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Another Newbie...
Hello everybody,
My name is Dave, I live in Alaska (for 32 years of my 56 years) and got my dx of MS in May of 2000. I went on Betaseron right away and stayed on a single dose every other day for the first 4 years and then the last two years I was on a double dose every other day. I switched to Tysabri in February of '07 and have had good results, both in MRI results and a decrease in some very annoying symptoms. So I am pretty happy with the results and plan on continuing with the Tysabri until something better comes along or I croak from PML! I am not new to MS boards but I expect it will take me a while to get the hang of this board. I am looking forward to getting to know you all and you all getting to know me! Thanks, Dave |
Dave --
Nice to meet you. Welcome. I am Faith. I have lived in KS for 23 of my 45 years; grew up in Canada. I have had MS for 6 yrs. Took almost 2 years to dx me; went on Betaseron within 2 weeks of being dx. You are the first person I've "met" who is on a double dose. Nice to have someone with that in common. I stayed on a single dose for about yrs. Betaseron seemed to be doing a really good job of keeping new lesions away, but I was still having flares about once a year, and my flares were generally sever enough to land me in the hospital for about 2 weeks. So, my neuro bumped me up to a dose and a half for 6 months, and then to a double dose. My most recent flare, although no less frequent was much less severe. I had extreme fatigue for about 2 weeks, but not the unusual manic symptoms that I usually have with a flare that involve hospitalization. Sorry to hi-jack this thread. ~ Faith |
Hello
Hi Everyone,
Let me introduce myself. Found this site through a thread on MSW. I was a member there for the last 3 years. I was dx'd in Nov 2004 after a bout of ON. Did experience L'Hermittes in 2002, but they thought it was from Harrington rods I had put into my spine in 1980 for scoliosis. They removed the rods and I went for another couple years until my next exacerbation and then diagnosis. (Actually, one cool fact - Dr. Andrew Cappuccino performed that surgery - the doctor who operated on Kevin Everett - the Buffalo Bills player paralyzed in a game - who now walks - his story was on Oprah this week - cool, huh?) I was on Tysabri to start (2 infusions before it was pulled from the market), then Avonex for 14 months, now on Rebif (twice a week). Last MRI showed I'm stable. That's a good thing. I quit my job in October and now I just stay home and take care of my husband, two daughters (18 and 20) and my two kitties. I enjoy this site and look forward to participating. Pam |
Hi, Newbies! :Wave-Hello: Welcome to NeuroTalk!
Mrs.Mole-- I LOVE that name!!!:ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO: :ROTFLMAO: |
hi dave and hi mrs mole,
glad to meet you. this is a great place and i hope to hear more about you. |
Hey everyone. I recognize some of you, so I will say a special Howdie to y'all.
Yep I have SPMS and now have developed RSD. Fun and games. I live in southern ontario, female, married with children and 2 cats and one dog. Live in constant pain, use wheel chair in home, and scooter outside. Hate neuros, but then again who does not? :cool: Don't know what else to say except: I'm heeeeeeeeere ! |
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Another BIG NT Welcome to our newest members. Take a look around at all our wonderful forums. And, please let us know if you need any directions or help. Glad to have you w/us.
http://dl2.glitter-graphics.net/pub/...tw866pkct2.gif |
Yeaaaaa, My Friend CITH is here.:Trapeze 2:...So happy you made it. She and I started out long ago at BT and then to Plaintalk and then notta, for awhile.:(, so, I am glad you came.
I hope you like it here. :hug: Quote:
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thanks everyone for the welcome.
Yep Sally it's been a long time, but as I emailed U, I'm trying to get back to the living. After my dad died it was very hard to do anything. I miss him so much. Anyways, I am here, and I hope to get to meet ya'll. |
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