![]() |
Well,I was diagnosed probable RRMS on Sept 21,2007,I will never forget that day that's for sure. I'm probable because in Nov of 2006 I was Dx'ed with Optic Neurtis(had no insurance at the time thank goodness I do now) and I've only had one flare-up(ON) and you need 2 for a definate dx's of MS,yet I have enough lesions in my brain for a clinical dx's and have 2 lesions in my cervical spine. I started taking Copaxone on Oct 16th last year so far so good.
|
I'm having a hard time keeping up, but just wanted to welcome all of you to the Neurotalk MS Forum.
WELCOME ALL..:grouphug: |
Hi Everyone,
Lovely to meet all of you. The only thing I was bummed out about last year was my 50th birthday coming up in October - until I was dx with MS in September...that put things in a new perspective. So I'm still trying to get used to it (having MS, not turning 50). It began suddenly last August (07) when I woke up with numbness on the left side of my body, and after a couple of weeks of researching symptoms, and having my regular GP do a check-up and some blood tests that were unremarkable, a new doctor I saw was able to get me in for an MRI on the same day. The MRI revealed a 2.5 cm "mass" as it was called, and it sent me straight to the nearest hospital emergency room. From there, all were in agreement that I had a brain tumor (cancer). Long story short, within a month of that dx I was admitted to UCLA for resection of my cancerous tumor. Alas, after I was given a 2-5 year death sentence, put on steroids and anti-seizure meds (never had one seizure), admitted, prepped, knocked out, head shaved and all, the biopsy that was performed just before they took the real big chunk out of my skull came back negative for cancer, probable for MS. Since then, I've gotten a definite dx of MS - tumefactive style. Newer MRI's have shown the lesion has shrunk to about half it's original size, but my symptoms of numbness have remained the same. At least no new ones - well, except for the fatigue and this ridiculous drunken brain fog I walk around with 24-7. I still don't know if it's because of having air hit my brain or from the MS? My neuro put me on Tysabri - my 3rd infusion is coming up in a couple of weeks. Nothing to tell yet. Before I got MS I never spent time on websites or chat rooms or anything like this and I'm afraid I'm terrible at it, so please give me a little room to grow here - I will learn! I am sooo glad you're here. I don't know anyone else personally who has this stupid disease and I don't walk around talking about it, and I don't look sick, so it's been a rather isolating experience these past few months, but for the web. On the inside I'm scared to death and frequently break into tears when I'm alone. I'm married, and have a 24-year old daughter and a 15-year-old son, I was born and have lived in So Cal my whole life, - I live in Mission Viejo, (Orange County) CA currently, and run a family owned offset & digital printing company in Irvine, CA with my husband and brother-in-law. I also have a liver and white English Springer Spaniel. Bye for now - thanks for allowing me to tell you about myself. |
Hello My name is Sue I am relocated from another board. I am a stay at home Mom with 2 kids. I was Dx Febuary 2006 after losing sight in my right eye. I have goten most of the sight back but I just found out yesterday at my appt that I have optic atrophy with means the same as ON.
I am so Happy to see some familiar faces. |
Hi, newest newbies! :Wave-Hello: Welcome to NeuroTalk!
I'm also having a hard time keeping up, please forgive me, I am excited to see all of you here!:) This is a huge, exceptionally well-run message board and I encourage everyone to look around, see what's out there, sample your options and join in anywhere. This is a wonderful, caring community.:) |
Nu2U
Hi! Paul, TheSleeper, Sicko, I answer to just about anything!
Dx`ed with PPMS like March of 06, sick since Feb of 03, dx unsure? But mono for sure! Male, 56, married, 4 kids, 2 8/9ths grandkids, 3 dogs, 2 cats and 2 bird feeders. Busted out of Cleveland Ohio in 73, still in the area sort of. Retired and disabled by MS, but still having fun, did have to lower the bar though. If you see me walking? I haven`t been drinking! No matter how it looks!:D |
Hi everone!
I was diagnosed with MS in 1995 after strange symptoms that I thought had to do with my inner ear, or possibly a stroke. I ended up going to the hospital for 6 weeks, and had to learn to walk, talk, and feed myself again. And, here I am over 12 years later, fabulous as ever! The only problems I really deal with are being clumsy and tired. I have a normal life with work, family, and friends. I look forward to getting to know everyone! |
Hi Nik, do I remember you???:Ponder:
Join in anywhere and let us know if we can help you navigate the forums. :) |
I've joined the flock from "the other board".
I've found swapping w/other MSrs (experiences, etc) has been helpful. So here I am. I was dxd in August of this year, five months after the birth of my fourth child. Symptoms started around June w/numbness in my right foot. Sheryl |
Hello and welcome to everyone!! (I recognize some of you....Muahahahaha!!)
|
All times are GMT -5. The time now is 10:04 AM. |
Powered by vBulletin Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise (Lite) -
vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.