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Old 01-29-2008, 09:24 PM #291
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Hi,i'm new here too. Also stuck in limboland
MS sx since 2005
get to see my Ms neuro in march,hopefuly i'll finally get some answers
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Old 01-30-2008, 03:41 AM #292
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Greetings fellow MS'rs

I was DX last Sept. I didn't even really know what MS was, I have learned alot since then. I am on Copaxone.

30 year old male, I work on an assembly line 2nd shift. I am a proud PGR member (look it up if you need to). Other than that I live a fairly boring life.



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Old 01-30-2008, 09:16 AM #293
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new here and cogfog..so not sure I may have posted here already lol...

Sarah is my name, I am 38, mom of five, work full time managing a McDonalds....and undx as of yet...but feel it is MS or neurological problem similar.....drs say stress....and that I dont have my sxs when pregnant due to being HAPPY at that time in life..huh.....

anyone that knows me knows I am happy go lucky most the time...haha

I am taking more time away from puter,so on only once in while...taking time to do more yoga, kid time, and rest time.....but love the company on sites as these....hugsss to all, sarah
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Old 01-30-2008, 03:51 PM #294
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Hi, I'm tante, and last week, during the mass migration, , I had planned on doing an intro Thursday PM, after my much (and long) awaited, "tie up the loose ends with my neuro," appt.

It was, however, once again re-scheduled, so I still do not know whether my 5 O bands, positive VEP and BAER, repeat ON, and eons of documented time and space will be attributed to MS or to CIDP (unlikely I would think, since my emgs are fine...always have been). Everything else has been ruled out, many times and through many referrals.

All I do know, and only second hand from another Dr. who spoke to my neuro., is that he plans on giving me some type of IV treatment. Somedaaaay....over the rainbooooow....... No, I do love my neuro and his staff, they are just seriously overworked.

But, for now, this one time female potter, soon to return to painting, would like to join you folks here, meet new friends, and keep an eye out for my old ones.

tante
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Old 01-31-2008, 09:15 AM #295
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Hi, I'm Sue. Also came over during the mass migration. I had my first flare in May of 2004 and was diagnosed in May 2005. Have been on Avonex and Copaxone, each with it's own problems. I'm now doing very well on Beteseron. I still have numerous symptoms, my worst being my lack of balance which I now use a cane for.

Glad to see so many familiar names here.
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Old 01-31-2008, 11:25 AM #296
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Hi, I'm Jeannie. I followed the rest of the flock over in the mass migraton!! I hadn't really been posting at MSW much in the last year so I guess that's why they lost all my user info during the change and I didn't even care enough to contact anyone to try and get it back!!! I know, I know bad attitude to have but when I couldn't even reset my password I came here and saw so many familiar names I didn't feel the need to get anything back. It already feels like home!!!! Glad I found this place.
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Old 01-31-2008, 12:27 PM #297
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Hi,
I just came over here from MSW...following the pack! I don't plan on completely leaving MSW but always enjoyed the lighter side of things...no longer available!
I introduced myself on the first thread on the General tab...didn't realize there was a whole category just for us MSers! It took me quite a while to find it!
Anyway, there are lots of familiar user names here...I feel right at home! My user name on MSW was Missyb (probably should have kept it the same but jumped at the opportunity to have a new more inventive name )

I was dx'd with RRMS 9/02 and started Betaseron 10/02. Currently I am the washout phase from Betaseron and am finishing the testing to see if I qualify for the fingolimod trial. I only have one MRI left and then I should know if I'm in or not. Randomization day will be Feb 19 if it is a go! I am excited and ready to get this show on the road.

General info...I'm 36, married with no kids, but 3 wonderful kitty kats. Live in Northern Kentucky and work in Cincinnati as a environmental lab technician.

Looking forward to meeting you all!
Melissa
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Old 01-31-2008, 12:44 PM #298
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Quote:
Originally Posted by labwrat View Post
Hi,
I just came over here from MSW...following the pack! I don't plan on completely leaving MSW but always enjoyed the lighter side of things...no longer available!
I introduced myself on the first thread on the General tab...didn't realize there was a whole category just for us MSers! It took me quite a while to find it!
Anyway, there are lots of familiar user names here...I feel right at home! My user name on MSW was Missyb (probably should have kept it the same but jumped at the opportunity to have a new more inventive name )

I was dx'd with RRMS 9/02 and started Betaseron 10/02. Currently I am the washout phase from Betaseron and am finishing the testing to see if I qualify for the fingolimod trial. I only have one MRI left and then I should know if I'm in or not. Randomization day will be Feb 19 if it is a go! I am excited and ready to get this show on the road.

General info...I'm 36, married with no kids, but 3 wonderful kitty kats. Live in Northern Kentucky and work in Cincinnati as a environmental lab technician.

Looking forward to meeting you all!
Melissa
Melissa
Glad you made you way over from the other land. I've got a question? what is fingolimod? Hope to see you around you've find a most awesome place here.

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Old 01-31-2008, 01:50 PM #299
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Hi Beth,
Thanks for the welcome

Fingolimod is the oral drug that is in phase III clinical trial in the United States, Canada and Europe. The research study that I would be taking part in is a 24 month, three armed, double blind study with placebo. I am keeping my fingers crossed that I won't get the placebo.
I believe you can look fingolimod trials up on the NMSS webpage. Check it out! Last I heard, they were expanding the number of individuals in the study from 900 to 1000 and enrollment is still open.


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Old 01-31-2008, 08:56 PM #300
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I am new to this site and found it to be really helpful ...
it has been over 2 years now since my dx and I am finally getting to understand how it works, thanks to these sites and all the help you all provide.. Hello to all

Mike
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