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Old 04-07-2011, 12:09 PM #1
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Quote:
Originally Posted by D0ct0rT View Post
That sounds fun. How do I post a thank you on a thread?
bottom right corner of the thread are a couple of buttons that say "quote" or Edit or THANKS! just click thanks!
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Old 04-07-2011, 09:59 PM #2
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Quote:
Originally Posted by Dejibo View Post
bottom right corner of the thread are a couple of buttons that say "quote" or Edit or THANKS! just click thanks!
I see it now but didn't see it on the lower right before. Thank you. The MRI was LONG today. It took 2 hours and 15 minutes so do the brain and spine. I was dead tired and got some rest during the MRI and was able to drive myself here today. I've taken Amprya 3 days now.
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Old 04-11-2011, 01:17 PM #3
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Default New Here

Hi, I just joined this group and wanted to say hello. I was Dx'd RRMS this past January, and I am currently on Copaxone. I live in the Northwest, have a great husband and two dear children under the age of 6. I am still actively trying to learn about this disease, and coming to terms with the long term implications.

I look forward to getting to know everyone
JSSL

Ps. I tried to edit my signature, but it is not an option...does anyone know how to get this option turned on?
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Old 04-11-2011, 01:30 PM #4
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Welcome to NeuroTalk.

The signature feature will open, after a few posts.

For new members this is what we do to prevent spamming and abuse of the feature. Just keep posting and reading and the signature will become available, soon.
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Old 04-11-2011, 02:02 PM #5
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Hi JSSL and welcome to NeuroTalk! Please browse around and make yourself right at home.
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Old 04-11-2011, 02:37 PM #6
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Hello and welcome! pull up a chair and grab your reading glasses. We are happy to have you here.
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Old 04-12-2011, 02:24 PM #7
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Default Don't know yet

Hi there, my name is Jon. To be honest I may not "belong" here as I'm still trying to find out what is going on. My symptoms started about 4 months ago, maybe longer. My legs tingle/buzz constantly from the knees down. It never goes away, though some days are better than others. At first my arms did the same thing from the elbows forward but now it's just mildly in my finger tips.

When it all started getting worse it also included tinnitus (sp?) but that has faded. The main concern though is stumbling. When the symptoms first started I was washing my car and literally fell onto it when my right leg just went away... but those things happen so I wasn't too worried at the time.
But my stumbling seemed to get worse, I usually walk ok forward and backward but any movement sideways causes me to stumble. It's very strange. I feel like I have to concentrate on every step to keep my balance. The neuro had me walk heel to toe and said that there was definitely a problem.... The question is what?

There seems to be some weakness involved. There are days when it takes all my energy and concentration to walk, and I feel like I'm going crazy. I have been forcing myself to go for walks but after a few blocks it's as if I have no energy at all and literally every step is like molasses. But maybe it's nothing and I'm just making a mountain out of a mole hill.

So, like I said I may not belong here. They did a neuropathy test but that's ok. They did an MRI and found white patches but that could be other things as well. So they did the evoking tests, but now I am in hurry up and wait mode. In a way I want them to find something because then I won't feel like I'm simply crazy.

Other symptoms, related or otherwise, fatigue and brain fog by about 2 p.m. These symptoms started a long time ago, and in fact led to a diagnosis of low testosterone, but frankly the replacement therapy didn't help. And my sex drive went away almost completely after that. The endo said it had to be depression then, but I knew it wasn't. Add to all this now I have spontaneous crying jags, with very small things triggering them. (But again that could be depression.) And lastly, there have been several episodes where I start to get up but can't, and have to sit down again. There's no warning, I'm half way up and then it's like there's no muscle control and down I go again, and then if I hold onto the table and push up I'm ok.

Soooo, I thought I'd check in with people who have already been through the ringer and may have some insights. I don't expect a medical diagnosis, just curious to see if any of this sounds familiar to anyone.
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Old 04-12-2011, 02:56 PM #8
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I too have decided to check in here, though I am not sure what is going on yet...

I have many early symptoms and I know that SOMETHING is going on, just not sure what. Waiting for an MRI right now. And I admit I am frightened.
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Old 04-12-2011, 04:58 PM #9
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Quote:
Originally Posted by Rainbowzz View Post
I too have decided to check in here, though I am not sure what is going on yet...

I have many early symptoms and I know that SOMETHING is going on, just not sure what. Waiting for an MRI right now. And I admit I am frightened.
So would you like to share what's happening? It might help to share.?
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