[QUOTE=Lady;669513]

I am blaming my problem on blocked veins in the jugulars, but that's a whole new story. CCSVI, as we call it.

QUOTE]

Hi Lady,

Thanks for posting. Sorry to hear you have the head pain too, but glad to know I'm not alone. That sounds twisted...huh?

Anyway, CCSVI has my attention, too. I look forward to hearing more about this.

♥Nali

Kinda newbie
 

Hi everyone, I am not really that new but haven't been here for a very long
time. Many reasons, mostly my life was consumed by my Mom inlaw with AD, who is now in a home. Not that she isn't still a primary focus, but now that sh isn't living with us I can at least think clearly.
It's nice to have this forum to share info and experience, something I have missed.
I was dx'd 8 years ago now, rrms going towards spms. Then had Novantrone on the three month protocol and have had stable mri's since. Previously was on rebif, copaxone, steroids. I am not on any disease modifying drugs right Now just drugs to treat all of the residual damage and symptoms.
My biggest challenges these days are bladder infections, fatigue, and muscle and nerve pain. Thanks for being here everyone, it's great to have a place to go.
Sandra

Hi Sandra.:) Welcome back. :hug:

Hi Sandra, Welcome back. I took care of my Mom with Alzheimer's disease, my kids, and me with MS, and I worked on different shifts with my DH. :eek:

So I know what it's like, hard! When she went into a nursing home, my MS doctor said finally. Stop being a martyr, she needs care 24/7 and you look like crapola with dark circles under my eyes.

I hope you can stay with us, we are looking forward to talk more with you, and more often if you can. I hope you feel comfortable being back in the group.:) Nice to meet you.

Nali, it's sad, but true, but nice to know others have the same symptoms you do. You are never alone on this forum, trust me.:)

Hi Sandra, glad to see you back :)

Hey Snoopy, I recognize you! Thanks everyone for the warm welcome, I really appreciate it.
Sandra

Hi Sandra. I remember you from the other forum. Welcome back.

Hi,

I haven't been able to read all the postings yet, but thought I should introduce myself.

I am 39, have a wonderful husband, 2 children and live very close to Pittsburgh. My biggest MS symptoms so far are Trigeminal Neuralgia (TN affects nerves in your face/head/ear causing much pain) and Depression. I had brain surgery a year ago to help my TN (still have much pain, taking Neurontin, Copaxone, Saphris, Prozac, etc).

I was diagnosed with MS at same time as TN almost 2 yrs ago. I don't work anymore (19 yrs at job). I do the best I can every day as far as the kids go. Everything else...not so much.

Anyway, hello and thank you for your support!

:winky:B-

Could it be Trigeminal Neuralgia?
 

[QUOTE=Nali;668871]

So, here is the reason I need you guys: The reason I second guess this diagnosis because of head pain. I feel a deep soreness when I lay on my left side at night. Sometimes, I can't put any pressure on that side at all and if I happen to roll over on that side at night, I wake up with my left eye bulging, and my heart racing. My eye quickly goes back to normal when I stand up.

Does anyone know of another person with MS who has this kind of head pain? This is not a headache. This feels like a bruise beneath my skull with swelling and soreness that follows a bruise.

Nali, I have MS & Trigeminal Neuralgia. Look it up and see if it fits, then maybe Dr. will listen & treat you for it.

Good Luck!
:hug:B-