Hi, Sharon! Welcome to NeuroTalk!

Boy, that's a mixed bag if ever I saw one. Sorry the road has been so long for you. We have a great bunch here, so, feel free to join in anywhere or post a new thread.

Welcome Sharon, Nice to meet you.

Sorry for why you're here, but glad you found this friendly place. Join in anywhere and enjoy.

I have two beautiful kids--girl age 5 and boy --9 and I just learned on tuesday based on an mri and confirmed yesterday with neurologist... pretty freaked out...not sure when to tell them...it is also tiring to tell my extended family...my husband is not being that supportive--this could be a major relationship strain...along with all the other yuckiness....i am glad i found this forum...need to take a break and stop reading all the good and bad stuff....i didn't even think about the cost of the potential meds i have to choose from...we are both attys for gov so work issues shldnt be a prob...also i seem to have the mild form...having probs sleeping...dr. prescribed something but i am hesitant to try it...each day my vision seems to get a little better so i remain hopeful, and scared, and angry and sad...but have to suck it up for my family....thanks again for being here--all the posts today have been really helpful.
Mary but not so merry in md (volada)

1st symptoms--01-27-08 (blurred vision)
dx 02-12-08

Welcome Volada.. I'm happy you found us here at Neurotalk. It's the nicest place for you.

Sheesh, you are a real newby, aren't you....to NT and MS. We have all been where you are, Mary. We know what you are feeling. If you have any questions, ask away.

Hi My name is Chandra. I live in Maryland (right outside of Washington DC). I was diagnosed in Nov 2002 and for a few years lived in denial of the symptoms I experienced. I am currently on Rebif and am interested in chatting with others on here who have MS as well.

Hi JoeMac and Chandra and welcome to NeuroTalk!

There's a great bunch of folks here, lots of information and places to just talk and laugh too!

Welcome to Neurotalk, JoeMac and Chandra. So nice to have you both here.

Just jump in anywhere. We are all here for each other..

Hi,

I'm not sure if this is the right or the safest place to share this but I'm am very overwhelmed and bewildered by the things that have transpired today.

i have had a puzzling array of symptoms since I was 16 years old (I am 24 now). Fun things like severe muscle weakness, severe doubble vision with drooping eyelids, fatigue, weakest in the morning and late at night, limb weakness (esp in the legs and feet) balance issues, things like that which come and go like the wind and seem to have no rhyme or reason. I'm am scared out of my mind right now b/c I just had a single fiber emg to "rule in MG" and it did the exact opposite. MG/neuromuscular disorders were effectively ruled OUT today after a year of taking medicine for and thinking I have myasthenia then i suddenly find out that i do not have MG and my little world was turned upside down!!!!

It started with doubble vision and 25 prisim dopters of prism in my glasses then eye surgery then MG diagnosis now that has been retracted and more diagnostic tests are being run and I am so scared!!! and upset b/c I want so desperately to live a normal life and now it feels like life is over (at least a full normal life of the kind that i want to led). I wanted the MG to be ruled out but at the same time i wanted nothing else to be ruled in!

i am so overwhelmed right now. Has any one else out there ever been through what I'm going through right now? how did you handle it.

I am still waiting for the results as the SFEMG test was just today but when i started thinking back on the past week when i have been off the mestinon it has been so rough. i know mestinon is not too effective for MS (and my neuro told me DO NOT go back on the mestinion) but for some odd reason it helped slightly that is until the side effects took over! this past year has been a physical nightmare with the physcial decompensation of things like muscluar control, and thigns like that. i used to play several sports and be so active, but now I can't do so many things that i used to love and even things that i once took for granted like walking accross a room easily. that is a huge task now frought with grabbing walls and furnature and other things like that which are so humiliating. It has about driven me up the wall today to know that everything is up in the air and that i have a lot more diagnostic tests comming up. we have to travel 2.5 hours to see my neuro and it is just really hard. any encouragment and insight would be greatly appreciated.

sincerely bobcat (Rachael)

Welcome Rachael to the club.. You didn't mention if your Neuro is testing you for MS or not???

What you describe sure sounds MSy, but so do other diseases. The DX process can be a long tedious affair for some people. Hang in there and let us know how it goes.

We will be here to support you through it.

THANK YOU!!! It is a tough process alright. Misdiagnosed with MG for a year and now after all the treatments for that they say i do not have it. Oh joys! I don't know WHAT my neuro is looking for or at or up or anything. it is so confusing. MS is the only thing that even remotely makes sense isnt' that a weird thing to say! I have had the electric shocks running down my arms and spine when my head bends forward for about 3 months. Isn't that weird. It is probably in the top five of weird symptoms that i have had. Just started the application process for SSA today. even w/o a firm dx i'm applying b/c the ???? is making me very sick and very weak and today is a good day so i think I'll lightly bundle up and head out to the real world and enjoy! because these good days are getting fewer and farther between!