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Old 11-18-2008, 02:24 AM #11
MICHELLE13 MICHELLE13 is offline
New Member
 
Join Date: Nov 2008
Location: Albany, GA
Posts: 1
15 yr Member
MICHELLE13 MICHELLE13 is offline
New Member
 
Join Date: Nov 2008
Location: Albany, GA
Posts: 1
15 yr Member
Default New here

Hi, my name is Michelle I am new (of course). I have not been definitely dx with ms. I go this Thursday to the Mayo for the news. I was told at my last appointment with the doctors and after all the test that it was either definitely (sp?) or MS. I was also told a blood test could rule out Devics, I am not sure about this. My concern is my vision. I have never had vision in my left eye. Just one of those congenital things. The only down side to that was I could never drive. Since February my vision in my right eye has been shot and foggy and pain in the eye and that is what got me to this point. The drs feel that I have previous attacks of ON and this last one since February just was the final blow. The doctors notes say "impaired visual quality in right eye with constriction of the visual field, some segmental optic disk pallor, and nerve fiber loss on OCT study." He told me that there was nothing to be done to repair my vision and the plan would be to stop the attacks. I have had the other quality, numbness, tingling, pain, falls, foot drop, foggy memory for years but never sought treatment until it effected my vision. And the neurological exam showed weakness on left side and tremors (who knew) and all kinds of other information that I really don't care about right now. And yes I've had MRI's galore and blood work galore, but they just aren't my priority right now. IT'S My vision. It's hard to take. I have been on short term disability from my job for a month because I work in a credit dept. and work with financials and spreadsheets and numbers all day and anyone who has experienced ON knows you can't make out numbers. And with magnifying tools it just makes the numbers bigger blurs. I guess I just wanted some place to let this out. I am frustrated. I just want to wake up tomorrow and go back to work. My husband and daughter have been wonderful, but my extended family stinks. First they bring it up, not me, then proceed to tell me "well it could be worse" "thank goodness ms is a slow condition" "atleast you don't have cancer". And I agree it could be worse, and I am grateful I don't have cancer, but comments like this make me feel like my concerns and fears and frustrations are not valid. Like I should tell myself "buck up". Your vision is shot and there is nothing you can do about it, so get over yourself. Which just isn't very helpful. THANK YOU for letting me RAMBLE on and on, and I am hoping I will find a lot of useful info from your site.
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Riverwild (11-22-2008)
 


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