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-   -   PN a form of MS??? (https://www.neurotalk.org/multiple-sclerosis/43156-pn-form-ms.html)

lady_express_44 04-09-2008 10:03 AM

Quote:

Originally Posted by Debbie D (Post 254904)
Confused here...

So does that mean that PN is not a sx of MS?

I thought that the nerves can be screwed up enough to cause that type of pain...just as they can cause muscle spasms, fasciculations, etc.

Please clarify for me...my brain is seeing question marks dancing in the air:confused:

Quote:

Originally Posted by lady_express_44 (Post 254747)
I think the confusion (not his . . . but in just differentiating sometimes) is because our peripheral nerves are often ultimately affected with MS. That's as a result to the damage in the CNS though . . . different kettle of fish.

Cherie


Yes, PwMS often suffer from peripheral nerve damage too, Debbie . . . but it is caused by a process that is going on from within our central nervous system (MS lesions).

PN can be a stand alone condition, or as a result of various other conditions:

http://www.ninds.nih.gov/disorders/p...neuropathy.htm

Cherie

tovaxin_lab_rat 04-09-2008 10:11 AM

Quote:

Originally Posted by Debbie D (Post 254904)
Confused here...

So does that mean that PN is not a sx of MS?

I thought that the nerves can be screwed up enough to cause that type of pain...just as they can cause muscle spasms, fasciculations, etc.

Please clarify for me...my brain is seeing question marks dancing in the air:confused:

Neuropathy is...but Peripheral Neuropathy is something completely different and is NOT MS. That's my point. You bet you can have neuropathy. I have it...and I think probably most people with MS have some sort of neuropathy. But...

if you got to the PN forum and read about PN, you will get a much clearer definition about PN. It's a disorder that affects the all the nerves except those of the brain and the spinal cord. "periphery" those on the outside...it's interesting reading.

From WebMD

Quote:

What Is Peripheral Neuropathy?

The name of the condition tells you a bit about what it is:
Peripheral: Beyond (in this case, beyond the brain and the spinal cord.)
Neuro-: Related to the nerves
-pathy: Disease
Put these concepts together and this is what peripheral neuropathy means: It refers to the conditions that result when nerves that connect to the brain and spinal cord from the rest of the body are damaged or diseased.
The article goes on the describe the different types of PN, for carpal tunnel to Guillan Barre, Charcot-Marie-Tooth, to symptoms associated with HIV, Herpes Simplex, and Diabetes.

Quote:

One example of an acquired peripheral neuropathy is trigeminal neuralgia (also known as tic douloureux), in which damage to the trigeminal nerve (the large nerve of the head and face) causes episodic attacks of excruciating, lightning-like pain on one side of the face.
Please don't think I am discounting what she may or may not have. What I question is HIS comments that PN is a form of MS. It is not. :mad:

lady_express_44 04-09-2008 10:35 AM

The brain and spinal cord (CNS) are the "orchestrators", and our PN nerves are part of the "band". In PwMS, our "orchestrator" is messed up (lesions), so the band just does not play the song properly.

Sometimes though, just part of the band (PN) doesn't cooperate, even with a good orchestrator (CNS).

Here's a good link on the different nervous system:

http://webschoolsolutions.com/patts/systems/nervous.htm

Cherie

SandyC 04-09-2008 10:44 AM

Cheryl, have a good day and don't let others bother you. Your momma is #1 and that is what should be focused on. Family can be such a pain that you want to wring their neck. Save that for when Mom isn't looking! lol

Honestly, at this point let him chatter. It isn't worth the stress or aggravation. Some people just think they know it all and you can't change that. You've been through enough. Hugs to you and your family.

tkrik 04-09-2008 12:24 PM

I want to go to lunch with you! LOL. Sandy is right, maybe try to keep the focus on Mom where it belongs right now. Should he try to change the subject, redirect the conversation to Mom, family, and lighthearted things.

It would be a great time to take a trip down memory lane. It is fun to get our parents take on things now that we are older.

Good luck today!

DM 04-09-2008 01:41 PM

Good for you, FG!!! Don't let anyone shift the focus from what's BEST for your Mom to anything else. You just keep your level head and don't forget to let us know how Mom is doing.

Sending hugs to you, my friend! :hug::hug::hug::hug:

SallyC 04-09-2008 02:00 PM

Yes PN is not a form of MS, although MS may cause PN.

I know someone with both PN, MS and Diabetis and they are all
separate illnesses and yet intermingle, somehow.

Maybe her Doc is thinking possible MS, but DXed her with PN??

Take care with your mommy, Cheryl.:hug:

ewizabeth 04-09-2008 02:37 PM

Cheryl,

It sounds like he has his terms all mixed up. He probably caught little scraps of information that the Mayo-trained neuro said and translated it in his own way. :D The neuro probably used MS and PN in the same conversation... :rolleyes:

I'm glad you set him straight. I've been thinking about you, hoping you're managing ok while visiting your dear Mom. Take care of yourself and tune the bothersome relatives out if you can. :hug:

Riverwild 04-09-2008 05:18 PM

Flygirlie!

Get the paper and whack him with it.:D Whack her too while you're at it!

I am sorry to hear that you had to come out of the closet. Did you come all the way out or just stick out your neck? :p

Having to deal with a parent's illness is ALWAYS a stressful thing, from beginning to end, and you don't need this carp on top of what you are dealing with.

I'm holding you in my prayers, along with Mom. Please try not to stress out too much ( I know that will be hard!) and do the job you planned to do while you are there.

I'm here if you need to talk, yell, blow off steam, etc. I am off until Sun. night, so call if you want! :hug:

SurvivingMSwithHOPE 04-09-2008 05:33 PM

Quote:

Originally Posted by Av8rgirl (Post 254906)
LOL! Want to have lunch with me today????

:hug:

Well, darn, I missed lunch! Let us know how it went!! Hopefully not too stressful. Prayers for you and your Mom!:hug:


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