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I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. :eek: Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.
I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past. Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.:D Best Wishes,[/QUOTE] I don't have MS, not real sure what it is, perhaps you get brief me(?). I am an alcoholic that despite repeated horors have not lost the desire and enjoyment of it. I don't want something over me i can't contol, and is part of my problem with AA, and i also do not detrect from it's benefit. A gift from Lord Jesus, Holy Spirit and God Alimighty in His Name gave me naltrexone, which seems to have been majored in the treatment of illicit drugs. Still has sounded much in the area of alcohol addiction. This is wonderful and awesome and, after couple days (or immediately) have noted the lack of interest in being drunk or drinking-even to the extent of forgetting to want to have some. Still, as wonderful as this is, i would like to hear about other discoveries, or hopes for Naltrexone, in treating such a vast array of ailments (which i cannot again find!!). I saw one site that hoped for aid in Alzeimers disease and both my mom's (whom i rather favor (though male)) parents had this disease and i have had a brain trauma & spinal fracture in a car accident and this makes me worry more about losing memory and such. Thank you and God bless you, am thankful to have this discussion. A building in the Kingdom of Heaven, bless you and keep you in Christ Jesus. ronald |
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There is a thread dedicated to LDN: http://neurotalk.psychcentral.com/thread71392.html We also have a Alcoholism, addiction and Recovery forum you might be interested in: http://neurotalk.psychcentral.com/forum31.html Wishing you all the best. |
I am 36 years old and I have not been officially diagnosed with MS but have had MS like symptoms over this past year that are progressing. The Dr. is keeping his eye on it for now. No lesions that were showing on my MRI thankfully but from what I understand in my own research that is not entirely conclusive.
In my heart I do feel that it is MS. I have several friends and acquaintances that have had great success with MS or other autoimmune diseases that they treated through strict nutrition so that's the route that I am taking right now. But I would like to find out more about what other people do and how you cope with it. |
Hi Kristin and welcome to NeuroTalk! :)
Lots of information here in all the forums, so jump right in! If you have any questions just ask, there's always someone with helpful advice. Good Luck! |
Welcome Ron..:) in addition to what Snoopy said..You may want to check out the LDN homepage...http://www.lowdosenaltrexone.org/ .
We with MS only use the very low doses of Naltrexone. We don't dare use the higher doses that you use for Alcohol Addiction. Good luck to you..:hug: |
Welcome Kristen....Hang with us until you are diagnosed. It can be a long lonely journey. You are a couple of yrs younger than my Daughter, who also has MS..:mad:
Join us for a lot of support, some info and a littl fun.:hug: |
Hello Gerry, Ronald, and Kristen! :grouphug: Welcome to NeuroTalk! This is such a great place to hang out with so much going on, and a lot of very friendly and caring people. :)
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just adding another reply to change the triple 6 (devil's #):eek:
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:ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO: |
Polymicrogyria
Looking for someone to talk about this disorder with:confused:
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