Quote:
Originally Posted by RedPenguins
I want PBP - Pretty Brain Pattern. I say that we start a campaign on that immediately....with all our spare energy. LOL 
No, you didn't create more anxiety in me...I was having it already. I'm researching alternatives in case Ty doesn't work for me (but it will!!) - b/c I think knowing the information helps me when I have a panic-relapse!  This way when I begin to think "What if the Ty doesn't work" - then I can answer myself with, "Okay, I will do XXYYYYZZZ then."
My first Tysabri infusion was great - no complaints...was very easy (uh, yeah, I mean the infusion part - not the "getting to the infusion" part...but I think you read about that part!). I had some major fatigue afterwards and just felt like crud for a few days... but no other side effects directly related to the Tysabri (just the MS).
I'm not frightened of the Tysabri...the MS scares me more...so it was more than worth it to me to get on it. I agree that we can't rely on other people's disease experience...b/c we are all different...but it seems that with Ty, if it works for you, it REALLY works for you...and if it doesn't work, then it doesn't! The possible benefits of Ty far outweighed the risk. I think the problems with Ty have been over-sensationalized....but to be honest, I'd rather know of the possibilities....I just didn't let them scare me. Besides, the interferons scare me way more than the Ty. I go for my 2nd infusion at on May 2. I'm all prepared: ativan in one hand, benadryl in the other. Oh, and I guess I need some extra hands to carry my blankey!
BTW, I like small dogs...I just got a yorkie puppy for Xmas (sadly, she now lives with my best friend and her toddler....b/c I couldn't take care of her).
~Keri
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I like Pretty Brain Pattern too. PBP sounds so much better than MS.
I am confident the Ty will work for you!!
I feel better too when I have information at hand. But one thing I have learned with this diagnosis (which seems unlike anything else) is that there is a fine line between researching info that makes you feel more control of the situation and researching info that causes extreme panic. I have learned that there is a tipping point where I just need to stop - I'm just not always good at realizing when that tipping point is or maybe I just ignore it to torture myself. Sorry you had to give up your Yorkie puppy!
04-21-2008, 05:13 PM
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