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Old 04-29-2008, 10:48 AM #11
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Quote:
Originally Posted by lady_express_44 View Post
And further to Cheryl's suggestion about "interviewing" your potential doc, I saw these tips posted a few years back, and saved them:

Questions to ask your new doctor:

Because your doctor will be your health care partner, and a part of your life for many years to come, it is crucial that you find a physician with whom you are able to express your concerns, communicate your needs and ask questions.

1. Are you board-certified in the specialty of neurology? If not, why not?

Board certification is important, particularly in a specialty, because the certification requires that the physician stay current in his/her field of medicine.

2. How many MS patients do you see in a year?

Obviously, the more patients the physician sees, the more experienced they are with the disease.

3. How well do your patients respond to treatment?

Doctors who have been consistent in keeping current with their training tend to use more innovative techniques and newer approaches that achieve better results.

4. Do you participate in neurology research, particularly multiple sclerosis?
Research physicians are usually aware of the most current and upcoming medications available for treating this disease.

5. Where do you have hospital admitting privileges?

You want to be certain that your doctor can treat you in the hospital of your choice.

6. How do you gauge the necessity of diagnostic testing to avoid too frequent, overlapping or unnecessary testing?

You don't want to increase your health care bills because of a physician’s need to test too often and unnecessarily.

A good answer is that the tests ordered are necessary according to standard protocols for treating that condition, or there is no other procedure that will give the necessary information.

7. What is your plan for treating my condition?

Physicians who have treated a number of MS patients will have some type of protocol or systematic approach to treatment, with expected outcomes.

8. How do you determine what drug to use in treating my condition?

Although there are specific drugs to treat MS, there may be issues concerning your individual health situation that have to be taken into consideration, and other drugs may have to be used.

9. Do you give free samples of drugs and supplies?

Sometimes you can reduce your health care costs by asking this question.

10. Do you offer classes for your patients so that they can learn from each other?

Some physicians lead educational support groups for patients of like diseases. If not, ask if they can refer you to other groups.

11. Will you take the time to explain my condition and answer my questions?

It is best to write down your questions prior to an office visit, so that you are not wasting your doctor’s time by trying to think of questions to ask.
Once you decide on a physician, it is important to become an active partner in your own care. Even if your doctor is a gifted healer, he/she cannot make you well or keep you healthy without your cooperation.

A crucial step in being a partner with your doctor is to become an expert on your own health.

Reviewed August 16, 2005 by V. J. Smith, RN, BSN, MA.
MS Neighborhood is a service of Priority Healthcare
Copyright © 2005 Priority Healthcare, inc. All Rights Reserved

Cherie
Good stuff Cherie. I had these questions written down somewhere, but couldn't find them so I just typed off a post quickly.

I know somewhere there is a "guide to finding a good doctor" and it doesn't pertain specificially to a neurologist.

A friend of mine just had an interesting experience with a move to what she thought would be a new MS Specialist as her "primary" doctor for continued MS treatment. She had a consultation with him, he went over all her records, gave his opinion and said, ok...you have MS, TM, and then sent her on her merry way. Then he sent all her records back to her original neuro. She was floored.

She thought she had made it very clear she wanted to be HIS new patient. After several phone calls to his office, that went unreturned, she finally wrote him a letter to which he replied that as a "specialist" he doesn't take nor have the time to see patients on a regular basis. He only sees patients for second opinions, and that's it. As I said in my earlier post, this seems to be the norm rather than the exception.

I see a specialist for the clinical trial. He doesn't see patients outside the trial. He does, however, have other "neuro's" on staff who do and they consult with him about these patients. My neuro is not an MS specialist, but very knowledgeable and fits the criteria for what I need.

Quote:
If you think you want to see another doctor, whether a specialist or not, I support your decision. You need to feel comfy that the doc you are seeing is the best for you!
I agree with this comment...you have to be comfortable with your decision...afterall it is you body, your disease, and if you are not comfortable with the doctor treating you, then you won't be comfortable with the decisions that either of you are making.

I remember when I was battling cervical cancer and the doctor that I was seeing at the time had such a poor bedside manner that I was very uncomfortable with what was going on...in addition, my PODH has just been deployed for an 11-month cruise (yep, Navy). So, I decided that I wanted to go see my previous Navy doc at our previous duty station. I got permission from the powers that be to do that...it was not a fun process, but I got it done. Don't get me wrong, this guy was a very good doctor, but he and I just weren't connecting. Anyway, I ended up having the surgery clear across the country and was able to recuperate with the help of a very close friend which made things easier for me.

So, I guess what I am saying is, the decision is yours and yours alone. But don't get fixated on a specialist because of the "word" specialist. Make sure you are comfortable with the doctor because he/she knows what they are doing and have the education/compassion/personality or whatever it takes to treat YOU and that it is what YOU want and need.
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Old 04-29-2008, 07:41 PM #12
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i would call your local MS society and ask for a list of their referring drs.
then see if an MS specialist is on it.
some drs will grant you a 15" get acquainted appt. worth asking about.

i live in denver and see an MS specialist here.
another neuro was also highly recommended to me and i saw him thinking i might have to switch. it was a good visit and he said he'd take me as a pt but also said my dr had more experience with MS than he did.

calling local hosp's was also a good idea.
asking your pcp for a referral might give you some info.
calling your local teaching hospital might yield some info but i generally don't like teaching hosp's for care. underlings docs do the care and they're not experienced, nor can they always have good bedside manners.

if you know any nurses ask them as they're a gold mine of great info. they have the inside scoop.
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Old 04-30-2008, 02:31 AM #13
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Teeth Thank you everyone!

Your responses really have helped me to be able to think about my situation. Sometimes it's just hard to sift through everything in my situation to know 'what is what' I know you guys can understand that very well.

Sometimes I think I'm getting all used to this ms stuff, and other times I feel like it is still brand new and I can't afford to be making mistakes.... like not going to the right docs. But, when going to my neuro again yesterday, I tried to be much more open and specific with him. We had very good conversation. I am feeling much more comfortable about him, so will try not to worry so much for now. You are all helping me to understand, though, that my situation is important to me, and I do deserve the best care I can find. But, for now, I am going to stay optimistic about the health care I am receiving.

Thanks so much for helping me think through this!!! I appreciate the websites. You are all the best!
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