But Erin, like I said earlier:



After all these years on the forums, I can only list off a handful of people that have had spinal lesion attacks like the ones I've had; THEY ARE THAT UNCOMMON! And, even though I've had them . . . here I am 17yrs later and still walking.

Some people are exceptionally curious about sourcing this information, and they ask the hard questions (about T1 vs. T2 vs. spinal vs. brainstem lesions, etc.) Other people find it frightening, but still want to know. Then there are those that find it stressful to know. I struggle with what to say to satisfy the questions, and of course it is only my interpretation of the way things are too (to be taken with a grain of salt). . .

The thing to keep in mind though is that there are no absolutes with this disease. We all know this isn't a great disease to have (without being subject to the nitty gritty details), but it is one disease where they are very motivated to find the answers too. As my doctor said a few months ago, there couldn't be a better time to have it then right now, with all the new technology and treatments on the horizon. There was nothing to help us back in 1991 (when I was dx), and we've come a long way since then . . .

Don't worry about something you can do nothing about, especially if it's never caused you any significant problem in the past. There are a few people who have bigger challenges, or perhaps somewhat worse odds then the majority, but these complications are highly unlikely. It's the same with anything in life; bad things happen to a few people. . . but we can't let that fear rule OUR lives.

Cherie