd RRMS July 2007


suzyqz_2007 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KarenMarie (04-10-2008), tkrik (04-10-2008)
Old 04-10-2008, 12:21 AM #46
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

jmiller - I have had the banding in my left leg as well as around the waist. I wouldn't say you are out of the norm as there is nothing normal about MS. It is so individualized. Glad you like the thread.

Flare Bro - Doing pretty good. For the 1st time in 2 weeks now I got a good nap in. That's a good sign as the pain is easing up.

Lady - Thank you for all of your input on what you have experienced and learned.

Suzy - DD17 has GERD and had similar symptoms. Poor girl. Tell me, what 17 year old wants to go on a bland diet without French fries and other greasy foods AND chocolate. She was not happy with that. LOL. She was in a lot of pain though and like you went all pale on me.
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
weegot5kiz (04-10-2008)
Old 04-10-2008, 07:58 AM #47
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default

I also have gerd. Several years ago (pre ms) I was dianosed with 3 ulcers. Took prilosec for several years. Since having steriod treatment last spring, I am on nexium.
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (04-10-2008)
Old 04-10-2008, 12:10 PM #48
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

Barb, 3 ulcers! You poor thing. I am glad they are healed and things are under better control. DD17 found that Prevacid worked the best for her and her GERD.
tkrik is offline   Reply With QuoteReply With Quote
Old 04-10-2008, 02:12 PM #49
the Bird's Avatar
the Bird the Bird is offline
Senior Member
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
the Bird the Bird is offline
Senior Member
the Bird's Avatar
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
Default

This thread as turned another leaf....I have had acid reflux problems in the past too....hmmmmmm.
the Bird is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KarenMarie (04-10-2008), tkrik (04-10-2008)
Old 04-10-2008, 02:52 PM #50
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

yes the thread has turned again and I was reading some of your latest post KM my wife has described her acid flux a lot like you explained your pain, I dont get acid reflux, so can not totally understand how it feels,

I know she says its also a burn sensation some times too I just wonder if any of this is caused by meds? I know I was curious about if it was the steroids and or my other meds combined and or again as I was learning the MS hug making me feel nausea, so needless to same I am still confused big surprise huh
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
KarenMarie (04-10-2008), tkrik (04-10-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Whine about School sugarboo The Stumble Inn 24 02-26-2008 12:19 AM
Small thread to say ... aftermathman Parkinson's Disease 1 12-24-2007 04:56 AM
Small Fiber PN Alkymst Peripheral Neuropathy 1 06-15-2007 07:14 PM
I just need to whine Mrs. Bear Bipolar Disorder 5 06-02-2007 11:54 AM
small steps .gov bizi Bipolar Disorder 1 10-28-2006 09:17 AM


All times are GMT -5. The time now is 02:30 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.