Hi Tante! I think it's a great idea for you to check back in with an ENT and audiologist and see if a cochlear implant or something else might help you.

I agree totally--thanks to Bird for starting this interesting thread!

Tante--please tell me about your "trigeminal neuropathy"? (Or maybe you did and I missed it...) I'm curious because I'm sure my trigeminal nerves are slightly whacked (0.000009 percent whacked). I've had funny, bilateral shocky and paresthesia sensations--and originally some excruciating painful jolts--on both sides of my face that follow the lines of the trigeminal nerve I've seen in diagrams (I saw, and immediately recognized, the diagrams AFTER having had the symptoms for weeks or months). But mainly now they're very minor and don't bother me.

Wonder if this is some sort of multiple cranial nerve problem? In fact the neurologist referred (in his notes--not to me, oh heavens, NOT TO ME) to my bad ABR as indicating "cranial neuropathy."

BAHA won't be too soon--my consult isn't until May 22. I'm sure the surgery will be even farther out. But I've been waiting 9 years, so I am happy to wait a bit longer!!

Nancy T.