Welcome Volada..:) I'm happy you found us here at Neurotalk. It's the nicest place for you.

Sheesh, you are a real newby, aren't you....to NT and MS. We have all been where you are, Mary. We know what you are feeling. If you have any questions, ask away.:)

:hug:

Hi, Erie Pa Here
 

Hi All,

First I will tell a little about myself, I am a male, single father, I have just turned 51 years old, own my own home outright, divorced now for 15 years, have 2 boys 31 and 18 years of age, the 18 year old lives with me, right now he is a Freshman in college. I live in northwestern Pennsylvania...... I have only dated about 6 women in the past 15 years and that was MY choice as I basically have devoted my life to raising my son, working, taking care of him and the house with very little time for anything dating related.....so that is why I am single.....

I work full time as a printer with sometimes a lot of overtime also, have my medical insurance paid for by my job and myself in a copay. Only a few people that I can trust at work knows of my recent plight and I do not plan on telling anyone else there if I don't have to.

I am new to this board but not new to my diagnosis. I've had symptoms that became ongoing since Nov 2005, after a bunch of MRI's and othert tests I was loosly dianosed in July 2006 but my neurologist wouldn't confirm it until he went through a few more MRI's and he finally confirmed it the day after Christmas 2006. Just a few people know of this as my symptoms are not relevant to anything I do and also not outwardly visable to any one, (blurred and sudued vision, burning and redness of eyes, numbness all over the body, dizzyness, some fatigue and some cog issues at times). MOST of the time I am ok with this and have gotten used to it but other times it is a struggle. I started out with Copaxone last February but didn't do well on it and then switched to Rebif in October and so far so good!!

Currently we are in the middle of winter up here in Erie, Pa and I SO hate it, depresses me so much, I can't wait for the spring!!.......:-)

Well, I just found this board today and signed up, I see a bunch of the same names that are on MSWorld so I put this link in my favorites and will stop back from time to time to see what is going on............so until then, HI Everyone!!

Intro
 

Hi My name is Chandra. I live in Maryland (right outside of Washington DC). I was diagnosed in Nov 2002 and for a few years lived in denial of the symptoms I experienced. I am currently on Rebif and am interested in chatting with others on here who have MS as well.

Hi JoeMac and Chandra and welcome to NeuroTalk!

There's a great bunch of folks here, lots of information and places to just talk and laugh too!

Welcome to Neurotalk, JoeMac and Chandra.:) So nice to have you both here.

Just jump in anywhere. We are all here for each other..:grouphug:

SFEMG, confused, possible MS?? Yikes
 

Hi,

I'm not sure if this is the right or the safest place to share this but I'm am very overwhelmed and bewildered by the things that have transpired today.

i have had a puzzling array of symptoms since I was 16 years old (I am 24 now). Fun things like severe muscle weakness, severe doubble vision with drooping eyelids, fatigue, weakest in the morning and late at night, limb weakness (esp in the legs and feet) balance issues, things like that which come and go like the wind and seem to have no rhyme or reason. I'm am scared out of my mind right now b/c I just had a single fiber emg to "rule in MG" and it did the exact opposite. MG/neuromuscular disorders were effectively ruled OUT today after a year of taking medicine for and thinking I have myasthenia then i suddenly find out that i do not have MG and my little world was turned upside down!!!!

It started with doubble vision and 25 prisim dopters of prism in my glasses then eye surgery then MG diagnosis now that has been retracted and more diagnostic tests are being run and I am so scared!!! :confused: and upset b/c I want so desperately to live a normal life and now it feels like life is over (at least a full normal life of the kind that i want to led). I wanted the MG to be ruled out but at the same time i wanted nothing else to be ruled in!

i am so overwhelmed right now. Has any one else out there ever been through what I'm going through right now? how did you handle it.

I am still waiting for the results as the SFEMG test was just today but when i started thinking back on the past week when i have been off the mestinon it has been so rough. i know mestinon is not too effective for MS (and my neuro told me DO NOT go back on the mestinion) but for some odd reason it helped slightly that is until the side effects took over! this past year has been a physical nightmare with the physcial decompensation of things like muscluar control, and thigns like that. i used to play several sports and be so active, but now I can't do so many things that i used to love and even things that i once took for granted like walking accross a room easily. that is a huge task now frought with grabbing walls and furnature and other things like that which are so humiliating. It has about driven me up the wall today to know that everything is up in the air and that i have a lot more diagnostic tests comming up. we have to travel 2.5 hours to see my neuro and it is just really hard. any encouragment and insight would be greatly appreciated.

sincerely bobcat (Rachael) :eek:

Welcome Rachael to the club..:) You didn't mention if your Neuro is testing you for MS or not???

What you describe sure sounds MSy, but so do other diseases. The DX process can be a long tedious affair for some people. Hang in there and let us know how it goes.

We will be here to support you through it. :hug:

New member in PA
 

Hi,
I'm glad I found this community. :)

THANK YOU!!! It is a tough process alright. Misdiagnosed with MG for a year and now after all the treatments for that they say i do not have it. Oh joys! I don't know WHAT my neuro is looking for or at or up or anything. it is so confusing. MS is the only thing that even remotely makes sense :Thats-Funneh: isnt' that a weird thing to say! I have had the electric shocks running down my arms and spine when my head bends forward for about 3 months. Isn't that weird. It is probably in the top five of weird symptoms that i have had. Just started the application process for SSA today. even w/o a firm dx i'm applying b/c the ???? :Scratch-Head: is making me very sick and very weak and today is a good day so i think I'll lightly bundle up and head out to the real world and enjoy! because these good days are getting fewer and farther between!:wink::holysheep:

Hi Spirit! :welcome_sign:

We're glad you found us too! Jump right in and introduce yourself! Ask questions! Someone usually has an answer :D