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Old 02-25-2009, 11:48 AM #631
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Talking New to this

Good to find this place I have much needed, and hope I may help someone some day. I am rounding the corner of what feels to me as big changes in my life. I am 56 female with MS 20 +/- years. Starting my 3rd year on LTD. Since January I have been down with "it", sort of at home with "it", because of all the years of up and down, ins and outs of "it" (MS), I find myself poorly packed for this one. My suitcase of tricks (coffee, provigil, napping in car) are not working now. . I am on some home care now, which I am glad to have. I joined Netflcks, and I am hoping for some guidance from those who find themselves in a similar way, beached.
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Old 02-25-2009, 02:27 PM #632
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Welcome to the "Beached Club", Annerich..

I've been a member some 40 years, now, give or take 10 for remission..

Come on in and join your new Family. Happy to answer any questions you may have.

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Old 02-26-2009, 09:56 AM #633
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Quote:
Originally Posted by annerich1@mac.com View Post
Good to find this place I have much needed, and hope I may help someone some day. I am rounding the corner of what feels to me as big changes in my life. I am 56 female with MS 20 +/- years. Starting my 3rd year on LTD. Since January I have been down with "it", sort of at home with "it", because of all the years of up and down, ins and outs of "it" (MS), I find myself poorly packed for this one. My suitcase of tricks (coffee, provigil, napping in car) are not working now. . I am on some home care now, which I am glad to have. I joined Netflcks, and I am hoping for some guidance from those who find themselves in a similar way, beached.
Hi Anne, and welcome to NeuroTalk! I've also had MS for about 20 years. This is a great forum with lots of friendly and helpful people. I'm looking forward to seeing more of your posts.

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Old 02-28-2009, 11:31 PM #634
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Well I guess I will jump in and say hi.

I was diagnosed with RRMS one year ago and have been on Rebif since. I have been looking for an answer to my symptoms since I was about 14. I'm 24 have a four year old daughter and two year old son. I also have a very supportive husband and a wonderful family who I would be lost without.

I was also diagnosed with POTS last June, and now they are in the process of trying to diagnose me with some type of myopathy most likely MG.

I get spells where I can't move or talk and can barely breath. As far as MS goes I have ON, cognitive issues, balance problems and left sided weakness. I have been through so many tests in the last two years I want to scream and will be glad when they finally decide they know what's wrong with me. Well besides the fact that I'm just weird But I've known that all along.

I have been on the web md support group for a while know and found this site for the MG support group. I have been on there for a couple weeks now and thought I would join in some conversations here.

I hope everyone is doing good today.

Kristie
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Old 03-01-2009, 09:27 PM #635
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Welcome, Kristie....so nice to meet you and glad you are joining us over here.

Sounds like you have a lot on your plate, for a youngster.. I started my journey with MS at your age...many many years ago... You sound like a strong individual and a supportive Hubby and Family is sooooooo important.

Come on in and join us anywhere or start a thread and tell us your story so far.
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Old 03-03-2009, 11:18 AM #636
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Hi Kristie. Welcome to NeuroTalk, and welcome to our "little" MS forum. This is a great place to hang out.

I wish you the best of luck getting some answers from your docs. Hang in there.
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Old 03-18-2009, 08:20 AM #637
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hello this is Ozzy, my Fiancee jennifer was DX with MS at 13 she is now almost 20yo there is a thread in the MS section with more info we are here to seek help from others,to learn more about Ms and to help others with our personal two cents. you will be seeing us around.
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Old 03-18-2009, 10:38 AM #638
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Originally Posted by Ojpinky View Post
hello this is Ozzy, my Fiancee jennifer was DX with MS at 13 she is now almost 20yo there is a thread in the MS section with more info we are here to seek help from others,to learn more about Ms and to help others with our personal two cents. you will be seeing us around.
Welcome again to NeuroTalk... Happy to have you with us.

Jump in anywhere..
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Old 03-18-2009, 11:52 AM #639
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Popping in to apologize for not stopping by more and welcoming everyone new!!

Welcome to everyone!!
Jump right in!
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

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Old 03-19-2009, 03:18 AM #640
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Hi my name is Mishi. I have been DX for 3 and half years we rmms. I was on rebif and had a good result but changed to avonex because of convenience and I am yet to see the results of that change. I was in major denial for the first couple of years but think I am starting to cope. I wanted to get into contact with others and hear their courageous stories to help me through the bad times. I really have no idea what this drug is doing to my brain except that it slows the progress of the illness. So if any one has any stories or would like to reply, please do so. Hope to hear from you.
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