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Old 02-17-2010, 12:18 PM #1
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Hi and welcome to NeuroTalk! It can take a while to get a definite diagnosis of MS. Hang in there and keep coming here....we all understand and it helps to be able to talk to others who understand.
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Old 02-17-2010, 12:48 PM #2
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hello and welcome to those who I missed coming in.
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Old 02-17-2010, 01:10 PM #3
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I do have a definite diagnosis of RRMS.......
how often are they wrong?
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Old 02-17-2010, 11:21 PM #4
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Quote:
Originally Posted by RelyonHim View Post
I do have a definite diagnosis of RRMS.......
how often are they wrong?

Sometimes, especially if the come up with a DX, before all other diseases/causes are eliminated.

Has your Doc recommended any Meds yet?
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Old 02-18-2010, 06:14 AM #5
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Quote:
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Sometimes, especially if the come up with a DX, before all other diseases/causes are eliminated.

Has your Doc recommended any Meds yet?
He gave me the info for ABC-R....but I am leaning toward LDN only. I have read a lot about each, and I just do not feel comfortable with the first four. LDN just makes sense to me. I do question my dx and will be getting a second opinion in March. My doctor is good and open to LDN...he is a general neurologist so i will be seeing a MS specialist at a comprehensive MS clinic in March.

I have a great deal of the symptoms.....but also have other medical issues that could account for some of them.

I have neck/back/shld pain with numbness and tingling into my arms and legs, very cramp/achy legs and an abnormal SSEP......but I do have two herniated discs

I have frequency and leaking urine......but I have 5 children

I had a few white matter lesions.....but I have a history of severe migraines, which can cause similar lesions

I have low B12 (not extremely low 308) which can mimic MS symptoms, including extreme fatigue.

Do you see what I mean.....I am in the medical field and I know that makes me a very bad patient and I question everything....because after all it is
Practicing Medicine

Maybe it is just denial....I haven't told me mom or siblings....want to wait for the second opinion, so maybe I won't have to tell them at all.

Thanks for listening,
Sharon
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Old 02-18-2010, 11:07 AM #6
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Nothing wrong with a little healthy denial.

Come on in and join us in the rest of our home, pull up a pillow and make yourself comfy..
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Old 02-19-2010, 08:00 AM #7
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There is nothing wrong in waiting to start DMD (disease modifying drugs) if you are actively persuing a 2nd opinion. I had one neuro tell me that it was perfectly acceptable to chose NO meds if that is what I wanted to do. He warned me that once you start, they tend to not want you to stop. They will switch you to another one, if you have issues, but rarely will they let you put down the needle once you pick it up.

Welcome to the club house. Sorry you need to be here.
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Old 02-19-2010, 05:47 PM #8
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Quote:
Originally Posted by RelyonHim View Post
He gave me the info for ABC-R....but I am leaning toward LDN only. I have read a lot about each, and I just do not feel comfortable with the first four. LDN just makes sense to me. I do question my dx and will be getting a second opinion in March. My doctor is good and open to LDN...he is a general neurologist so i will be seeing a MS specialist at a comprehensive MS clinic in March.

Sharon
even without a DX, LDN is a good choice
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