~~TO NEUROTALK..

I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.

Best Wishes,

sally...i had to jump in here to say....

your dancing pumpkins are the absolute best!!!! LOL. i have sat here just watching and laughing. hehehe..i'm gonna have to keep your thread bumped up just so people will look at it. laughter is the best medicine.

Thanks Curious, Glad you like it.

I was hoping that Our Mod could make this a sticky.

I am a brand new member my name is judylouwho, that is pretty annonimous isn"t it . I am just trying out this site and how to use the program and I am finding it kinda intimadating with all this avators because I have no idea how to do all this .I hope I do get the hang of this it could be really supportive to me and my family ...... judylouwho Can someone direct me in how to use this program it is so new and awesome I can"t wait to learn moreI have had ms for many yrs I am a 55 yr old female and on betaseron injectable and take baclofen for spacticity and for pain in my legs . I use a walker most days and a power chair for long distance I have had ms since my dxd in 1989 I have a lot of memory issues it varies from day to day and if I get too tired or over do it I am really badly affected judylouwho

Well Hi, Judylouwho, so nice to meet you.

What do you need to know, so far you are doing well. You got to the right place, didn't you.

If you want to add an avatar or a signature or make any changes to your bio, go to the top of this page and right under NeuroTalk is User CP. Click that and it will take you to your profile....on the left is a list of things you can do, just click one of them and make your changes or additions.

If you have any trouble, let us know and we will try to help.

Welcome to your home away from home. I'm looking forward to talking with you soon.

Hugs,

Hello Judylouwho, Welcome!

I'm glad to see you joined us

Hi -- I am new here -- this site was recommended to me by lady_express_44. I had been on a different site with her but am finding less and less to discuss there -- they evidentally have a problem with LDN...my drug of choice.

I have read some posts and you all seem positive, supportive and friendly.

I was dx in 2004 when I had a bout of ON --but they think I may have had MS for over 25 years...just have had long periods of remission. i am taking LDN -- Was on Copaxone but had problems with it. Glad to be off it. My symptoms are mild at this time. Residual issues with the ON--Florsents and hot weather bother me some--but its getting better all the time.

I Just started seeing a new Neuro -(got away from Kaiser-thank you God)- he is a MS specialist, seems great and has no problem with the LDN but he wants me to think about taking 4-Aminopyridine along with it. Has anyone heard of this? I googled it and still have reservations...in a higher dose it is a poision?

Well -- I am glad Lady Express recommended this board -- at least I can discuss the LDN openly and possibly get some answers. Hope I can help you all too from time to time. Gail

Hello Kitt and Welcome to the MS forum - sorry I don't have any answers for you but maybe someone else might.

Gail ~ Welcome! I have this feeling I know you from another board - hope you find this board more to your liking.

Hi Gail, nice to meet you.

Yes, LDN used to be a dirty word on most forums, because it was new, it was cheap and was not Big Pharma approved.

I'm surprised you are still having problems talking about it, though, since a lot of the naysayers are now on it..LOL.

We are free to talk about all our Med choices here, and debate them as well, so don't be shocked if someone does not agree that LDN is a good thing.

I am glad Cherie steered you in our direction.

Hugs,

Thanks Sally and Lee Ann -- Glad to be here.

I don't mind controversy == I like a good debate. And as far as meds go--its whatever works for you.

Have a good evening Gail