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Old 05-10-2008, 02:05 PM #1
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Quote:
Originally Posted by PolarExpress View Post
LOL...BTU, I am one of "those people" (PPMS, or some version of it)..I've always felt bad for the RRMSr's who go thru such devestating relapses. I guess this disease just sucks in all its forms. Nothing wrong with a little denial, just don't let it keep you from taking care of yourself!
Me too, but I thought I wasn't in denial, guess I was. Need a wheelchair now, called insurance, a wheelchair person came and measured me to have custom chair made, will take awhile! Had Canadian crutches, walker ready before need but as DH says, he's been telling me for a year, get a wheelchair. Luckily I could afford a break-down less expensive travel power chair and can use it in house until I get the other. Like to think I'm ready for anything, but I wasn't. But like going to AA, I can say "Hi, I'm Kicker and I'm PP." But I needed a wheelchair sooner, not later.
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Old 05-10-2008, 10:47 PM #2
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I'd like to think I'm ready for anything, too, Kicker..But that was true even before the MS dx..On my last MRI a couple weeks ago, they found new lesions, and my neuro suggested the possibility of trying Tysabri. I haven't really decided what I'm going to do yet. The physical sx are bothersome, but it's the way it affects my thinking that bothers me the most. If Ty can help with that, I might go for it.
I drove my daughter to the store today, and as I was waiting in the car for her I was watching all the people go by and thinking every single one of them has something in their lives they see as devastating, or frightening, or depressing, or painfull...It's all relative. Realizing this was kind of comforting, in a way. We really are all in this together..
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Old 05-11-2008, 12:51 PM #3
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In my case without more protein in the spinal fluid my Neuro couldn't make an official diagnosis but she said most likely Primary Progressive.

Do I think about it? Every day when I am having tremors and the rest of the stuff that goes with it. Do I worry about it? Nope!

I do worry about:

My family, terrorists, the economy, did I turn the curling iron off, did I remember to lock the doors when I left, and what on earth did I eat to gain 5 lbs this week!!???

PPMS; in my case it stands for pretty pathetic minor symptoms and I don't have time for petty stuff!

When someone gives me the "oh how sad" look I just say at least I am not pregnant!!
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