So sorry for your pain, Snoopy. I'm glad to hear your PCP has a heart and decided to help you with your pain issues.. I dropped my Neuro and only see my PCP now.

I hope you and your Doc can find something just for you. Have you tried that non-narcotic pain patch, I've been hearing about?

No, I haven't tried it and not familiar with it. I guess this is just one more reason to see my old neuro

Holly just mentioned the name of it...Flector!!

Did you read any of Braingonebad's posts about the pain clinic and the drugs they have her on? She is, finally, having some relief. One is a patch and the other is a pill. Flector is one name and Robaxim is the other.

Here is one of the threads:

http://neurotalk.psychcentral.com/thread41989.html

IMHO, you need a pain clinic. As you can see from Cathy's experience, there can be other solutions that are non-narcotic. I saw a post of her's the other day that said she could actually work i her garden without the horrible pain.

Your PCP is right that pain is a quality of life issue. You deserve to have it aggressively treated.

Sorry to hear your pain is still an issue! I'm not painfree by any means but Elavil at night helps me. It is one of the old style antidepressants.

Night is my worst time for pain...I'd say from about 7 until I finally break down and take my night time cocktail of pills...Neurontin, Requip and Elavil. It takes the edge off and helps me sleep. I have Vicodin but it does nothing for my nerve pain. Nada!

Take care friend and I hope you and your PCP get it figured out for you.

Holly, thanks for the link to Cathys thread, I missed it

Brenda, sorry your dealing with so much pain

This is considered sensory - it's the same stuff that started after the UTI - pain and pressure in the pelvic area, pain of the urethra and external burning.

My current neuro has called me med sensitive. After all these years this is the first time I have needed a med long term and I can't seem to find one that works well or where the side affects don't bother me.

Aww Snoop
I'm sorry you've got so much pain and so little relief. I too have mostly sensory stuff and am med sensitive too. Klonopin is great for anxiety, I've tried some, but don't have a script now.

I've found a bit of relief from the most annoying tinglies in my extremities and upper left ear, from my anti-siezure med (trileptal). I get no relief for the burning/freezing and pressure stuff though.

I found that out last week when I had run out when filling the pill box for the week. When I got the refill, I'd forgotten that I needed to finish filling the pill box. After two days I thought I was relapsing.

When I went to fill my pill box on the last day for the next week, I realized what was missing and quickly popped 2 tabs, then and 2 at bedtime. The next morning tinglies had become more tolerable and I now don't mind taking the med because I do get a bit of relief.

It doesn't take them away entirely, I need to call and see how high I can go. Wellbutrin was the only one that gave my hands any real help. I had a horrible siezure and dislocated my shoulder during it in 2002. Now that I've had a 2nd siezure it is for sure off my list.

A pain doc sounds like an excellent plan. I saw one in Denver last year and he is the one that suggested Namenda (alzheimer med) because he's has some success with his MS patients. If you PM me, I can get you his name and number. I'll be starting Namenda on Sunday, my neuro agreed this week.

Good luck with your old neuro. It will be good to find out what he has to say. Be sure and let us know.

Sorry Snoopy for your pain. I wish there was something that would help you that YOU would be Ok with. I respect your decision to not go narcotic. All I wish is that you find some relief and fast. Hugs.

I would've mentioned that Flector myself but Sally and Holly beat me to it. See? I'm feeling better and out here busy now.



And Snoopy, you've known me long enough to know how many meds I've tried and not been able to say that, huh? lol


It is true that pain wears you out. I have a lot more energy now. I still have fatigue, but it's nothing like it was when the pain was so bad.

I hope your doc does something to help you, Snoopy.

Have you tried ultram? It is non-narcotic (although have started some that are highly addictive personalities on their path to addiction - I am an addiction nurse and only saw it one time). I take one half in the am to help with my RLS and the thigh pain that I have had since my last relapse.

It works REALLY WELL!!!! My friend with ms (who is in a wc) was on vicodin/lortab, and switched to ultram, likes it better, and says it works better.

It also works in an anti anxiety/depressant way which is an added benefit to us.

My neuro started me on neurontin for my rls, 300 x 3 a day. I am only taking one at night, and it is working well so far, so I plan on sticking with one. I also take 0.5 klonipin at night for my rls.

Ask about the ultram. It is really good stuff, not controlled, and non-narcotic. I have a high tolerance to pain meds. Darvocet doesn't touch me, vicoden barely does it, percocets do me in.

Also, it doesn't make me sleepy. Matter of fact, I can't sleep when I take it. I can relax really well, but just can't get to sleep, so I generally don't take it after 4 pm.

Good luck