welcome cal and sparkle,

i'm glad you two have found NT. there's a lot of information and support to be found here.

looking forward to more of your posts.

Newby Howdy
 

Hello Sally
I have just happened on to this site and registered today. My brother (51) was DX about two years ago with PPMS. In the last 6 months he has lost the ability to talk, gotten a feeding tube, a trache, and was admitted to the hospital yesterday because now he can't hold his head up and the his vision is getting worse. I just don't understand the speed this nasty disease. I still don't understand enough about it because we have been dealing with the symptoms no time to do more.
I am looking for education and suggestions what a sister can do to help her big brother.
Thanks for listening
Marrianne

I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. :eek: Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.:D

Best Wishes,[/QUOTE]

Welcome Cal, Sparkledust and Marrianne,

So glad you all found Neuro Talk. We are a friendly group of people, but we are serious when we try to help with your questions or concerns.:) We try our best. Someone will answer you or give support to if needed.

We have daily concerns too. We learn from each other too.

So join us, post down on the forum below, or pop in on someone else's post. We love new people.

Nice to meet all of you.:)

Welcome Marrianne. I am so sorry to hear about your Brother's rare progressive type of MS. Please do join us inside and ask anything you want. We will try to help you and your DB, as much as we can.

:hug::hug:

Insurance denied Copaxone
 

My daughter in law has recently diagnosed MS. She is a student and has, I think, Aetna Insurance. They have a limit on the amount of money they will pay for medications. They went to fill the Copaxone and it was denied.

My son is also a student, they have no income. They are applying to NORD for help at the suggestion of the people who make Copaxone.

I'm wondering if anyone has any suggestions.

Thanks,

PabroCB

Hi and welcome to NeuroTalk! :)

PatientAssistance.com is a free resource designed to help connect patients who can’t afford their prescription medications with patient assistance programs. This might possibly be of some help.

http://www.patientassistance.com/pro...ceuticals-110/

Hi pabrocb,
Welcome to the NT forum. It is hard enough getting a dx of MS and having ins, and still be declined. When I was on Avonex and then Copaxone with my own ins they paid for it.

When I had to go on my husband's ins they denied it. I wrote the ins company a very strong letter saying how I needed the drug as my only available treatment ..back then.

They appealed their decision and paid for it for a few years until I had to stop it. Remember the squeaky wheel gets the grease. Don't be shy, have her write to them, call them, she may have to fight to get her ins co to pay for it.

Then she can try for assistance with Nord. I don't know why the ins co won't pay for a medication she needs if she fights them for it.

Welcome to both of you, and nice to meet you. Tell us how your DIL makes out and when she gets the drug. Good luck.:)

Welcome PabroCB..nice to meet you. Come on in and join us.

All of you who have only posted one time, please don't be shy. :hug:

Hello - my name is Patti and I don't have an official diagnosis yet. But, I am almost certain I have MS and have had it for at least 15 years. I know MS can be difficult to diagnose and symptoms are often vague.

During the last 12 months, I've had several "occurrences" involving vision disturbances, leg weakness, lower back pain, balance issues, just to name a few. I had an MRI/MRE 3 years ago, again one year ago without any definitive results, yet I am still "not right" if you know what I mean and I'm sure you do. LOL

After waiting 6 months to get an appt. with a neurologist, I have recently had MRI's of the head and spine and just this week, an EEG and 3 evoked response tests ( audio, visual & stimuli) and a comprehensive blood panel sent to the Mayo Clinic. I go back to the neuro guy April 4th for all the results.

I'm 59 years old, have 2 grown children and 5 grandkids ranging from a toddler to a 16 year old. I'm married, semi retired and work from home, have four dogs and work with Boston Terrier Rescue.

I have to admit that I'm scared and am having a hard time giving "voice" to my feelings and fears. Saying certain things out loud can make them all too real. I'm glad I found this forum, not only to learn, but to have as an outlet. Thanks for listening to me.

Hi, another newbie here
 

Hi,

My name is Laura and have many symptoms that seem to link to MS. Currently I have been dx'd with fibromyalgia, chronic fatigue and chronic vertigo.

I have come to a time in my life where I cannot get around unassisted and am currently owner training a Service Dog to help with my daily life.

I am seeing a neuro this week and am hoping for some help from them, since my regular dr says I'm "fine". Can't walk by myself, can't drive, fall over all the time, losing my ability to think and talk, but I'm "fine".:mad: