River, I was back in maine in early Sept. to marry off my oldest soon. It was great. I pigged out on cheap lobster, fresh corn, apples and every kind of berry. The weather was beautiful. I visited all my favorite places and hooked up with friends and family and did my last tour of doctors in the states.
,
I love the Caribbean, the weather, the pace of life, evreyone's expectations are lower, a good job, it's a good fit for me. I love ME but I just can't deal with the cold.

So nice to chat again. What's up with you? Did you have a good summer?

Welcome, Thumper (love your name..:))

Just come on in and join the Family.I hope you like it here. :hug:

Hi, all you newbies! :Wave-Hello: Welcome to NeuroTalk!

Sorry I'm so late, life has recently been very odd for me.

I see a couple old faces, glad you found us, jump right in, the water's warm!

welcome bombi and thumper to NT.
there's so much info here and so much to pick from.
great resources too.

hope to hear more about you both.

boy, island life sounds so....relaxing. is it like Gilligan's Island? :D

I'm late at welcoming everyone too, as have been offline~ So, w/that being said

WELCOME EVERYONE!!!

New Member
 

Hi there,

I feel a little embarrassed logging in to this group as I don't yet have a definite diagnosis. All I have is a neuro - inflammatory condition and/or an autoimmune condition, possibly MS with MD, lupus and/or celiacs disease ........ . This is as far as I have got after 2 years of seeing neurologists and an endocrinologist for some two years. This lack of a diagnosis leaves me feeling desperate as I don't know how to proceed for the best or justify my condition to those around me. At the beginning of this year I had to give up my career and I now exist in a limbo which at the age of only 53 is very dispiriting.

Currently, I have multiple white matter brain lesions, muscle wasting and weakness in my left leg, sensory abnormalities (burning, pins and needles, numbness) and periods of stabbing pains above my left ear. I also have occasional purpura on the top of my feet (lasting 3 days), hives from my shoulders to hands (lasting 45 minutes) and a swollen tongue and throat, leading to a husky voice. I wake each morning with really stiff muscles and find it difficult to not to sleep all morning. But worse of all, I have lost sexual desire and the ability to orgasm, despite having recently regained some feeling in that area. This has lead me to feign sexual pleasure to keep my husband happy and maintain my marriage. After two years, this pretense is proving to be a strain and my the sense of loss is enormous!

Any advise/information would be appreciated.

hi merle,

welcome to NT.
i'm sorry you're in limbo.
have you had a spinal tap?

i don't have any advice right now, sorry.
but i'm glad you found us.
hope to hear more of your posts.

you might start a thread on the MS forum. i'm sure others may be able to help.

Hello!
 

I met twinkletoes last weekend and she invited me to check out the support here. Thanks! :)

Welcome Bombi, Thumper and Mom. We're glad to have you here, even though we're sorry for the reason you had to come. I'm sure you'll find it to be as helpful and informative here as I have.

Reply to Sally's request .
 

Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. :eek: Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.:D

Best Wishes,[/QUOTE]

Sally,
my name is amorehead3. Yesterday was my first visit to this sight.I had no idea there were so many people who are suffering the same pains as I do .I am to have my first oc nerve block on the 4th . I have a little better idea of different things that can happen but hopefully I will have good result. I too have had headaches for years. Mine have been shown to come with mini strokes and has left lot of dead areas so that my blood supply is less than needed .I too am so tired of all the pain. I have noticed that most with oc seem to have ms. That is scarey.. i have fibromyalgia too, border diabetic(diet controlled.) I just don't have the energy to get in habit of taking walk. I have a total hip replacement of left hip and 3 bones broken in my left foot at the ankle so I have a plate and 4 screws in there. I have such a time getting up an down now. I'm 73 yrs old and I did have pt for each thing but I have just gotten weaker now.No energy. But hope this block clears head enough that I can re-energize my body. I wish you a blessed recovery and a healthier future. God be with you and comfort you.
:)