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Old 03-19-2008, 05:35 PM #1
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Smile ...19th Tysabri infusion report

Thank you everyone. I just finished my 19th Tysabri infusion and everything went fine. Even had my blood drawn afterwards to check my liver function enzymes which I have done every six months pursuant to my neurologist's instructions. I even have a six-month follow-up appointment with my neurologist tomorrow.

One of the infusion nurses at my infusion site mentioned to me that her sister is being tested for MS, and so far, it's looking like she's going to receive a confirmed diagnosis of MS very soon. She asked me many questions about Tysabri, and I gave her whatever information I had, as well as my opinions about Tysabri, and suggested that her sister discuss Tysabri with her neurologist.

It is dinnertime here, and I'm getting ready to have my regular treats: pizza and mudslides, then I'm off to bed after I do my physical therapy exercises. Life is good...,

Hope everyone is well, and stays well.

All my best, Lauren

PS: Victoria, I post on many different MS sites/forums, not just one other.

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Riverwild (03-19-2008), SallyC (03-19-2008)
Old 03-19-2008, 06:06 PM #2
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Quote:
Originally Posted by msladyinca View Post
Thank you everyone. I just finished my 19th Tysabri infusion and everything went fine. Even had my blood drawn afterwards to check my liver function enzymes which I have done every six months pursuant to my neurologist's instructions. I even have a six-month follow-up appointment with my neurologist tomorrow.

One of the infusion nurses at my infusion site mentioned to me that her sister is being tested for MS, and so far, it's looking like she's going to receive a confirmed diagnosis of MS very soon. She asked me many questions about Tysabri, and I gave her whatever information I had, as well as my opinions about Tysabri, and suggested that her sister discuss Tysabri with her neurologist.

It is dinnertime here, and I'm getting ready to have my regular treats: pizza and mudslides, then I'm off to bed after I do my physical therapy exercises. Life is good...,

Hope everyone is well, and stays well.

All my best, Lauren

PS: Victoria, I post on many different MS sites/forums, not just one other.
Hi Lauren!

Glad to hear # 19 went just fine! Have a mudslide on me and come on up to the Tysabri thread here under stickies and add your information! People need to hear it all!

Nancy
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Old 03-19-2008, 07:50 PM #3
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Hi Lauren, I'm so glad everything went well for you today. I knew it would! Mine went great yest with really no sides to speak of. Having a few problems, but thank God they started before the infusion so noone can blame TY. I love this drug. Thank You for everything ~Sheena~
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Old 04-01-2008, 08:14 PM #4
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Woowzaaaa!!!!!

I just read all of this Old Tysabri Stuff - Whatever works let's rejoice

I just had #19 yesterday and cannot say enough Good Stuff about Tysabri For Me and my MeSs - Again - For Me!!!!!

It has brought to me a New Life - A long time ago I had 1 infusion Feb 15 05 & I think it was the next day it was pulled from the market. At that point I had just turned 47 & had a whole life ahead of me. I had a New relationship & I was trying to live life as well as I could with a crap disease. I was and still not as disabled as some but I want My Life to be My Choice. I am still Not afraid of PML or whatever my come my way. I have had a wonderful Love Life that I would have missed out on had I not chose to take a risk on Ty
MeSs is just a part of my Life these Days. It is Not who I am but it is a part of me - You all can argue all day long while I am out traveling, enjoying life, Having Great Sex and doing All of the Things that I would have missed out on if I was still shooting Avenox & hoping for the best.
I recently had a 3 tesla MRI of brain & spine and I have No New Lesions and everything Looks Great

I belong to a wonderful Ladies group. We have Lunch every other month. I also belong to a beading club. I play Bunco once a month and I'm going to 7 Feathers Casino next week. I went to a wine dinner a few weeks ago & had a Blast. I take cooking classes although I still hate to cook. My Honey is taking me to Santa Rosa for Vacation in May. We are going Salt Lake City in June. Just went back to the Bay Area to visit my son in Feb. I hosted Christmas at my home and enjoyed the Holidays with my Lovely Family.
There are more plans but not enough time to list all.......Sometimes I am too busy to do it all But the fact is that I am doing this stuff that 2 years ago were just good ideas but not really a reality in my Life.

I have a Life these Days that I was missing out on 2 years ago. Thanks to Tysabri I can enjoy these days...........Oh Yah - We have tickets to several concerts for this summer!!! I get front row seats since I am disabled. One of the perks - Parking and front row seats - Yipeeee for me!!!

I'm not saying Everyone should change their meds - Not at all - It's about having a CHOICE - My Choice!!!!!

Life is So Good these Days..........
Best Wishes to All
DD~
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