HEY!!!!! what is happening to all our Newbys????

All of these nice people come in and say Hi:), we welcome them with open arms and then, they never come back.:( Are we that boring or do we stink? What is it?

OK, just had to vent, I'm alright now, except that sometimes it gets lonely in here.:grouphug:

Hi from a newby
 

Hi, found your informative web site by accident while looking for a LDN prescriber
in Colorado, they all seem to fear someone cutting into thier pharmacy kick backs. I read a post by Sally C stating that she could help. Sally when you read this would you please help me find someone.
I have had MS since 1994, tried all prescribed drugs with no relief , and just heard about LDN.
Thanks
Kathy P
bkpal@comcast.net

:Wave-Hello: Hello Kathy and :welcome_sign: to NeuroTalk.


I'm sure Sally will be on soon to give you some information on LDN. We also have another member, LarryLDN who can give you some information about LDN.

Again, welcome!

hi kathy. ( hi snoopy :))

i sent a pm to larry with a link to this post. sally is having some keyboard issues, so i'm not sure how much she will be posting the next few days.

ladyexpress takes ldn too.

Hi Curious, I totally forgot about ladyexpress......:Doh: I will see if I can send her over this way.

how about some links?

http://www.larrygc.com/ms is my MS & LDN related links.

http://www.ldninfo.org is the LDN main site

http://www.gazorpa.com has helpful information for MS patients to share with their docs

http://www.larrygc.com/mystory is my own personal story from the early days

HI Kathy :) -- I'll pri*ate *essage you with info :hug:

Hi Kathy (... thanks Snoopy for the message),

I've been on LDN for about 2 1/2 yrs, and have done very well on it. I agree that some doctors can be stick-in-the-mud's :D about prescribing, but if it ends up working for you, it is well worth any amount of effort to get it.

I was not doing well for a couple of yrs (had MS for 14yrs at that time). Generally speaking, my body and medications don't agree with each other, so I was about out of options at the time. I didn't have any huge expectations, but fortunately it helped a lot with symptoms. More importantly my EDSS went down a whole point and I've remained relatively stable since I started.

My doc wasn't keen to give me a rx either and only agreed to it when I threatened to get it off the internet. Even then, I had to do up a "risk assessment" document (which took 6 months :rolleyes: cause I had so much brainfog), but that document was the clincher for the rx. Several people have found the information I put together helpful in getting their doctors on board. I will send you the link by pm.

Good luck, and when you do get the rx, please feel free to pm me if you have any questions or concerns.

Cherie

Hi everyone. I'm new here, but I've had MS for close to 20 years.

Since we can post links here, here's one for ya

http://spaceflight.nasa.gov/realdata...=United_States

It's easy to follow - it's a schedule for when you can see the international space station and shuttle pass over your area. I saw the space station pass directly overhead a few weeks ago - it looks like a bright star and goes from horizon to horizon in about 5 minutes. Ironically - I watched it at work - standing outside the mission control center at the Johnson Space Center in Houston.

It's going overhead again tonight - it'll be brighter - the shuttle is docked with the space station.

Tom

Dangit, Tom! My chance was yesterday, early evening. Carp!

I'll be back out there on Nov. 3 and I'm taking my lawnchair!!!

Neato website though, really easy to use!:)