advertisement
Reply
 
Thread Tools Display Modes
Old 04-22-2008, 01:08 PM #11
EthanNDomsMom's Avatar
EthanNDomsMom EthanNDomsMom is offline
Junior Member
 
Join Date: Jan 2008
Location: outside Detroit, MI
Posts: 22
15 yr Member
EthanNDomsMom EthanNDomsMom is offline
Junior Member
EthanNDomsMom's Avatar
 
Join Date: Jan 2008
Location: outside Detroit, MI
Posts: 22
15 yr Member
Default

I'm so glad I followed my MSW buddies over this way! Big hugs right back at ya Moose! You guys really know how to make a girl feel better.

The baby loves to ride on the scooter and push the buttons, especially the horn. LOL!
I think I'm just letting this MS bs get to me a little too much. I'm wondering lately if what I thought was a flare after the baby was born really wasn't, and this is my after baby flare. I can't wait for warmer, dryer weather so I can sit outside with the baby and let him play in the grass!

It's not helping that I've gained weight since the baby was born, but I'm trying Slim-fast since I can't really exercise too much, and so far, so good. And Cherie, you're right, scooter, stretch, walk... it's what I try to do. I generally walk when I'm doing something in a small space (the kitchen) and I try to keep up with some chores around the house. It makes me feel like a little less of a loser.

Thanks you guys!!
__________________
aka JennSanders!
Mommy of 2 boys.

Abnormal hockey freak girlie. Go Wings!!
EthanNDomsMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (04-22-2008)

advertisement
Old 04-22-2008, 01:23 PM #12
beautytransforming's Avatar
beautytransforming beautytransforming is offline
Member
 
Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
beautytransforming beautytransforming is offline
Member
beautytransforming's Avatar
 
Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
Default

Quote:
Originally Posted by EthanNDomsMom View Post
It makes me feel like a little less of a loser.

Thanks you guys!!
Oh honey, you are NOT a loser!!! I was glad in that respect to get the dx, cause I thought I was just dumb and lazy most of the time. I never had energy to do anything. I used to apologize to DH cause I was a bad housekeeper... I'd tell him I was having a bad day, but could never explain it. How many 32 year olds use "bad day" to explain 5 of 7 days a week... I thought I was just the laziest person on the earth. Now I feel a bit vindicated...

Don't ever think of yourself that way. Do what you have to do to keep you healthy, and do the important things. Dishes can wait a day or so before they stink...LOL

__________________
Diagnosed with MS 4/3/2008
.

Had onset attack in 4/2000
.

Can stop blaming myself for symptoms now.
.


Visit me on
.
.
beautytransforming is offline   Reply With QuoteReply With Quote
Old 04-22-2008, 01:25 PM #13
MooseasaurusRex's Avatar
MooseasaurusRex MooseasaurusRex is offline
Member
 
Join Date: Jan 2008
Location: Standing right beside you. (Elizabethtown,NC)
Posts: 855
15 yr Member
MooseasaurusRex MooseasaurusRex is offline
Member
MooseasaurusRex's Avatar
 
Join Date: Jan 2008
Location: Standing right beside you. (Elizabethtown,NC)
Posts: 855
15 yr Member
Default

Quote:
Originally Posted by beautytransforming View Post
HIJACK!!!

Hey, I never got one either It sounds great!! Can I have one.

In the meantime, I'll give you one of my little, not so tight hugs...


Connie
OK, beautiful. Hang on. Here comes...

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

You are not alone.
You are one of us.
And we are here to help.
__________________
You can't have everything. Where would you put it? -Steven Wright
Once you change your mind, you can change your life. -Della Reese

.
Always outnumbered...
Never outgunned
.

*I* am the MonSter that MS fears
MooseasaurusRex is offline   Reply With QuoteReply With Quote
Old 04-22-2008, 01:28 PM #14
beautytransforming's Avatar
beautytransforming beautytransforming is offline
Member
 
Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
beautytransforming beautytransforming is offline
Member
beautytransforming's Avatar
 
Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
Default

Aww, thanks!!! I feel officially welcomed now!!! I agree, this place IS great!!! Lots of GREAT people here!!! So glad I am a part of it...

Quote:
Originally Posted by MooseasaurusRex View Post
OK, beautiful. Hang on. Here comes...

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

You are not alone.
You are one of us.
And we are here to help.
__________________
Diagnosed with MS 4/3/2008
.

Had onset attack in 4/2000
.

Can stop blaming myself for symptoms now.
.


Visit me on
.
.
beautytransforming is offline   Reply With QuoteReply With Quote
Old 04-22-2008, 02:36 PM #15
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by EthanNDomsMom View Post
It makes me feel like a little less of a loser.

Jenn

You've GOT to get out of that mindset.....you are NOT a loser. None of us are. Just because we have MS and have to do things differently doesn't change who we are inside.

Do you perceive others who use mobility aids as losers?
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AfterMyNap (04-22-2008), SallyC (04-22-2008)
Old 04-22-2008, 09:24 PM #16
EthanNDomsMom's Avatar
EthanNDomsMom EthanNDomsMom is offline
Junior Member
 
Join Date: Jan 2008
Location: outside Detroit, MI
Posts: 22
15 yr Member
EthanNDomsMom EthanNDomsMom is offline
Junior Member
EthanNDomsMom's Avatar
 
Join Date: Jan 2008
Location: outside Detroit, MI
Posts: 22
15 yr Member
Default

Nope, I certainly don't perceive others as losers for using a mobility aid. I know I have to stop thinking that way, and I'm trying! This is the worst time I've had since my dx and I'm totally frustrated. Trying to think positive about the whole thing.
__________________
aka JennSanders!
Mommy of 2 boys.

Abnormal hockey freak girlie. Go Wings!!
EthanNDomsMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AfterMyNap (04-23-2008), SallyC (04-22-2008)
Old 04-23-2008, 03:59 AM #17
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by EthanNDomsMom View Post
Nope, I certainly don't perceive others as losers for using a mobility aid. I know I have to stop thinking that way, and I'm trying! This is the worst time I've had since my dx and I'm totally frustrated. Trying to think positive about the whole thing.

It's so hard - I know - and there are times when we get down on ourselves even though we know it's through no fault of our own that we have this condition.

You have a lot on your plate right now. New baby, trying to lose a little weight......some days even the most mundane tasks seem overwhelming due to the fatigue.

Keep posting and coming to this forum - it helps SO much. Just knowing that someone else is experiencing the same thing is sometimes all we need in order not to feel so helpless.

I hope you feel better soon!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
weegot5kiz (04-23-2008)
Old 04-23-2008, 04:12 AM #18
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

just like AMN I also was remove off baclofen cause it was causing more troubles with my legs, right now i am on other meds plus kolopin(sp?),(tried a few other meds no luck) daily stretching and starting a water exercise program, exercising does help talking to the doc, is a good idea
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-02-2008)
Old 04-23-2008, 07:42 AM #19
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Default

Quote:
Originally Posted by EthanNDomsMom View Post
Nope, I certainly don't perceive others as losers for using a mobility aid. I know I have to stop thinking that way, and I'm trying! This is the worst time I've had since my dx and I'm totally frustrated. Trying to think positive about the whole thing.
Jenn, When using or thinking of using a mobility aid think of it as a quality of life issue -

If you didn't use the scooter would you be able to function right now? Could you do the things you do without the scooter? If the answer is no then at this time you need that scooter to function in your daily life - quality of life.

Positive attitude: I think everyone needs to have one. It can help many get through or deal with this disease and life in general but there are many who no matter how good their attitude is still struggle living with this disease on a daily basis.

I understand your frustration except I usually have anger at the same time

This disease affects my legs the most and 5 of my 6 exacerbations have severely affected my mobility. It's not a positive attitude that has gotten me through those exacerbations, it's anger, frustration and determination.

At the time I'm dealing with the exacerbation there is not a single ounce of positive attitude in me. Positive flew out the window along with my mobility.

Getting angry works best for me although I don't try and get angry - it just happens. My anger is never directed at someone...well.....ummm....I have been know to curse my neuro when trying to walk since he is the one who told me to walk even when I don't feel I can ( I adore him ).

My anger is usually directed at my legs and this disease. I might be odd but this approach works for me.

I will add - I shed a lot of tears during this process.

Hang in there, Jenn
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-02-2008)
Old 05-02-2008, 08:04 AM #20
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Quote:
Originally Posted by MooseasaurusRex View Post
OK, beautiful. Hang on. Here comes...

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site. This place is amazing!

You are not alone.
You are one of us.
And we are here to help.
Moose,

I always imagine a hug from you would feel like a big ole bear-hug.


Sally,

With PPMS I know there are no good days coming, just steady progression. But now I get to the bathroom quicker, kids and their friends take my chair and turn up the speed and laugh the whole wild ride, and I do have more energy for other stuff (no, cleaning is not one of them. Did make brownies the other day, does that count as housework? I was in the house).

I do try to use walker sometimes and stretch, but not as good (never really good anyway) as I was. BUT I do feel I've gotten more freedom and mobility with the chair.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (05-02-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
This is not a warm, fuzzy feeling for me: "Appeal Social Security decisions online" Stitcher Parkinson's Disease 0 03-01-2008 09:25 AM
"The Bipolar Handbook" & "Horror Movie Hallucinations" Nathan1097 Bipolar Disorder 17 12-20-2007 06:41 PM
Nitration in neurodegeneration: deciphering the "Hows" "nYs". olsen Parkinson's Disease 0 09-05-2007 03:51 PM
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" lou_lou Parkinson's Disease 0 11-02-2006 05:20 PM
"Inside Edition" -using our "CHAMPION" film lou_lou Parkinson's Disease 4 10-27-2006 07:19 PM


All times are GMT -5. The time now is 10:05 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.