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Old 11-17-2009, 11:08 PM #10
plewmom plewmom is offline
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Join Date: Nov 2009
Posts: 1
15 yr Member
plewmom plewmom is offline
New Member
 
Join Date: Nov 2009
Posts: 1
15 yr Member
Confused Limbo...

Hi all,

I'm still in limbo and looking for information and support. To make a long story short, after 5 years of progressing symptoms, I'm in the final stages of a full work-up and waiting for answers. In the past few months I have seen two neurologists (the first one was a jerk, so we requested a second opinion), a neuropsychologist, a rheumatologst, an ENT and a Vestibular Audiologist... and now we are back to the neurologist again because everything points to some type of central nervous system problem... and the "M" word keeps coming up. Symptoms include fatigue, pain/numbness in my hands, stumbling, dropping things, ringing in my ears, vision problems (nystagmus and oscillopsia) and some pretty significant cognitive changes with my short-term memory and sequencing abilities.

I see the neurologist again on Thursday and they are talking about a lumbar puncture looking for "bands" and evoked potentials. My MRI showed only one lesion, but they said something about the strength of the original MRI not being what they liked. Does this sound like they are looking at MS?

I'm really at the point where a MS diagnosis would be welcome, rather than being in this limbo of "we know something is going on, but we don't know why".

Thanks!
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SallyC (11-18-2009)
 


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