hi. i've been checking in here the past few months looking for answers, trying to understand what is going on with me. right now i am scared, nervous and just plain tired of feeling lousy. let me start at the begining and see if anyone can help me understand. last june i started to drop things with my left hand, a small area above my wrist appeared at same time with mild pain. dr didnt know what it was and sent me to ortho dr. when mri of wrist and emg was "ok". ortho dr. didnt know what was wrong with wrist either. he did xrays of neck (arm from elbow to fingers ached with tingling). dx: degenerative changes in cervical spine. "can't do anything more for you- go see a neurosurgeon . 1st neurosurgeon told me my problem wasn't in his realm of practice . now both arms ache bad, can barely work and all tests come back "ok" or normal. new neurosurgeon in nov. did emg on left arm. omg - severely pinched at elbow. surgery to move nerve dec 3. had heavy legs (dead legs) for couple weeks last fall but it went away, well its back along with my foot feeling like ice. periodically it feels like hot water is poured down my calf but skin is fine. wake up with headaches last forever as well as both arms heavy and numb. this new symptom is the most annoying. my face feels kinda numb after novacain wears off on my cheeks towards ears. i am just so frustrated hurting all time and being ignored or dismissed by dr.s. i sa the neurosurgeon for less than 2 minutes, this time brought my list with me. getting mri of brain and cervical spine this tuesday. sorry so long but i'm desperate to understand and be understood. thanks for listening at least.

Welcome to NeuroTalk, Snookie.

Sure sounds like it could be MS, but your Neuro will do all the tests to try and determine that. In the meantime, hang with us and we will try to help you along the way.

Welcome Snookie (love the name) I hope you find answers. Dismissive MDs tend to be common and that makes me mad. Perhaps a visit to an MS center would be of value to you? Your regular MD could help you schedule it. If your regular MD seems tired of you, or dismissive perhaps you can search out a new one. Sometimes fresh eyes can be helpful.

Pull up a chair and stay a bit.

Welcome Margo and Snookie,
I'm glad you found us. You both are in the same situation. You have symptoms, pain, tired and more, yet you can't get an answer.

Everyone deserves to know what is wrong with them. You want to know why you feel so crummy all the time. An Ms Specialist in a teaching hospital might be the answer. They know what tests and the protocols for these tests to ask for them correctly.

They have seen MS and other neurological diseases in many patients and how it can present itself in so many different ways. No two people have the same symptoms.

If you feel that bad, don't give up. Some drs wait and see, over time, before they dx a disease. But get tested and keep the results and all tests, and keep a journal of symptoms. Good luck to both of you.