WOW what a great analogy "IT"

I do understand not having a Name to the thing that buggs you and interupts you from "moving ON.

For me, I HAD a MS DX, mild or benign, then taken away by his PA and another neuro, due to another kind of problem NOT related to MS, yet neurological.

Finally, I get to see my MS neuro again and he and another neuro together say I now have Fibromyalgia becuase of my newest symptom is Muscle PAIN...and still yet another neuro conditon with NO Name. Sends me to yet another Neuro to check it out further.

See 2 Rheumatologist and they say NO, its not fibro and still they do their best to come up with a possibility and their lab tests say no. Hmmm..

BUT..the MS neuro did add, "I never rule MS out"
And as a result will continue to monitor my complex case.

GREAT analogy tho... feel my support ok hon?

Warmly, Jan

THANK YOU JAN! I appreicate the encouragment, heaven knows i need it right now. I hope you get your answers too, I KNOW what you are going through! Hang in there and we will get through this thing together. I am feeling a bit better than I have in days past b/c I am starting to be more at peace with myself but still wish that IT had a name!

Dear Bobcat
I can so relate to what you have conveyed in your analogy!

we went thru no dx and misdx ups and downs for my son with both his Tourette Syndrome and Crohn's Disease. It was a scary time of uncertainty & confusion.
As sad and challenging as it was to finally get accurate dx, yet it also brought a sense of releif as we knew what IT was and could work to try to make his life as good as possible, even with IT

I hope you do get clarity in what your sx mean, tho more than anything I hope they will diminish or just go away

lifting a prayer for you
Cheri

Good post: I find the only way I could ignore the persuit is to not have symptoms. If it's there, it will come back again and I'll be all over it. Since I've recovered, I am getting on with life. Whether it ever comes back or not only time will tell. I hope you get your answers, but don't be crushed if its not ready to show itself. Its very common around here. Best to you!!

Dear Bobcat

I can certainly understand your frustration. Good analogy.

I think the not knowing is the hardest part. Knowing that there is something wrong and being told that it's "all in your head" is cruel sometimes. Having the support of your friends and family when you need it is critical. Not everyone understands that. I truly hope you get the answers you need and the support you most certainly deserve.