NeuroTalk Support Groups - Starting to worry about myself

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Starting to worry about myself (https://www.neurotalk.org/multiple-sclerosis/44041-starting-worry.html)

Thanks again all! Tim is not doing very well :( . He's running a low grade fever and is feeling very nauseated from the meds he's on. All three meds have nausea as a side effect but they are the most effective for treating his type of Crohn's. He may just have to go through an adjustment period with the meds. I told him 'welcome to my world' LOL. He did not find that amusing, teehee. :) Oh, I forgot to mention that I hardly ever drive because I'm just a bit cog foggy, I still drive better than most of the idiots in South Florida though, LOL. I really don't have anybody else to do the driving right now. I gotta get my men to the doctor somehow. I'll just turn on the old gps (a life saver by the way) and go! :)

Please be careful....do what I do and take the back roads! I know every alternate route to all the places I need to go! Maybe you could just put your flashers on while driving - at least people will know you're going slow for a reason and will be patient. :)

Quote:

Originally Posted by joellelee2000 (Post 264930)

I know what you mean when you make comments like that to the guys! Mine has NO sense of humor whatsoever when it comes to being sick or having any sort of medical problem. I live with the stuff every day and when he has anything that even resembles an ache or pain and complains I just look at him and say, oh gee...I have that ALL THE TIME... and he has no come back...

GPS is great Joelle...I use mine all the time, never leave home with out it anymore! I gotta admit, it was probably the best gift I ever got from PODH...finally something useful!!! :D

Quote:

Originally Posted by joellelee2000 (Post 264911)

I called my mom at the hospita yesterday morning. She's decided to halt all treatments. :( She has fluid in her lungs and around her heart, a c-diff infection, massive sweling in her legs, and a lot of pain. I totally support her decision as do the rest of the family. I'm still a 1000 miles away from her because I have to be here for my dh and drive my son to the gastro tomorrow. I'm really scared that I won't get to see my mom again. I wish I had known before I left Pittsburgh that it would probably have been the last time we'd be together. I'm very worried about my dad. They've been married for 44 years. I can tell over the phone how despondent he is, which is perfectly natural. I wish I could be there for him too. OMG this is just so surreal to me. I feel like a mouse on one of those stupid wheels. Running in place and getting nowhere fast. Sorry agan guys. I hope to be back to my silly self some day :).

I'm so sorry! I was in your shoes about 2 years ago, but my mom was in Oregon and I'm in Pittsburgh. I know how hard it is.

My mom couldn't ever have any treatments because of how far gone her cancer was by the time they caught it. She was so sick that it had weakened her heart and she wasn't strong enough to try anything.

I did fly out for a period of time ~ 10 days before she really deteriorated. She only lived a couple of months longer. We talked a lot on the phone the rest of that time.

The one thing I keep thinking is that we never know if we are seeing anyone for the last time. No one is guaranteed another day on this earth even if you don't have a cancer dx. Do not beat yourself up over that. What would you have done differently? I am sure she knows how much you love her.

Also, you might end up being able to make another trip to see her if your DH stabilizes. Right now, it feels like you are overwhelmed. Get off that wheel and just take things one day at a time and try not to stress over the things you can't control. I know that advice is easy to give and not as easy to follow, but try.

When I get overwhelmed, I make a list of the things out of my control and sit down and pray about them and turn them over to God. Then, I tackle the things that I can do something about.