~~TO NEUROTALK..

I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.

Best Wishes,

sally...i had to jump in here to say....

your dancing pumpkins are the absolute best!!!! LOL. i have sat here just watching and laughing. hehehe..i'm gonna have to keep your thread bumped up just so people will look at it. laughter is the best medicine.

Thanks Curious, Glad you like it.

I was hoping that Our Mod could make this a sticky.

I am a brand new member my name is judylouwho, that is pretty annonimous isn"t it . I am just trying out this site and how to use the program and I am finding it kinda intimadating with all this avators because I have no idea how to do all this .I hope I do get the hang of this it could be really supportive to me and my family ...... judylouwho Can someone direct me in how to use this program it is so new and awesome I can"t wait to learn moreI have had ms for many yrs I am a 55 yr old female and on betaseron injectable and take baclofen for spacticity and for pain in my legs . I use a walker most days and a power chair for long distance I have had ms since my dxd in 1989 I have a lot of memory issues it varies from day to day and if I get too tired or over do it I am really badly affected judylouwho

Well Hi, Judylouwho, so nice to meet you.

What do you need to know, so far you are doing well. You got to the right place, didn't you.

If you want to add an avatar or a signature or make any changes to your bio, go to the top of this page and right under NeuroTalk is User CP. Click that and it will take you to your profile....on the left is a list of things you can do, just click one of them and make your changes or additions.

If you have any trouble, let us know and we will try to help.

Welcome to your home away from home. I'm looking forward to talking with you soon.

Hugs,

Hello Judylouwho, Welcome!

I'm glad to see you joined us

Welcome to the board, JudyLouWho!

Cherie

Hi Judylouwho,

WELCOME TO THE NEUROTALK FORUM COMMUNITY!

Please take your time just looking around and when you feel comfortable we can't wait to read your posts and sharing your situation and experience. MS since 1989 so I guess you've seen a lot in the medical community change over the times.

Don't be shy about sharing some of that with us and comparing experiences for the rest of us.

Again, thank you for coming and welcome.

Thanks so much for welcoming Judylouwho. I believe she vacated to the OCD Forum. I think she was confused, and came to the wrong forum.

My name is Mark. I have had RSD for the last 6 almost seven years and was recently diagnosed with neuropathy and now MS. As my Mom would say "I just sat down to eat dinner and all hell broke loose" LOL. I have been a member of the old Braintalk forum since 2004 until it crashed here back a few months ago. I usually hang out next door with the Reflex Sympathetic Dystrophy gang but decided it was time I marched myself over to say hello and meet you all. To be honest with you I have been peeking around the corner of the door for a few weeks now but I guess maybe I felt that if I came into the room I would be relenting to MS and I wasn't quite ready yet to admit to myself that I had it, but I'm okay now. So anyway, I'm 43 living on Cape Cod trying to get my SSDI approved for the second time (with a attorney's help this time) and taking life one day at a time at this point. I now walk with a cane but find it difficult to keep my balance.

The worst times of the day for me are first thing in the morning (I can't even get out of bed and the pain levels are unbelieveable) and late night, I have tremors and they jerk me around bad in bed and make it almost impossible to get any descent sleep.

All in all I am so grateful to Neurotalk for being here. It is my life line to sanity. My only connection to people who have any idea what a second of any given day for me can be like. The people around me at home, etc try to be sensitive but they just don't quite get it. Either they don't even come close or they back off completely.

Bottom line. Thank you all for being here. You are more important than you may realize. Thank you!!

Mark