yeah cherie that was kind of weird Barb explained it so well, I was trying about 3 weeks ago to explain it to the doc, I didnt know that is the MS HUG now I do , I always just say tightness in the chest and difficult breathing,

thats what made me think of it too, I used the phrase to the neuro draw a line from here to here on front and back of my body,

If I could ask you something cherie, i mentioned it around 4 am this morning on here and dont remember where there's a big surprise.

The period inbetween flares, relapse's whatever term you want to use, is there any terminology for the false sense of security between flares, I would like to read any info about it from a pysch aspect.

I will try to explain this, so here goes, its almost like I forgot some of my SX? does that make sense or am i just blocking it out, sort of like a false security like oh good flare up is gone so is MS. this has just been such a weird flare, every time my flares have always been on left side, and this time its all backwards, its all on right side, I pretty much have myself convinced from a mental standpoint I am so off guard this time because I have put the MS far enough back in my mind and dealt with other issues and centered on those instead, but not sure I am that bright

would be interested in reading about this, it has to be a common thread to MS that false sense of oh good its finally gone. sorry to babble

Flare Sis you hang in there too, first one out of it, gets to drive the little red corvette

Thanks for the great explanation, Cherie

AND, T~~ feel better soon, OK>

Frank - I have that false sense a lot. I also think we forget about the pain. Like my last flare, I had TN but I can't remember the pain and facial spasms. When I get it again, I'll remember. Again, like childbirth. We forget the pain. I think if we didn't we would have less children.

Is your hug (sometimes or always) accompanied by numbness/skin sensations too? I used to describe the sensations as like having a 6 or 8 inch elastic belt or band, stretched to the max, wrapped around my middle, and released so that it is squeezing my skin (and everything else).

Honestly, this isn't that common, but your neuro should recognize what it is.


I think we have to, as a coping mechanism, Frank. Quite honestly, if I thought I would have to live forever with the "extremes" I've gone through, I wouldn't want to.

I don't know if they have a name for it, but I am very thankful it isn't "all on" all the time. When it's not, and even though I never go back to "normal" any more, I appreciate every day to the fullest.

Cherie

"should" being the operative word there, Cherie!

in 1992, I had my first date with the MS Hug.

it was JUST like you described, a wide BELT around my waist, tight, and squeezing me.

except... it was only 2 inches wide, not 6 to 8.

my neuro said it was Guillian Barre, and was prepared to immediately admit me to the hospital, as he said it (the squeezing) could RISE to my chest, and make me unable to breathe, and I'd have to be put on a ventilator, ASAP, or I could DIE...

http://www.emedicinehealth.com/guill...ome%20Symptoms

he had me FREAKED out, totally!

so, I was actually RELIEVED to get a second opinion, and the MS Dx.

I have been getting "acid reflux" at the drop of a hat lately, and always keep a bottle of TUMS on the nightstand, for when it wakes me up with burpy burning.

Kay - I am so relieved for you. How scary! Especially with little ones at home.

My "band" starts at 2 or so inches and then as it comes towards the front of my ribcage it widens.

Funny how some of us are actually relieved by the diagnosis of MS. They thought I had a nerve tumor. Then I was diagnosed with MS a few months later. Was I relieved, yes.

weird, as deb and I sat for two days in hospital waiting for mri results, 2 separate mri results that should take no more than 2-3 hrs and now going on 2 days, we began to fret about brain tumors or cancer and other horrid inoperable things and thoughts, and as stupid as it sounds, yes after all those fears running the gamut for two days, ms was the lesser of those other evils, although in long run had i in fact been crazy i could be out on street well medicated and on my way but then tat is not always a given either so what i got is what i got and what i Will deal with is what i will deal with