Greetings!:)
Just joined this forum, and am happy to report that though I was diagnosed with R/R MS in 1993,I've been very lucky and haven't had too a bad time of it.
Ten years after my diagnosis,when I had some fleeting visual disturbances , my neuro had me get my first MRI since then. He said that the progression was slight enough that it looked almost like a new case, and recommended therapy to try to keep it that way. I've been on Copaxone for 4 years,and my only real side effect has been those dam lipo atrophy site dents(arms, thighs).I know I probably should not do this, but I only shoot my butt now-- WTH, it looks like chewed bubblegum anyway:eek: (I'm 51):wink:
As for the disease and symptoms,(though I HATE the heat and do tire occasionally)nothing really major since '93, and thus far, the Copaxone seems to be effective.
Cheers!:D

Welcome Bee. Awesome that you have joined our little party!

Hi Bee, Welcome to your home away from home.:)

I'm glad to hear that you are stable early in the game. I hope Copaxone keeps doing it's thing for you.

Jump right in and enjoy your stay.

:hug:

Hi, Bee! I'm glad you migrated over to the fun people! We are the coolest group on the boards! Don't believe me? Wait till the others read this.:trampoline: :icon_mrgreen: :Head-Spin:

:Wave-Hello: Hi Bee! :Funny-Post:

AMN is NOT prone to overstate facts, so :D , if she says we are fun :Trapeze 2: and :cool: cool :cool: these are the most understated facts you'll hear from this group!:Excited: :Head-Spin: :laugh:

:welcome_sign: Welcome to the group! :grouphug: Glad you are here.

Thanks for the Welcome!
 

Well I feel at home already! You sound like a great group full o' cool people and I'm so happy to join you!:grouphug:

Hi Bee and welcome to the group! I'm glad to hear your MS hasn't progressed very much and the copaxone seems to be working. I was diagnosed in 1990 and am using a wheelchair. :( See you around!! :)

Newbie here.
Dx'd with RRMS this year after years of thinking my symptoms were all in my head.... (no pun intended).
Anyway, just wanted to say hi to everyone and introduce myself.
KathyM told me about this place months ago, sorry it took me so long to get here.

Hi Chelle, Welcome to NeuroTalk and nice to meet you. Do I know you from someplace else? I don't recognize your name.

So sorry for the DX, but guess it's a relief just to know. Are you on any of the MS Meds yet?

Just join in anywhere and have a good time.:D

:hug:

:Wave-Hello: Glad you finally made it here!

I'm not sure... The only other place I post is a support page over on myspace.
Yes, the dx came as a huge relief...
I spent years going to my doctor about stuff that she could never find an answer for, (mainly diziness, fatigue, and migraines).
and I eventually gave up and stopped going... then last thanksgiving I had a major flare up... dizzness, numbness and a lead leg to boot... I went to a new doctor who pretty much figured it out right away.
After a handful of tests I was finally dx'd in january, started copaxone and provigil in februrary and am now doing better than I have been in about 6 years.

Thanks... I'm glad too. :D

:Wave-Hello: Hello Chell and :welcome_sign: to NeuroTalk

Hi Chelle! Welcome... Glad to have you with us.... :welcome_sign:

That's the problem...KathyM! If she's passing out coffee to prospective members, they may never get here! LOL!

Welcome Chelle! Glad you finally got here! Bet it was via the bathroom several times! :D

shhh, don't tell KathyM I told you I know her secret! :wink:

Hi, I am a newbie. Diagnosed with RRMS in June. Had symptoms for several years. Not working. Struggling financially. Hoping to get on diability, worried about the process.
Hope to meet some great friends here and learn a lot.
Mitzi

Hey, I am a newbie MSer - diagnosed this June with RRMS. Not working, former OB RN for 8 years, know nothing about MS!! Worried about finances. Stressed over applying for diability. Hope to meet some friends here and gain info.
Thanks,
Mitzi

Hi Mitzi..:Wave-Hello: Welcome to our little part of the MS world of cyberspace. we are a small friendly group and welcome all newbys with open arms.:)

I'm so sorry for your recent DX of MS. I've had MS for more years than you have lived, probably, so maybe I can help with some answers for you.

Are you on any of the MS modulating drugs? I don't know too much about filing for disability.. I'm 65, so am on Medicare anyway, but I am sure the others will be along to explain the process to you, soon.

You are among friends here who understand your every feeling, when it comes to MS, so, again, welcome and just join in anywhere.:hug:

:Wave-Hello:Hello Mitzi and :welcome_sign: to NeuroTalk

Hi Mit! Welcome to Nt!:Tip-Hat:

Hi Mitzi
Welcome, welcome. I hope you enjoy our group. The diagnosis sucks but you've found yourself a teriffic bunch to hang with. :D

What specific questions do you have about disability? I went through the process in the late 1990's and would be happy to help where I can. Anything on your mind, just run it by us and we will help you out wherever we can.

:hug:

HEY!!!!! what is happening to all our Newbys????

All of these nice people come in and say Hi:), we welcome them with open arms and then, they never come back.:( Are we that boring or do we stink? What is it?

OK, just had to vent, I'm alright now, except that sometimes it gets lonely in here.:grouphug:

Hi from a newby
 

Hi, found your informative web site by accident while looking for a LDN prescriber
in Colorado, they all seem to fear someone cutting into thier pharmacy kick backs. I read a post by Sally C stating that she could help. Sally when you read this would you please help me find someone.
I have had MS since 1994, tried all prescribed drugs with no relief , and just heard about LDN.
Thanks
Kathy P
bkpal@comcast.net

:Wave-Hello: Hello Kathy and :welcome_sign: to NeuroTalk.


I'm sure Sally will be on soon to give you some information on LDN. We also have another member, LarryLDN who can give you some information about LDN.

Again, welcome!

hi kathy. ( hi snoopy :))

i sent a pm to larry with a link to this post. sally is having some keyboard issues, so i'm not sure how much she will be posting the next few days.

ladyexpress takes ldn too.

Hi Curious, I totally forgot about ladyexpress......:Doh: I will see if I can send her over this way.

how about some links?

http://www.larrygc.com/ms is my MS & LDN related links.

http://www.ldninfo.org is the LDN main site

http://www.gazorpa.com has helpful information for MS patients to share with their docs

http://www.larrygc.com/mystory is my own personal story from the early days

HI Kathy :) -- I'll pri*ate *essage you with info :hug:

Hi Kathy (... thanks Snoopy for the message),

I've been on LDN for about 2 1/2 yrs, and have done very well on it. I agree that some doctors can be stick-in-the-mud's :D about prescribing, but if it ends up working for you, it is well worth any amount of effort to get it.

I was not doing well for a couple of yrs (had MS for 14yrs at that time). Generally speaking, my body and medications don't agree with each other, so I was about out of options at the time. I didn't have any huge expectations, but fortunately it helped a lot with symptoms. More importantly my EDSS went down a whole point and I've remained relatively stable since I started.

My doc wasn't keen to give me a rx either and only agreed to it when I threatened to get it off the internet. Even then, I had to do up a "risk assessment" document (which took 6 months :rolleyes: cause I had so much brainfog), but that document was the clincher for the rx. Several people have found the information I put together helpful in getting their doctors on board. I will send you the link by pm.

Good luck, and when you do get the rx, please feel free to pm me if you have any questions or concerns.

Cherie

Hi everyone. I'm new here, but I've had MS for close to 20 years.

Since we can post links here, here's one for ya

http://spaceflight.nasa.gov/realdata...=United_States

It's easy to follow - it's a schedule for when you can see the international space station and shuttle pass over your area. I saw the space station pass directly overhead a few weeks ago - it looks like a bright star and goes from horizon to horizon in about 5 minutes. Ironically - I watched it at work - standing outside the mission control center at the Johnson Space Center in Houston.

It's going overhead again tonight - it'll be brighter - the shuttle is docked with the space station.

Tom

Dangit, Tom! My chance was yesterday, early evening. Carp!

I'll be back out there on Nov. 3 and I'm taking my lawnchair!!!

Neato website though, really easy to use!:)

What the heck! My towns not even listed.....I was already to drag out the telescope.....

Great link Tom ;)

Neato, Tom. I missed yesterdays sighting but have another chance on Nov 3rd at 7am....if I can drag myself out of the bed, thats is..LOL!

Thanks Tom
 

Coolness, I should be able to see it tomorrow, if I remember. :rolleyes:

The site's updated as orbits are identified. There's alway a schedule for the international space station.

Tom

Well Hello Tom! NIce to see you here. I'm late posting this, but have been out of town. I miss everything!!!

:Slip:

HI!
 

Hello!
Do not have MS myself so hopefully this is okay. My H has been diagnosed (in past 3 years) with a muscle disease (no name), Transverse Myelitis, and Probable MS. I am the one that searches for info when needed.

We are hoping to be approved to get an appt. with a neuro group that specializes in at least 2 of these areas this week.

The anxiety level is high here; his symptoms have been increasing, so thought I should say hi before I have a question but am to stressed out to formulate a coherent sentence.

It is nice to hear some of the upbeat comments as there doesn't seem to be much relief from a somewhat continuous barrage of life's "opportunities" at our house!!

Welcome SunnySideDown...love your name..:)

So sorry to hear of Hubby's Illness. I hope you both find answers soon, so you can start treating it. I understand your anxiety.:eek:

Take a deep breath and ask anything you want. We are here to help each other.

:grouphug:

Hello SunnySide Down
You are most welcome to join in here. Bummer about the hubby's illness, I hope you get in with a great doctor.

Ask away, there are many here willing to help. Answers may be a little slow, in apprearing, due to it being a weekend. Don't let that discourage you from asking.

Looking forward to hearing more from you.

:hug:

Hi my name is Karen, I was dx with RRMS in august 2004 but was told that from the number of lesions and my history of odd symptoms, that i had probably had MS for about 10 yrs priro to dx- i certianly can trace it back at least 5 yrs. By the time i was dx i was already wheelchair dependnant after losing my right leg, it was amputated 12 yrs ago to help ease chronic pain resulting from an injury some 15 yrs or so earlier. After the injury i developed complex regional pain syndrome. I am an RN and still manage to work part time, 2 days per week although no longer involved in hands on care, these days i work in a call centre taking reports about incidents that occur in the public health system here in sth aust. i am also a part time student at university doing a Ba of info tech.
I have just recntly had a major flare of my MS, i spent almosy a month in hospital in total and i am still feeling pretty flat and lethargic at the moment. I am having a lot of problems with muscle spasms at the moment too but hope all this will gradually recede. I am on Betaferon injections at present, and have been for abit over 2 years, i was on copaxone before that but had a severe allergic reaction. I gave just changed to a new neuro during this attack and he seems alot more pro axtive, he wants to do a repeat MRI when i feel a bit better, as i have not hadone since dx, i have had 3 flares in the past year and he says we need to see if the ms is progressing, eg new lesions accumulating, to see if the betaferon is helping, he has doubts and has been talking about being more aggressive in treatment. As he says, i cant afford to accumulate more disability from the ms when i am already significantly disabled due to my other issues.

Hi, Karen! :Wave-Hello: Welcome to NeuroTalk!

I am very impressed by your undaunted spirit and ambition! Kudos.

You're an Aussie then?

We welcome you to our ranks and hope that you'll enjoy our little corner of the internet.:)