Hello everybody,

My name is Dave, I live in Alaska (for 32 years of my 56 years) and got my dx of MS in May of 2000. I went on Betaseron right away and stayed on a single dose every other day for the first 4 years and then the last two years I was on a double dose every other day.

I switched to Tysabri in February of '07 and have had good results, both in MRI results and a decrease in some very annoying symptoms. So I am pretty happy with the results and plan on continuing with the Tysabri until something better comes along or I croak from PML!

I am not new to MS boards but I expect it will take me a while to get the hang of this board. I am looking forward to getting to know you all and you all getting to know me!

Thanks,

Dave

Dave --

Nice to meet you. Welcome. I am Faith. I have lived in KS for 23 of my 45 years; grew up in Canada.

I have had MS for 6 yrs. Took almost 2 years to dx me; went on Betaseron within 2 weeks of being dx.

You are the first person I've "met" who is on a double dose. Nice to have someone with that in common. I stayed on a single dose for about yrs. Betaseron seemed to be doing a really good job of keeping new lesions away, but I was still having flares about once a year, and my flares were generally sever enough to land me in the hospital for about 2 weeks. So, my neuro bumped me up to a dose and a half for 6 months, and then to a double dose.

My most recent flare, although no less frequent was much less severe. I had extreme fatigue for about 2 weeks, but not the unusual manic symptoms that I usually have with a flare that involve hospitalization.

Sorry to hi-jack this thread.

~ Faith

Hi Everyone,

Let me introduce myself. Found this site through a thread on MSW. I was a member there for the last 3 years.

I was dx'd in Nov 2004 after a bout of ON. Did experience L'Hermittes in 2002, but they thought it was from Harrington rods I had put into my spine in 1980 for scoliosis. They removed the rods and I went for another couple years until my next exacerbation and then diagnosis. (Actually, one cool fact - Dr. Andrew Cappuccino performed that surgery - the doctor who operated on Kevin Everett - the Buffalo Bills player paralyzed in a game - who now walks - his story was on Oprah this week - cool, huh?)

I was on Tysabri to start (2 infusions before it was pulled from the market), then Avonex for 14 months, now on Rebif (twice a week). Last MRI showed I'm stable. That's a good thing. I quit my job in October and now I just stay home and take care of my husband, two daughters (18 and 20) and my two kitties.

I enjoy this site and look forward to participating.

Pam

Hi, Newbies! Welcome to NeuroTalk!


Mrs.Mole-- I LOVE that name!!!

hi dave and hi mrs mole,

glad to meet you.
this is a great place and i hope to hear more about you.

Hey everyone. I recognize some of you, so I will say a special Howdie to y'all.

Yep I have SPMS and now have developed RSD. Fun and games.

I live in southern ontario, female, married with children and 2 cats and one dog.

Live in constant pain, use wheel chair in home, and scooter outside.

Hate neuros, but then again who does not?

Don't know what else to say except: I'm heeeeeeeeere !

Welcome! Love your username and your sig line. Kitty litter! Ha!

Another BIG NT Welcome to our newest members. Take a look around at all our wonderful forums. And, please let us know if you need any directions or help. Glad to have you w/us.

Yeaaaaa, My Friend CITH is here....So happy you made it. She and I started out long ago at BT and then to Plaintalk and then notta, for awhile., so, I am glad you came.

I hope you like it here.

thanks everyone for the welcome.

Yep Sally it's been a long time, but as I emailed U, I'm trying to get back to the living. After my dad died it was very hard to do anything. I miss him so much.

Anyways, I am here, and I hope to get to meet ya'll.