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Old 04-01-2008, 12:00 PM #361
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Hello

I have had a thoracic spine MRI, a cervical spine MRI and a brain MRI. On March 19th my neurologist called me and said that from looking at my brain MRI, she said that I had multiple sclerosis. She has ordered a spinal tap for me before putting me on Rebif.

I feel so overwhelmed. I just don't know. I guess I am in denial. I have only told a few people and am afraid to tell others until after my spinal tap. I am constantly reading about Multiple Sclerosis on the internet and have been reading the materials she gave me.

When you have a brain MRI and it comes back that you have Multiple Sclerosis does that mean the spinal tap will come back the same? I have 5 children, four sons, 16, 14, 12 1/2 and 8 1/2 and one daughter 5. I work full-time and have a disabled husband. He has limb girdle muscular dystrophy.

As my neurologist told me, it is treatable but not curable.
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Old 04-01-2008, 01:35 PM #362
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Welcome Roz, so nice to have you here. I am so sorry for your recent DX of MS, but so glad you found us.

After you have been DX, I see no need for an LP, unless your Doc wants to rule out something else. The LP findings that point to MS ar Banding and protien in the spinal fluid + other things, of which,I'm not familiar.

So sorry about you DH's disability, as well. The two of you have quite a challenge in front of you. If we can be of any help and comfort, do not hesitate to let us know.

In the meantime, please join in anywhere here and enjoy being a part of our Family.

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Old 04-02-2008, 07:41 AM #363
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Hi everyone,

I am seeing lots of familar names on this site that were currently or still are on another site I frequent.

Dx in 2004 with MS by way of ON
I am happy to join in the conversations you all have going on here.

My user name on the other MS site is Terry.
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Old 04-02-2008, 09:18 AM #364
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Hi Terry! Welcome to NeuroTalk!
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Old 04-02-2008, 10:00 AM #365
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Welcome Terry...I love your user name...LOL...says it all. All it needs is one of these beside it.. or this..

Hope you like it here..
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Old 04-03-2008, 12:37 PM #366
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I am not totally new here (lurker) but I did want to re-introduce myself since there are so many more new people here since my last visit and I dont post much.

Sweetyhide from NC
dx in 2004
Tovaxin trial participant

love cats (can you tell?) and the web
Married 22 years this year and I have 2 sons.
One 18 and one 21.
My 21 year old is in Iraq fighting with the Navy and we expect his deployment to end this month. (thank God)
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Old 04-03-2008, 12:43 PM #367
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Hi Sweety!

What are you trying to appear all mature and wise, throwing around all those big numbers; married 22 yrs, kids that old?

Tell them the truth . . . you married at age 12.

Cherie
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Old 04-03-2008, 12:53 PM #368
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Hi SweetyH

So glad you are no longer just a lurker. We rarely bite. (if so, there is usually chocolate involved)

And will listen to all your stories, rants, observations etc. Please find a comfy spot and speak up.

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Old 04-03-2008, 05:39 PM #369
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Quote:
Originally Posted by lady_express_44 View Post
Hi Sweety!

What are you trying to appear all mature and wise, throwing around all those big numbers; married 22 yrs, kids that old?

Tell them the truth . . . you married at age 12.

Cherie
Me mature? Ha!
It's not in the numbers, it's in the mind.
Since my mind is half gone I cant very well speculate on my mind age.


thanks for the re-welcome MSacorn!
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Old 04-05-2008, 03:30 AM #370
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Smile Hi Everyone!


Hi~ I'm Sue and I'm starting on Ty this next week and a tad nervous about it. I thought this might be a great place to meet new friends with MS. I was just told by my new Neuro who is a MS Specialist with FloridaMS.org that I am Progressive Relapsing. My old Neuro said I was Secondary Progressive so who know's????? I did some research and I guess that I do fit the PRMS profile more.

Anyway, hi to everyone and all the other Newbys like me!
Sue
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