Originally Posted by lady_express_44

You must have some active spinal lesions (or damage from them) as you seem to be just following me around with the disease symptoms, friend . . . ?

Cindy is right, it is spasticity. People do it with their feet too sometimes.

I started to get that in the early 2000's. I found that when I brushed my teeth or did anything that required concentration with the other hand, my left hand curled, my arm bent, and I drew all that up against my body. Before you know it, I had a "claw hand" (think Terry Schiavo).

I started wearing braces at night to stop the "contorting" (don't know if that's a word, but I use it all the time ) of my limbs while I slept. Otherwise I would wake up really sore in the morning, and my arms and legs felt like my tendons were pulled to the max, before the day even started.

Within a few days of going on LDN those symptoms completely went away, as did the pain. If I missed the LDN, even for a day, the symptoms came back (mildly). I never missed more then a few days of LDN though . . .

I had my first real/disabling attack a few months ago, since going on LDN. I inadvertantly left an infection untreated for FAR too long, and it seems that for the last year, I had only been giving myself 2.75 mg of liquid LDN, instead of the recommended 3.0 - 4.5 mg (thought the cap held 4.5 mg ). During the attack, and until I got back on the 4.5 mg, I had that symptom back in full force (plus many others).

Even now, I have to consciously straighten my wrists and hands at night time, to stop myself from bending them . . . but I am still hoping it goes away again, once I am fully recovered though.

Cherie