Hi Jason! Welcome to NT!

Jason, that's my son's name, it's nice to meet you :)

Sorry it has to be under these conditions, however. I hope you find NT as warm and welcoming as I have.

hi jason and welcome to NT.

i'm sorry the meds aren't working so well this time.
i went thru the ssdi process a few yrs ago.
the one thing i would recommend is to keep records on yourself.
like reports of tests and dr visits.

when i applied i found out the hard way that some of my records were incomplete. i got turned down the 1st time and got a lawyer to apply the 2nd time when i was accepted.

also, make sure your dr is documenting in your chart the problems you're having. ssdi will look for that.

sorry for the reason you're here but hope to hear more of your posts.

Welcome Jason to Neuro Talk, you will find many helpful kind hearts here. Nusrenancy made a good point with SSi keep records so when you need toask you about visits or test, you can show them and or tell them

again welome to nuero talks ms forums

Hi, glad to be here and meet some new friends.

I was diagnosed with MS in 2003 when I was 56. Still getting around but I use a cane and sometimes a walker. I used Avonex for a year but developed an allergy so I'm not taking anything now. I'm afraid of both Copaxone and Tysabri - stubborn I guess! I was one of the lucky ones who got approved for SSDI on my first try.

MS has really messed up my eyes, especially the right one. I've had 3 bouts of ON, retinal degeneration, double vision, and for the past 18 months I've been treated for uveitis in my right eye.

Since July I've had a problem with infected sebaceous cysts under my arms and on my scalp. Have had 5 surgically removed (ouch!) but they keep coming back as soon as I finish the antibiotics. Four new ones started this week - I finished the last round of antibiotics last Sunday. Just don't know what's going on.:confused:

Guess that's all for now. Talk to you soon.

Hi Jamma, love your name..:) Welcome to NeuroTalk.

I'm so sorry as to why you are here but, so happy you found us. We are all here for each other and now for you.

Come on in and join he party..:hug:

welcome to NeuroTalk opps, jason, and jamma ...

surf the threads ... you will find many friendly and informative people here AT nt ... if you have any questions feel free to ask ... someone will have an answer or will know where to direct you to get an answer ... again ... welcome to NT

hi jamma,

welcome and nice to meet you.
sorry about your eyes, and this cyst problem.

i'm glad you got your ssdi so fast. i was dx'd at 53.
hope to hear more about you.

Semi New to Neurotalk
 

Hi everyone, about a year ago I joined Neurotalk only to "forget" about it.
On another forum I am lindaincolorado, there someone mentioned this forum and it jiggled my memory .

I was diagnosed with ms in 1988, after about 6mths of an exacerbation (sp) I remitted for 13 1/2yrs-thought I was mis-diagnosed; then about 6yrs ago it raised it's ugly head. I wasn't put on any meds (Kaiser-Denver) for 1 1/2yrs, then 2 1/2yrs Copaxone and now been on Tysabri for 2 yrs, which has been a blessing !! I am also in the Fampridine extended study to help with my foot drop and it too, is helping me (walk).

If you notice I do not capitalize ms (or any other diseases). I refuse to give any respect to disease.

I want to stay on top of my disease and am thankful these forums are out there to help. I look forward to reading and posting on Neurotalk.

Thanks,
Linda


--------------------------------------------------------------------------------

welcome Jamma and Grammie to the neuro talk forum, hope you find this site as rewarding as i have. any questions do not hesitate one moment to ask:hug: welcome to both of you

Welcome back, Linda.. glad you found your way back home..:)

Come on in and enjoy..:hug:

hi linda and welcome,

i hope T works well for you.
looking forward to your posts.

Hi Jammie and Linda! Welcome! Linda, I think we had "chatted" before at that "other place"when I was on tysabri. I am glad to hear that ty is still working for you!

Welcome aboard Jamma and Linda

I am Charlie, and have been DX with MS for 6 years, with symptoms dating back to who knows when. I am now SPMS, can still walk, but use a scooter for outside distances or at the mall or 6-flags. I've learned to use a rotiller (?) to walk in places like airports or parks. Recently went to Los Vegas and didn't have to walk as often and was chauffeured via powered cart thru terminals to gates bypassing lone lines.

I am currently on avonex but have also been on rebif and copaxone (when first dx), plus about 8 or 9 other meds for a veritity of reasons.

Hi Charlie, nice to meet you....Welcome to our motley little group..:D I'm sorry for your DX but glad you found us.

I was on Avonex years ago.....now, I only do LDN, as none of the other DMDs ,I tryed, stopped my progression.

Please come on in and join the Family. :hug:

newby!
 

;)hi sally! thanks for the invite...I stumbled upon this site yesterday..ranting about Rx costs:rolleyes:
I live in ORegon,have been dx. with ms for 13 yrs....had it for 23 yrs. 1st r/r now 2ndary progressive probably...cheers! hopefiend

Welcome, Hopefiend ( love your name :))

I've had MS a looooong time too. :( Come on in and join your new Family..:hug:

Hi and welcome to all the newbies!

I think I recognize you from the other board. Aren't you the Charlie with the truck for an avatar??? Welcome! There are many familiar names here that you will recognize.

Guilty as charged, thought some names looked fimiliar. Too bad kinda liked the other board but it got too ridged for me not being in the click. Maybe I'll figure out how to add an avatar here.:winky:

Yippee! Charlie's in the house. I think you will find that this place has a lot of the feel of the old place before it changed. I hope to see you around a lot.

Absolutely, Charlie. Come on in and enjoy being with Family..:)

welcome to all the newbies ... although i do not have ms, i am caregiver to my husband (weegot5kiz) who does have ms ... this is a great place to be ... again ... welcome to NT

Thought there was something vaguely familiar about you when I saw a couple of your posts a few days ago!

If you need any help adding your avatar, Curious, one of the moderators, is very good at helping out.

Is that Chuck??? Last time we saw him, I am sure someone threw him in the pool!:eek:

Hiya Charlie! How's it going?

howdy Charlie welcome to the NT forums, rigid, what a nice way of putting it:yikes:

I thought I recognized you floating around here. Your the guy who rubbed elbows with the Star Trek dudes. Don't be concerned about "nasty grams" here. :rolleyes:

This place wouldn't know what they are. It's a family here and no one, as far as I can tell, would be nasty to anyone.

Again guilty as charged.:eek: Tried putting the moves on that candy but she shot me down.......:(

hi charlie,

welcome to NT :D

Hi Charlie. Long time no, um, see? hear?

This place is a lot like the old cafe.

Tom

let's keep it that way and since you are here at NT lets enjoy NT

chais papa now bombi
 

Good afternoon NT people. I'm Bombi. I was chais papa on MSW. I finally tracked this site and forum down and reading through some post I recognize some people. Well, after you all bailed it was never the same.

I'm mid fifties, married (part time) have two grown up sons who I' very proud of and live in the US Virgin Islands. As far as I can tell there is one other person on the island with MS but she doen't like to talk about it.

I manage a medium size condo in St. Croix. I live in a little West Indian cottage I built on the east end. I swim a lot enjoy boating and play some golf.


I've been dx'd for @ 10 years but had symptoms long before tht. My younger brother has PPms and his daughter was just dx'd with rrms.

I look forward to getting to know the forum and you and some good conversation and information.

Hey there Papa/Bombi!

Welcome to NT! Good to see you here! How's the island life?:)

Welcome, Bombi...So glad you found us.:)

Come on in and join the Family..:hug:

bombi some bailed and some were selected to bail :yikes: glad you found us this site is great Bombi, I enjoyed other site till the S.S. gestapo censors took over but this site has that one beat by a mile even before the SS gestapo took over this site still had old one beat



peace

Thumper's finally made her way over to introduce herself. Thank goodness for this thread because I didn't know how to jump in here. :D

I'm not even sure if I belong here yet, I just had my MRI yesterday and I'm waiting for the results. :(

I met with my NS while I was there. There really wasn't much to tell from past years. I have been so healthy that I couldn't even remember the last time I had the flu. I have never had a broken bone, not even a sprain. I have never been stung by a bee! The doctor joked that I was saving up for something big. I talked about the last six months and my growing awareness that something was wrong. I talked about losing my balance, feeling dizzy, tingles in my extremities, stiffness, numbness, and problems with my vision. She listened intently and wrote it all down. I also told her of my seemingly isolated incident of optical neuritis ten years ago.

They say everything happens for a reason. I am inclined to believe that. Or maybe it is just that I want to believe that. Believing, even if it is an illusion, is preferable to not believing in anything at all. ;)

Welcome Bombi!