NeuroTalk Support Groups - Hi Newbys....Please Introduce Yourselves

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- - Hi Newbys....Please Introduce Yourselves (https://www.neurotalk.org/multiple-sclerosis/4543-hi-newbys-please-introduce-yourselves.html)

Quote:

Originally Posted by bobcatsrule (Post 229596)

Hi,

I'm not sure if this is the right or the safest place to share this but I'm am very overwhelmed and bewildered by the things that have transpired today.

i have had a puzzling array of symptoms since I was 16 years old (I am 24 now). Fun things like severe muscle weakness, severe doubble vision with drooping eyelids, fatigue, weakest in the morning and late at night, limb weakness (esp in the legs and feet) balance issues, things like that which come and go like the wind and seem to have no rhyme or reason. I'm am scared out of my mind right now b/c I just had a single fiber emg to "rule in MG" and it did the exact opposite. MG/neuromuscular disorders were effectively ruled OUT today after a year of taking medicine for and thinking I have myasthenia then i suddenly find out that i do not have MG and my little world was turned upside down!!!!

It started with doubble vision and 25 prisim dopters of prism in my glasses then eye surgery then MG diagnosis now that has been retracted and more diagnostic tests are being run and I am so scared!!! :confused: and upset b/c I want so desperately to live a normal life and now it feels like life is over (at least a full normal life of the kind that i want to led). I wanted the MG to be ruled out but at the same time i wanted nothing else to be ruled in!

i am so overwhelmed right now. Has any one else out there ever been through what I'm going through right now? how did you handle it.

I am still waiting for the results as the SFEMG test was just today but when i started thinking back on the past week when i have been off the mestinon it has been so rough. i know mestinon is not too effective for MS (and my neuro told me DO NOT go back on the mestinion) but for some odd reason it helped slightly that is until the side effects took over! this past year has been a physical nightmare with the physcial decompensation of things like muscluar control, and thigns like that. i used to play several sports and be so active, but now I can't do so many things that i used to love and even things that i once took for granted like walking accross a room easily. that is a huge task now frought with grabbing walls and furnature and other things like that which are so humiliating. It has about driven me up the wall today to know that everything is up in the air and that i have a lot more diagnostic tests comming up. we have to travel 2.5 hours to see my neuro and it is just really hard. any encouragment and insight would be greatly appreciated.

sincerely bobcat (Rachael) :eek:

Ahhh Rachel,

I hate to say it, but welcome to the club no one wants to belong to! :)
Sounds like you are having a hard time of it right now. I hope you find your answers soon.

Feel free to ask questions and jump right in. This is a great place with lots of ideas being exchanged and people with experience in what you are going through right now. Check out the Limbo Check in thread, there may be some help there and there absolutely is support from others who know what you are going through.

Hello

I am 26yrs. old and was recently diagnosed with MS, I don't really know anyone else who has it. I just stumbled upon your forum and decided to look around and I joined to meet people who might be in a similar situation.

Welcome to the Neurotalk MS Forum. I'm sorry as to why you are here, but so glad you found us.

You are the same age as I was, when I had my first MS symptom, 42 years ago..:eek: Yikes, thats right!! Actually. I was 24, but, who's counting.

Come on in and make yourself at home. Just join in anywhere. There are some other 20 somethings here, along with a few Moms, Dads, Caregivers and Grands(Me)

:hug:

Hello everyone!

I am 44 yo & was diagnosed with TM 11 years ago & also have a herniated disc, DDD, & spina bifida in the lumbar area. I have been in a lot of pain for quite a while. I do deal with the pain though & have a very positive attitude. :)

I found this site as I was searching MRI reports trying to breakdown my mother's (82 yo) latest MRI. She has DDD, had surgery 4 years ago (fusion & laminectomy at L3 thru 5. She is a total mess & this MRI report sounds very scary. I'll be taking her to her doc on Thursday so I guess we'll find out then.

This looks like a great forum to belong to & look forward to having & giving support.

Hello :p
I'm new to this mesage board but not so new to MS. It was a nice suprise to find another board to share my experience strength and hope with.

A little about me........
I am a Lovely 50 yr old women living with Multiple Sclerosis
DX with benign MS in 99:cool:
DX with Real MS in 01 & shot Avonex 01 thru 06
Retired/Disabled in 02 going on SSDI & LTD
Started Tysabri in Oct 06 with #18 on Monday & Life has never been better:D

Thanks for being here
DD~

WELCOME to NeuroTalk and the MS Forum, Beachbum and DaDiva, so nice to have you here..:)

Beachbum, you may not want the MS Forum, but search around, there are many forums here for you, and of course, you are also welcome here.:hug:

DaDiva, so sorry for the progression of your Illness. any of us have been there-done that. So join in anywhere and become a part of our loving Family of PwMS.:hug:

Oops! Sorry, just realized that I introduced myself in the MS forum.

Just stopping in to welcome the new folks! Hunidew, BeachBum and DaDiva, you just stumbled on to the best support board on the net!

Come on in and set a spell, check things out, ask questions and have fun! There's always someone up! We're like a 24 hour store, when you need milk, it's open!:)

Thank You All for the Nice Welcome:)

:D Today was #19 of Tysabri :D
I LOVE the Stuff!!! It's working for me - Yippeee!!!

MS is just a small part of my life these days. Tysabri has given me my Life back!!

Like I said before - Life has Never been better!!!

Best Wishes to All
DD~

DaDiva, I am so happy that TY is working for you. You may want to report your possitive experiences on the Tysabri "sticky" thread.

:hug: