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#1 | |||
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Senior Member
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I've been going through alot lately. DH, Tim, has a definitive Crohn's diagnosis. He was released from the hospital on Friday. He has never been seriously ill in his life. It is taking a toll on our whole family. The docs are struggling to get his exacerbation under control. He is in pain pretty much all of the time. It's a different variation of Crohn's than my 17 year old son has so he is taking different meds etc.
My mom is back in the hospital, her white blood cell count fell drastically low due to the chemotherapy she has been on. She has decided to stop the chemo because it is absolutely ruining her quality of life. The radiation is hardly shrinking the mass at all. ![]() ![]() My 17 year old son has decided that now is a great time to have sex with his first girlfriend!!!!!!! I am grateful that he feels like he can talk with me about it but this is just horrible. ![]() ![]() I am so exhausted physically and emotionally I feel like I'm just gonna explode or implode. ![]() Thanks again guys ![]() ![]()
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Multiple Sclerosis-Dx May 2007 . |
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#2 | |||
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Senior Member
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Awww, Joelle
You certainly have a platter full of sickies to deal with. I'm glad you came here to get it out of your head. We are here for you. Anything I can do? Sending healthy healing prayers and thoughts to your whole family, including you. ![]() ![]() ![]() ![]() ![]()
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-- Beth RRMS -dx 1997 Never doubt that a small group of thoughtfully committed citizens can change the world; indeed, it's the only thing that ever has. - Margaret Mead Breathe In HOPE, Breathe Out DETERMINATION |
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"Thanks for this!" says: | Jodylee (04-21-2008) |
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#3 | |||
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Grand Magnate
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There's been some great results on the LDN trials for Crohn's, and it's helped my flare-ups Ulcerative Colitis into almost complete remission for 3 yrs now:
Trial Results - 67 percent of patients achieved remission - 89 percent of patients experienced an improvement in their symptoms - Sleep disturbance was the only side effect reported by patients (reported in 7 patients) - CDAI scores decreased significantly and remained lower than baseline 4 weeks after the completion of the trial - Improvement was recorded in both Quality of Life surveys compared to the baseline scores http://autoimmunedisease.suite101.co...crohns_disease Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | Jodylee (04-21-2008) |
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#4 | |||
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In Remembrance
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Thanks, Cherie. I was just about to tell Joelle about this......And for the Link..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Jodylee (04-22-2008) |
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#5 | |||
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Wisest Elder Ever
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![]() ![]() I'm so sorry that all this is happening to you and your family - seems like you have taken one hit after the other. I so wish I lived closer to you so I could do something to help - even if it's just to offer a shoulder to cry on. But...you know I'm just a phone call away. I know it seems like you're being spread mighty thin these days - and having the one person you counted on for so much out of play for the time being has got to be very difficult. Please be kind to yourself - and take the time to rest and take care of yourself, too. Housework will wait (I know...mine still is!) and the boys are old enough to help with that and with things like grocery shopping and meal prep. You know your family is in my prayers every day - and I say a special one for you. Call me anytime - you know I'm usually always here and usually always awake ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | Jodylee (04-22-2008) |
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#6 | |||
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Magnate
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Man, Joelle...is there a button or a brass ring nearby on this merry-go-round that you are on? If so, push the button, or pull the ring and stop the ride for a few days!! You need a break!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | Jodylee (04-22-2008) |
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#7 | ||
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Senior Member
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I don't know what to say Joelle! I won't give you the song and dance about what doesen't kill you makes you stronger...BS! You've been dealt more than your share of heartache and you are at the mercy of things that you have no control over. More prayers for Mom. I don't know about Chrone's but I'll do some research so I understand more. Sending comfort to you and those you love
![]() As for DS17...well...it was bound to happen. I remember dealing with this with my DD19, but she was 14-15. I did the best I could, was grateful she was talking to me, and I taught her how to protect herself from illness and pregnancy. You can't turn the clock back on this one and not having control over the young lady involved makes it more difficult if truth be told. We women have more control over pregnancy than the men. I pray she has a mother that will also intervene and make sure her DD is protected. I remember getting a phone call from one Mom to discuss such things with me to protect her son ![]() This year will pass and good things will be delivered to you soon....you are in line for good fortune and I know one day these things and feelings will pass and you will be okay. Maybe not stronger, but okay. Take care of yourself! ![]()
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. Wisdom to the soul is what health is to the body |
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"Thanks for this!" says: | Jodylee (04-21-2008) |
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#8 | |||
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Member
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Joelle...
Sounds like your plate is FULL!!! Wrap it up and put it in the fridge, and deal with it little by little. While, I don't condone premarital sex (well, THAT is the mom in me...LOL we won't discuss what *I* did before marriage ![]() Hugs to DH. I hope they can get it under control. They dx;d my sis 15 years ago, and she was at death's door. It wasn't common back then (at least it took them long enough to dx her). By the time they figured it out, she needed a bag. She had it for 2 years, and they figured for life. She was able to get it reversed... and has been in remission since. Take a few hours/days just for you. Tell your son he owes you a dinner or something since he thinks he is grown up enough (add a bit of humor). ![]()
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Diagnosed with MS 4/3/2008 . Had onset attack in 4/2000 . Can stop blaming myself for symptoms now. . Visit me on . . |
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#9 | |||
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Grand Magnate
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Joellelee, you definitely have a platter-full of life challenges, don't you?
Wish I lived close by and you could use my shoulder whenever you wanted. Hugs to you and your dear Mom. ![]()
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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"Thanks for this!" says: | Jodylee (04-21-2008) |
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#10 | |||
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Magnate
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Hugs to all Joellelee... you have a lot going on, please remember to take care of yourself as well.
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Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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"Thanks for this!" says: | Jodylee (04-21-2008) |
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