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Does anyone NOT use steroids with any flare ups?

 
 
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Old 04-12-2008, 07:16 PM #8
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Originally Posted by SurvivingMSwithHOPE View Post
I can't take steroids. My skin, especially my face turns beat red and I feel like I have a horrible sunburn and then in some places I peel. On steroids I am known as the "screaming red meanie". So, definately a no no for me.

I just do what I can do get over the exacerbations. The last time my ears were really affected, like a roaring ocean, was terrible. I let my PCP give me a shot of Predisone in the rear. Wasn't enough to really effect me bad and it helped GREATLY!
Hey Marcia

I get the red "moon" face too. I don't get the screaming meemies, I just sleep all the time. I have the opposite reaction that most people do. I am so lethargic that they really keep an eye on me, BP is low, etc. I have had thrush twice, and I get a horrible "steroid" headache, upset stomach, and the rash. I don't like them, but it's the only way I get out of an exacerbation.

Luckily, my exacerbation rate has slowed down in the past 2 years! Yeah!
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Dx: MS 2001 CRPS 2009
“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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