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Old 05-06-2008, 09:09 AM #11
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LDN???

(think Terry Schiavo). Yes, that is what I fear!

Sorry if the Terry comment scared you . . . it was just meant to be a visual of where I ended up.

Of course, I did get past it too, and that had been getting progressively worse for several years (with no sign of potential for improvement throughout that period).

LDN is Low Dose Naltrexone. It's a drug that was brought out more then 30 yrs ago for drug and alcohol addiction . . . but at a very low dose, has been anecdotally successful with MS and our symptoms as well. Last I heard it couldn't be taken with any other CRAB except Copaxone though, but they were recently doing trials with the interferons and I haven't heard yet how it faired as far as safety, etc.

Cherie
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Old 05-06-2008, 12:02 PM #12
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I clench my hands, not so much curl them. When its really bad
I have to cut my talons. They dig into my palms when im on a
clenching spree.

Good luck
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Old 05-06-2008, 05:34 PM #13
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Originally Posted by lady_express_44 View Post
Sorry if the Terry comment scared you . . . it was meant to be a visual of where I ended up.

Of course, I did get past it too, and that had been getting progressively worse for several years (with no sign of potential for improvement throughout that period).

LDN is Low Dose Naltrexone. It's a drug that was brought out more then 30 yrs ago for drug and alcohol addiction . . . but at a very low dose, has been anecdotally successful with MS and our symptoms as well. Last I heard it couldn't be taken with any other CRAB except Copaxone though, but they were recently doing trials with the interferons and I haven't heard yet how it faired as far as safety, etc.

Cherie
You didn't scare me... I had already done that to myself. I had already pictured her in my mind. I am definitely a realist. I don't Expect the worst to happen, but I do liked to Prepare for it in case it does. Thanks!
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Old 05-06-2008, 06:32 PM #14
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I have never had this happen with my hand. However, in one of my flares it happened to my foot. It took a bit but I was finally able to straighten it out. I have only had that happen 1 other time and that was a good year ago or so.

Spasticity is a beautiful thing isn't it? LOL. It can do some funny things to our limbs. I do find that soaking in an Epsom salt bath before bed helps me during the night.

Good luck and let us know what becomes of you newly designed hand courtesy of MS. LOL
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Old 05-06-2008, 06:53 PM #15
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I have never had this happen with my hand. However, in one of my flares it happened to my foot. It took a bit but I was finally able to straighten it out. I have only had that happen 1 other time and that was a good year ago or so.

Spasticity is a beautiful thing isn't it? LOL. It can do some funny things to our limbs. I do find that soaking in an Epsom salt bath before bed helps me during the night.

Good luck and let us know what becomes of you newly designed hand courtesy of MS. LOL
Thanks for the tip on the Epsom Salts. I'll give that a try. Seems my Grandma used to think that was good for everything.

HA...Yeah....I'm a regular designer fashion plate!!!!!!!

Take Care!
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